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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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Reply | Forward Message #3726 of 21740 |
Re: [thrombocytopenia] Hello!

Hi Pam! Welcoem to another Military wife! I am also a military spouse.
I am married to a wonderful Army man. We are stationed at Ft. Lewis-
where are you guys! I was dx'd with ITP while pregnant with my second
child. recovered, and was fine until I got pregnant with my son. Again,
after delivery, my platelets went back up- but not to normal. My last
check they were 120. Funny thing- all three of my children have platelet
problems. My oldest was fine until she FINISHED treatment for ALL- her
bone marrow aspiration looks liek typical ITP according to one of the
oncologists here. my second child was dx'd officially with ITP at the age
of 11 months and never recovered. Now the docs say it isn't ITP since
she plain and simply does not produce and keep platelets that are
produced. She also suffers from anemia, neutropenia, panacyptopenia,
thrombocytopenia, and one other- hemo soemthing or another. She also
suffers from a lot of other medical problems. My son's platelets seem to
now be following the path of my second daughter's. He was dx'd 2 weeks
before he turned 2 and a month before my oldest was dx'd with leukemia.
His were doing fine except for when he was sick. Then about two years
ago his red cell line started crashing. His white count was low
previously, but not too bad. His last platelet count was actually 135-
highest we have seen in 2 years.
I would love to hear more from you as we are also under the "no
treatment" plan.


Margie, Mom to Karissa, dx'd at the age of 7 1/2 with ALL (1/95) and OT
8/25/97 and still dealing with long term effects at the age of 16 to
include ITP; Anna, age 13 with multiple medical problems of her own-
including ITP, and William- (AKA B.J.) 10 also with his own set of
medical problems including a platelet problem, and of course, wife to my
dear hubby, Kris, of 19 years!


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Wed Dec 10, 2003 6:38 pm

momto3itpkids
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Message #3726 of 21740 |
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Hello all! My name is Christy and I am 31. In 1996, I was hired to work at a Assisted Living Center and they did a CBC before I was hired. About a month...
Ask me, I might tell!
c_brooke_99
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Sep 10, 2003
6:37 am

My name is Pam. I am 24 years old, and married to my wonderful US Navy man. We are very blessed with 3 wonderful kidlets. I have had ITP since I was a kid. It...
Pam
usnavybyinje...
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Dec 9, 2003
10:15 pm

Hi Pam! It's good to hear that you have done so well with ITP. Keep your faith in God. I haven't been diagnosed with ITP or TTP, but I have lots of the...
De'Vonda Williams
ljadmw
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Dec 10, 2003
1:25 am

I worry about you - since you havent been diagnosed are they giving you treatment? I was led to believe that the disease is fatal without treatment. ... From:...
Joyce Encizo
encizo15
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Dec 10, 2003
2:20 am

I'm not getting any treatment besides getting platelets when I need them and blood. When I go tomorrow to the doctor I will find out what's next. I'lll keep...
De'Vonda Williams
ljadmw
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Dec 10, 2003
7:34 pm

Welcome Pam (and the few other new comers to the group)! Sorry to hear what you're going through right now -- I'm sure your doctors will make the right...
Ollie616@...
ollie6162002
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Dec 10, 2003
2:58 am

Hi Pam! Welcoem to another Military wife! I am also a military spouse. I am married to a wonderful Army man. We are stationed at Ft. Lewis- where are you...
nhisgrip1@...
momto3itpkids
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Dec 10, 2003
7:21 pm

We are stationed at Ft. Lewis- where are you guys! We are actually at Ft Sill Oklahoma right now. lol He is on recruiting duty. ;0) I am so sorry about your...
Pam & Rich
usnavybyinje...
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Dec 11, 2003
2:59 am

Hi, I just joined. I would like to tell you a little about myself. I was diagnosed with TTP June 04, 2004. I had gone to the doctor's and was dignosed with a...
mcarr2
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Sep 17, 2004
3:53 am

Hi there---Welcome to the group! You aren't Gill, are you? This sounds so similar to another story we heard where a woman had recently been married and then...
Lisa Schmitz
catsgreen777
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Sep 18, 2004
4:05 pm

Hello Lisa, this is Gill's Mum - I thought I'd give you an update. Gill seems to be doing fine and has been off steroids for almost a week. She's hoping the...
Joy
gertrude9992000
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Sep 18, 2004
5:24 pm

Joy---Great news on Gill! It sounds like things are REALLY looking up! Joy <garyandjoy@...> wrote:Hello Lisa, this is Gill's Mum - I thought I'd give...
Lisa Schmitz
catsgreen777
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Sep 19, 2004
10:45 pm

Wanted to say Hello! I am still reading messages from everyone and wanted to say Thank You and sorry for not writing sooner.I am new to the group and 3 1/2...
flr256
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Feb 23, 2006
7:07 pm

Dear Cindy--Good to hear from you! No doubt I'd rather live in Florida instead of Pennsylvania...tooooo cold here. But I was planted here, and can't seem to...
Mary
earthboundblue
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Feb 24, 2006
1:38 am

What a wonderful thing Cara is doing. Thank God for the people in this group. I really believe we will beat this disease yet...it messed with the wrong people!...
Deneen Drake
dneendrk
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Feb 24, 2006
7:00 am

Deneen--I definitely agree with you, Cara is really doing a great thing for us! And I LOVE what you wrote! TTP messed with the wrong people--Amen to that...
Mary
earthboundblue
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Feb 24, 2006
12:54 pm

Hello everybody! I just wanted to introduce myself. Some of you may know me from the MSN group that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22...
starskittles87
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Jul 13, 2009
9:35 pm

Hi Lauren! We are somewhat close in age (I'm 27) and I grew up near Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head...
Elizabeth Snoke
esnoke23
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Jul 14, 2009
12:52 am

... Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head up that way time to time. Anyways, I have a story very similar...
mjreynolds0756
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Jul 14, 2009
12:42 pm
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