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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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Re: ...it's all good and gone (Ellen)   Message List  
Reply | Forward Message #9593 of 21854 |
Re: ...it's all good and gone (Ellen)

Mike,
I am proud to say that I did catch this darn thing before it hit me
hard this time. I have my blood drawn every 2 weeks and have my labs
faxed directly to my house. I saw the fall before my doctor saw it and
of course called him immediately. I have to say, I did give myself a
pat on the back. As my doctor says, we are the experts with this
thing. I personally think we know more than some of these doctors.
This of course was my first relaspe and hoping and praying again it's
my last. I know you have been through alot with this. I continue to
pray for you everyday and everyone else on this site.
High platelets to all.
Sharon



--- In thrombocytopenia@yahoogroups.com, Mike <mikehall1225@y...> wrote:
>
> Let me know if you catch it before it gets you . Mike
>
> UBCNME2000@a... wrote:You are my hero!
> I have been waiting ten years for a pill to be taken for the TTP and
Poof! Remission!
>
> Sounds great!
> Now all I have to do is track this TTP thing like a bloodhound and
catch it before it gets me!
>
> HP^^ all
> Laurie
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Tue Nov 1, 2005 3:10 pm

sharzzi17
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Forward
Message #9593 of 21854 |
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Dear Ellen, I pray the Cyclosporine does it AGAIN, so you don't have to have the lines put back in! My hope for you (and for everyone who has TTP) is this:...
Mary
earthboundblue
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Oct 25, 2005
9:35 am

Mary, Thanks for your kind words. I'm doing better each day. Platelets are up to 100 now which is far better than the 45 they were 4 days ago. So far...
ellen frank
efrank123
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Oct 25, 2005
10:05 pm

Standing up and asking a REALLY stupid question here: If you do not have a cath in your neck or chest, how do they administer the Cyclosporine? Just curious. ...
Sue B
SuzAngel
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Oct 26, 2005
11:59 pm

Suz, Cyclosporine is taken in pill form. When I was hospitalized this time they just kept me there for observation as platelets were at 45 and gave me massive...
ellen frank
efrank123
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Oct 31, 2005
6:32 pm

Hey Ellen, Thanks for explaining! That's great that it works so quickly for you. No cath! I hated mine, all 3 that I had! I did the apherisis thing for about 4...
Sue B
SuzAngel
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Nov 1, 2005
1:02 am

Suz, I share your concerns and a day doesn't go by when TTP doesn't enter my mind. Yes, we have to learn to live with it and manage the fear. There is no...
ellen frank
efrank123
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Nov 1, 2005
1:31 am

You are my hero! I have been waiting ten years for a pill to be taken for the TTP and Poof! Remission! Sounds great! Now all I have to do is track this TTP...
UBCNME2000@...
ubcnme2000
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Nov 1, 2005
5:09 am

Let me know if you catch it before it gets you . Mike UBCNME2000@... wrote:You are my hero! I have been waiting ten years for a pill to be taken for the...
Mike
mikehall1225
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Nov 1, 2005
5:16 am

Mike, I am proud to say that I did catch this darn thing before it hit me hard this time. I have my blood drawn every 2 weeks and have my labs faxed directly...
sharzzi17
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Nov 1, 2005
3:12 pm

Sharon I am glad you caut it.God willing you will go into remission soon. If I could I would take all this from you and anyone else. I hahe delt with it so...
Mike
mikehall1225
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Nov 1, 2005
5:39 pm

I have always found great comfort from Music. There is nothing wrong with a good cry! When you feel it confirms that you are ALIVE!! I love Rascall Flatts,...
UBCNME2000@...
ubcnme2000
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Nov 1, 2005
5:16 am

Hi Ellen, I too am on Cyclosporine for a second time since my relapse last month. My doctor only gives it to me for 6 months after each relapse which has...
Melinda Hopkins
mrhopkins65
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Nov 3, 2005
4:47 am
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