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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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am i the only one   Message List  
Reply | Forward Message #9989 of 21824 |
Re: [thrombocytopenia] re: am i the only one

I have the memory problem to shoort term seemsto be effected more.
Here recently I have problems in in writeing down whats in my head.
Not sure what that is but I think it is comb. of ttp and  the meds I am on.
Going to talk to my neurologist and hemotolagist about reduceing meds..
                                                                                                            Mike

Ecel Pea <cheerful_syrup@...> wrote:
good observation.
 
i have have your symptoms too....even though i've been in remission for 3 years now i still am forgetful...i refer to it as "short term memory loss" first you think its some joke a cartoon character had and then you realize its not so unreal after all.
 
i forget things i've done just seconds ago...and i forget  words and can't finish sentences.
 
my last check with my neurologist he told me to just get out more and i think it worked. I told him bout my depressions and why i suspected of having them and he told me to find a hobby....anything that would shift your attention on something else.
 
sometimes we tend to panic on little changes that we're not used to especially if we have gone through an illness as grave as ttp, we tend to assume that everything else is a symptom of something. But most times its not, its just our biological body thats telling us we are undergoing change.
 
so what did he told me when i told him bout my short term memory loss? he told me to read more often. Probably learn a new song to exercise my memory to words again. when you had your ttp did you ever had a hard time reading words? like they dont mean anything? I had that its as if my brain shuts down or something. Maybe we forget because when our brain shuts down that time we were sick and got better now, maybe our brains are still adjusting to the new images we're feeding it.
 
 
but i will raise your question re bipolar disease i could be a possibility you know?! i'll post it here if anything comes up.

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Sat Dec 3, 2005 8:25 pm

mikehall1225
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Message #9989 of 21824 |
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i have ttp to im only 23 this leaves me very forgetful and some days im sad mad or happy and i dont know what is wrong wit me has any been told that it can...
jysizzle1
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Dec 3, 2005
9:22 am

good observation. i have have your symptoms too....even though i've been in remission for 3 years now i still am forgetful...i refer to it as "short term...
Ecel Pea
midsummer_yve
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Dec 3, 2005
6:57 pm

I have the memory problem to shoort term seemsto be effected more. Here recently I have problems in in writeing down whats in my head. Not sure what that is...
Mike
mikehall1225
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Dec 3, 2005
8:25 pm

I am so glad to hear that i am not the only one that has memory problems. I just thought that it was me..But your right sometimes i can put something down and...
Tracy Osborne
tosborne22
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Dec 5, 2005
1:01 pm

hi tracy, you are absolutely right bout god having plans for you. I remember when i had my ttp the doctors in one of the hospitals have given up on. Even after...
Ecel Pea
midsummer_yve
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Dec 6, 2005
4:21 pm

I have not so much memory but in the connection of thinking something and saying it outloud. I studder and stall and I feel really awkward at times. My ...
UBCNME2000@...
ubcnme2000
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Dec 7, 2005
12:08 am

Laurie I know how you feel,I have the same problems. My problems are in the way of thinking of the words then writeing them down right. This is what causees me...
Mike
mikehall1225
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Dec 7, 2005
1:43 am

Hi Laurie.. My family call these episodes "TTP Moments".. ha/ Thank God for family and friends who understand us in these situations... It actually helps us...
Cara P
e_c_peterson_99
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Dec 7, 2005
2:55 pm

It does seem strange that most of us have this problem in common and the doctors and neurologists say there is no connection. Just goes to show you how much...
UBCNME2000@...
ubcnme2000
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Dec 10, 2005
6:29 pm

NO MAM YOU ARE NOT THE ONLY ONE WHO FEELS THIS WAY I THINK WE SOMETIMES KNOW MORE THEN THE DOCTORS AT THIS POINT BECAUSE AT TIMES I WONDER IF THEY KNOW...
Suzan Lambert
ttp20002000
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Dec 11, 2005
3:40 am

I had the pain in my joints and legs when I first got home from the hospital... But for some reason last night, I had them again. Nothing I did worked.... to...
Cara P
e_c_peterson_99
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Dec 11, 2005
1:01 pm

Hi Laurie now you are not.The first two years I had bad pains in my joint and legs and cramps so I had to jump of my bed everynight several times to make a...
barbarann133
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Dec 11, 2005
3:59 pm

Thanks for the information. I am a little afraid to stay on the strong stuff for too long as I have two little ones and they need a mom with a clear head...
UBCNME2000@...
ubcnme2000
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Dec 12, 2005
1:19 pm
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