Hi Sharon,
I'm fine. I am off all meds as of 2 weeks ago. My
docs are upping my blood tests to every 2 weeks which
is so strange as I have had to get blood checked only
every 6 months for a long tifme. I understand their
concern however, I am being a good girl doing what I
am told. So glad to hear all is well with you. I was
convinced the TTP was a thing of the past until I read
Nettie's post answering my question that her longest
remisssion was 7 years and then it was back. That's
not in my plans!!!Ofcourse it wasn't for her either.
I just can't understand why after all that time it
would rear its ugly head again. It's a strange
condition for sure. Take care and I know you will have
a wonderful summer. Did I tell you I am going to be a
grandmother again in August. Our daughter Lisa, one of
the twins, is having her second. That will make 5
grands for me. What a blessing they are!!! Take care
Ellen
P.s. I am also retiring in June. Yippee!!
--- sharzzi17 <sharzzi17@...> wrote:
>
>
> Hi Ellen,
> Just wanted to say hello. Hope all is well. I am
> doing great. Finally
> walking 2 miles a day and feeling good about it.
> Have you got off
> those meds you were on yet? I know you mentioned
> before the docs were
> going to start getting you off them. I continue to
> have my blood
> checked every 2 weeks. Going on 8 months of
> remission I am just scared
> of this thing coming back and just hope to catch it
> quickly if it
> does. Just definitely don't want another summer like
> last summer. It
> sure would be nice if there was an answer to all
> this. I guess all we
> can do is be cautious and aware. God Bless.
> Sharon
> Rocklin
>
>
> --- In thrombocytopenia@yahoogroups.com, ellen frank
> <efrank123@y...>
> wrote:
> > Thanks Nettie. I appreicate your comments. I was
> not
> > aware or maybe I just didn't want to know that TTP
> can
> > rear its ugly head after 7 years. I thought I was
> > doing great at 3 years with no relapses, but I
> will
> > rethink the whole thing now that I know it came
> back
> > for you after 7 years. Just unbelieveable that it
> > wouldn't just go away after all that time. You
> have
> > convinced me to be religious about the blodwork
> which
> > I must admit after 3 years I have gotten a bit
> casual
> > about. I sometimes get annoyed that all this
> > bloodwork is that necessary, but I will stick with
> it
> > after hearing from you. You are living proof that
> TTP
> > may always be lurking somewhere. Thanks so much.
> > Ellen
> > --- nettie401a@a... wrote:
> > > Ellen,
> > > My longest time between relapses was 7 years. I
> was
> > > first diagnosed in 1982.
> > > Back then my doctors told me "lightening
> doesn't
> > > strike twice"...I relapsed
> > > in '89; '95; '99; '02 and '03.
> > > Glad to hear you've been in remission 3 years.
> Will
> > > it return.....wish we had
> > > the answer to that, but we're all different and
> I
> > > think we all pray that it
> > > will never return. It's a good sign you're off
> all
> > > meds and you check your
> > > bloodwork regularly. Within the past 2 years,
> I've
> > > gone from 3 times a week
> > > down to monthly and just recently every 2
> months.
> > > We all hope we can make TTP a
> > > thing of our pasts. Just keep a positive
> attitude,
> > > be optimistic and stay
> > > well. Nettie
> > >
> >
> > __________________________________________________
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>
>
>
>



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