Hello Monique,
hope you are feeling better and as promised here's the phone
number of the doctor we are somewhat confident with: 770-281-5100 her
name is Doctor Hahm (pronounced Hom) and based in Kennestone
hospital, Marietta, Atlanta area. I hope this helps.
High Platelets - Joy


--- In thrombocytopenia@yahoogroups.com, "Monique D. Simmons"
<monique1974@b...> wrote:
> Hello All,
>
> I introduced myself to the group a while a ago but i have not
participated in many of your conversations. I am writing to get some
advice from all of you. Here's my brief story.
>
> i had my first episode with ttp last august. it included a two
month hospitilization with 3 weeks in the icu. i suffered acute renal
failure...SVT...and all kinds of fun stuff that threatened my life
but i'm sure my story is very similar to most of yours. I live in
atlanta but all this happened while i was in Ohio visiting my family.
the doctors in ohio were excellent but i cannot say the same for my
hemotologist in Atlanta.
>
> I have too things that are occuring with my body that has me
concerned that i might be having another relapse. the first thing is
my eyes. my opthamologist diagnosed me with Superior Limbic
KeratoConjuctivitis (SLK). this condition causes the blood vessels in
my eyes to be inflamed and he had given me steroids in my eye drops
to attempt to stop the inflamation. if this doesn't work then i'll
need surgery to cut off the blood vessels. Also, last week i broke
out into the same rash i had before i was hospitilized last year.
the itching from the rash is very intolerable and it keeps me awake
at night. the rash seems to flare up at night and it just itches
during the day.
>
> so i had an appt with my hemotologist this morning to check my
platelets. my platelets are at 270K which is wonderful. however i
still expressed concerns to my doctor about this rash but he gave no
explanation and in a round about way told me that i do not need to
see him until my platelets start to drop. This is the second time he
has dismissed my concerns. i was so frustrated that i sat in my car
for 30 minutes and cried.
>
> i dont have a PHD but I know my body too well. I have a very strong
feeling that my eye problems and rash are somewhat releated to TTP.
>
> Could this possible be the initial stage of a relapse? Have any of
you suffered from this rash and what did the doctors prescribe to you
for relief?
>
> Also, i have asked for a different doctor in the practice b/c I
refuse to put my life in the hands of a doctor that i'm not
comfortable with.
>
> thanks in advance for your input.
>
> Monique :-)