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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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hi i'm new   Message List  
Reply | Forward Message #6440 of 21854 |
Re: hi i'm new

thats weird my doctor showed me places to check to make sure there
was no swelling because he said if swelling starts then it's wemt
into lukemia




Thu Sep 2, 2004 2:49 am

sl_mj2002
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Message #6440 of 21854 |
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in 2001 i was diagnoised with idiopathic thrombocytopenic purpura i have pleaces on my leg's that seep blood and they look awful it has really had me...
sara
sl_mj2002
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Sep 2, 2004
12:08 am

Sara, I had been diagnosed with ITP 4 years ago and had another episode of my platelets crashing 2 years later. I recently was hospitalized 6 weeks, 4 of those...
sharzzi17
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Sep 2, 2004
12:22 am

so ITP can turn into TTP?my insurance is stupid i have UHC and they say that if a disease is unknown it could cost them more than diseases that are known...
sara
sl_mj2002
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Sep 2, 2004
12:30 am

Sara, I moved a year ago and I found a new doctor. When they diagnosed me with the TTP, my new doc said she thinks I had TTP before with my other 2 episodes....
sharzzi17
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Sep 2, 2004
12:44 am

i have a question for you did they ever tell you that ITP can turn into lukemia?my hemotologist told me that so he checks my lymph nodes too...
sara
sl_mj2002
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Sep 2, 2004
1:33 am

No, they never said ITP can turn into lukemia, but when I was diagnosed with the ITP they did check for that as well as lupus and all that was negative. They...
sharzzi17
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Sep 2, 2004
2:19 am

thats weird my doctor showed me places to check to make sure there was no swelling because he said if swelling starts then it's wemt into lukemia...
sara
sl_mj2002
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Sep 2, 2004
2:49 am

I never have been told that. I don't know what to say. Mind me asking where are you from? I am from Sacramento, CA Sharon ... there ... wemt...
sharzzi17
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Sep 2, 2004
3:06 am

Did they find something in the bone marrow biopsy? I thought that it was to test for leukemia? And if they found nothing then they guessed it was ITP. Am I...
Heather, Copper & Vada
sadiencopper
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Sep 2, 2004
2:01 am

they done the bone morrow test to confirm it was ITP and plus took 11 tubes of blood out of me a week later i went back and he told me it was ITP but he had...
sara
sl_mj2002
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Sep 2, 2004
2:46 am

The medic alert ID is a good idea. Something I've been thinking about getting. Heather ... From: sara [mailto:sl_mj2002@...] Sent: Wednesday, September...
Heather, Copper & Vada
sadiencopper
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Sep 2, 2004
3:56 am

YES Get the Medic-Alert bracelet and the free necklace that you can get with it too. I have been needing one for years and finally when I was diagnosed with...
Lady Vanethica
lady_vanethica
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Sep 2, 2004
4:37 am

SHARON!! I'm from SACRAMENTO TOO!!!! I'm catching up on email, one group at a time and I clicked on your message by mistake, so I don't know what you've ...
Unicatwritr@...
unicatwritr
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Sep 2, 2004
8:29 am

i'm in enon ohio the boring state...
sara
sl_mj2002
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Sep 2, 2004
10:40 am

You can test positive for ITP and negative for LUPUS and still have LUPUS....living proof. Amy, Ohio...
amymartin@...
amy33103
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Sep 2, 2004
12:17 pm

Is there an actual test for ITP? I thought they just ruled out other things and that just left ITP. Heather ... From: amymartin@......
Heather, Copper & Vada
sadiencopper
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Sep 2, 2004
12:24 pm

I understood that ITP was determined as a diagnosis when a patient's platelet count was significantly below normal. Sorry for any confusion. Amy, Ohio...
amymartin@...
amy33103
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Sep 2, 2004
12:37 pm

When I was diagnosed with ITP 4 years ago and hospitalized, they tested me for everything they could think of and ruled everything out and then said it is ITP....
sharzzi17
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Sep 2, 2004
3:16 pm

Sharon, I was diagnosed with ITP in March of 2000 and now they believe that was my first manifestation of the Lupus. From what I understand and have read,...
amymartin@...
amy33103
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Sep 2, 2004
7:07 pm

Amy - Did they say anything about having high levels of protein in your blood too? I tested positive for ANA too and they said I had higher levels of protein...
Heather, Copper & Vada
rainbowrockc...
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Sep 3, 2004
4:53 am

Heather, I'm not sure about the protein and ANA. I know that my protein level was high at the end of my pregnancy (37 weeks) when I became preeclamptic....
amymartin@...
amy33103
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Sep 7, 2004
3:31 pm
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