Please add to poll: Initial Diagnosis: 7/26/08 # of relapses: 0 Health Issues: fatigue, memory loss, headaches, very low Vitamin D and calcium levels...
Hello everyone!!!! I am Lena,Kostas' s fiancee and it's the first time I am writing to you. I just want to tell that you have been like family to us.We live in...
Jeannie again - I forgot to mention re-occurant colds & infections :-( xxxxxx The Trail Is Beautiful, Be Still...... Dakota Indians Do something amazing ........
Hi,LENA, This is Becky from USA Itake it you are from GREECE. I have TTP ALSO since January 12,2009 I HAVEN'T had any relapse since then but I AM NOT FULLY...
Hi everyone I WOULD LIKE to ask a question of everyone , no one has mentioned the cause of your TTP, DOES any of you knoe what caused your's or was any one...
Hello becky. my TTP is idiopathic which means unknown cause. Not knowing what brought it on or what may trigger it is a scary thing. If for say I go throught 3...
Hi Jeannie here My GP has never questioned re TTP & the flu shot but thenagain they aren keyed up on TTP - very poor I know.. My haemo has said its up to me...
Hi Becky :-) Jeannie here :-) mine was idiopathic too .. Ive never taken Plavix You mentioned you had a UTI on diagnoses - speaking to my haemo & her colleages...
Hi, Becky!! Like Carla, mine has no known cause. My doctors say possibly the Adamst13 gene that makes the enzyme that helps blood clotting. It is scary not...
... my TTP is idiopathic which means unknown cause. Not knowing what brought it on or what may trigger it is a scary thing. If for say I go throught 3 relapses...
Dear Joy, Just wanted to say I'm still praying for Gill. I'm not too far from you. I live in Cochran, 40 miles south of Macon. I wonder if anyone else in our...
Hello Linda, we don't know of anyone in the group who is from this area. The ladies in dialysis say they have patients with TTP but we've never managed to see...
While in active TTP I had severe defiency (<5%)of the Adamts13 and the inhibitors were 1.6 which is very high. The norm is <0.4. Each time i see my hema I am...
Wow, this is good info. My adamst13 deficiency is the same as yours. My hematologist will not tell me or try to make a guess as to whether i will relapse or...
I haven't posted in a looooong time, but I try to read all the posts, needless to say I very rarely get too. But I have a question, has anyone developed...
Hi there Jeannie here - TTP is an auto immune condition & it can start other auto immune conditions - one of which is rheumatoid arthritis so it would be...
Hi wendy hear not been on for a bit as well.I had a MRI scan last month and thay found out that i have it in my shoulder and back it is so painfull.Some...
Rebekah, My T.T.P. was what they call Idiopathic (Unknown cause). I thought I had a bad case of the flu. They think it could have been caused by a drug...
My TTP is of unknown orgins! I have had every test under the sun even genetic! It is just like other auto immune disorders that do not have a reason for a...
Thanks to everyone for your input. We never figured out what caused my TTP/ITP, but so far I haven't had a relapse in almost 4 years. But now with this...
Hi Julie, I developed RA and a few other things. I had TTP in 1998 with no relapses. I never felt good after though and developed severe fatigue. I now have...
I was under the impression that there were 2 types of thrombocytopenia. Thrombotic (rare=less people have it) & Idiopathic (more common=you here more people...
Idiopathic thrombocytopenic purpura (ITP) is the condition of having a low platelet count (thrombocytopenia) of no known cause (idiopathic). As most causes...
Hi lena, Nancy M. here. It's so nice to see another person's perspective on what us TTP'ers are like following this horrible disease. Glad to hear Kostas...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
