Hi Pam! It's good to hear that you have done so well with ITP. Keep your faith in God. I haven't been diagnosed with ITP or TTP, but I have lots of the symptoms. I am also encouraged to know that you have 3 wonderful children. My husband and I pray to conceive some day. Be blessed.
My name is Pam. I am 24 years old, and married to my wonderful US Navy man. We are very blessed with 3 wonderful kidlets. I have had ITP since I was a kid. It goes into remission for years at a time.The last time I had an episode was in 2000 when I had my daughter. Postpardun hemmorhage..it was very scary. Thankfully, it has been a long time since I have had to have Prednisone (BLECH!!!) However, I was hospitalized last week for a pulmonary embolism (blood clot in my lung). Weird given my history of low platelets. I have been diagnosed with having Factor V Leiden gene mutation..making me 8 times more likely to develop a blood clot :/ Well, since I am on blood thinnners, and have a history of ITP they are watching me very closely..well, it appears that the ITP is rearing its ugly head again. My platelets yesterday were 57,000. Not tooo bad, considering there was a point they got down to 14,000. YIKES!! They are wary of putting me on anything for my platelets because of the embolism. sooo, I guess I am stuck between a rock and a hard place. lol I was wondering if there is anyone else who has the Factor V Leiden along with ITP. Oh, and for those who are trying to conceive with ITP, it can be done!! I am proof times three!! Thanks!! Pam
Hello all! My name is Christy and I am 31. In 1996, I was hired to work at a Assisted Living Center and they did a CBC before I was hired. About a month...
My name is Pam. I am 24 years old, and married to my wonderful US Navy man. We are very blessed with 3 wonderful kidlets. I have had ITP since I was a kid. It...
Hi Pam! It's good to hear that you have done so well with ITP. Keep your faith in God. I haven't been diagnosed with ITP or TTP, but I have lots of the...
I worry about you - since you havent been diagnosed are they giving you treatment? I was led to believe that the disease is fatal without treatment. ... From:...
I'm not getting any treatment besides getting platelets when I need them and blood. When I go tomorrow to the doctor I will find out what's next. I'lll keep...
Welcome Pam (and the few other new comers to the group)! Sorry to hear what you're going through right now -- I'm sure your doctors will make the right...
Hi Pam! Welcoem to another Military wife! I am also a military spouse. I am married to a wonderful Army man. We are stationed at Ft. Lewis- where are you...
We are stationed at Ft. Lewis- where are you guys! We are actually at Ft Sill Oklahoma right now. lol He is on recruiting duty. ;0) I am so sorry about your...
Hi, I just joined. I would like to tell you a little about myself. I was diagnosed with TTP June 04, 2004. I had gone to the doctor's and was dignosed with a...
Hi there---Welcome to the group! You aren't Gill, are you? This sounds so similar to another story we heard where a woman had recently been married and then...
Hello Lisa, this is Gill's Mum - I thought I'd give you an update. Gill seems to be doing fine and has been off steroids for almost a week. She's hoping the...
Joy---Great news on Gill! It sounds like things are REALLY looking up! Joy <garyandjoy@...> wrote:Hello Lisa, this is Gill's Mum - I thought I'd give...
Wanted to say Hello! I am still reading messages from everyone and wanted to say Thank You and sorry for not writing sooner.I am new to the group and 3 1/2...
Dear Cindy--Good to hear from you! No doubt I'd rather live in Florida instead of Pennsylvania...tooooo cold here. But I was planted here, and can't seem to...
What a wonderful thing Cara is doing. Thank God for the people in this group. I really believe we will beat this disease yet...it messed with the wrong people!...
Deneen--I definitely agree with you, Cara is really doing a great thing for us! And I LOVE what you wrote! TTP messed with the wrong people--Amen to that...
Hello everybody! I just wanted to introduce myself. Some of you may know me from the MSN group that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22...
Hi Lauren! We are somewhat close in age (I'm 27) and I grew up near Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head...
... Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head up that way time to time. Anyways, I have a story very similar...
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