--- In thrombocytopenia@yahoogroups.com, Elizabeth Snoke <esnoke23@...>
wrote:
>
> Hi Lauren! We are somewhat close in age (I'm 27) and I grew up near
Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live
in FL now but head up that way time to time. Anyways, I have a story
very similar to yours. I first came down with TTP at 17 years old. I had
bronchitis and was taking antibiotics for that when about 2 weeks later
I went back to the doctor because I was vomiting blood, had a massive
headache, and was white as a ghost. He took one look at me and sent me
to the ER where I was in the run of my life. I spent 16 days in the ICU
and had several plasma pheresis treatments. They thought I was in the
clear and sent me home. By the way my first catheter was in my groin
area but that got infected with a staph infection and that was a whole
huge mess in its self. So I was sent home and so excited to go back to
school...at the time I was a junior in high school. Two weeks went by
and I felt pretty good but my blood tests were
> showing differently and by the end of my second week out of the
hospital I was sent back in for a relapse. I cringed at the thought of
having to go back there and actually backed a bag to stay at hospital
this time. This time they put the catheter in my neck. I ended up being
there for 6 weeks basically ended up missing half of my junior year of
high school. Thankfully, when I left the second time I never had to go
back. It's been 10 years since I've had TTP and I couldn't be more
thankful to God for keeping me healthy.
>
> Feel free to email me back to share stories or thoughts.
>
> Are you on facebook? I joined a group on there for TTP and TTP
supporters! Feel free to look me up and add me! My name's Elizabeth
Snoke
>
>
>
> --- On Mon, 7/13/09, starskittles87 starskittles87@... wrote:
>
> From: starskittles87 starskittles87@...
> Subject: [thrombocytopenia] Hello!
> To: thrombocytopenia@yahoogroups.com
> Date: Monday, July 13, 2009, 5:34 PM
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> Hello everybody!
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> I just wanted to introduce myself. Some of you may know me from the
MSN group that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22
and I had my first episode of ttp a year and a half ago. I came down
with a cold, and as the week went on, I got worse and worse. Eventually,
I started noticing massive bruises and purpura. I was getting jaundice
also, and I went to the doctor. She took a blood sample, let me go home,
then called to tell me to get to the emergency room. I was admitted to
the hospital with my platelets at 13,000, which quickly dropped to
10,000. It took them 2 days to figure out what I had, doing a bone
marrow biopsy and many other tests. Finally, they put the neck catheter
in and went ahead with plasmapheresis. After a week, I was released. I
relapsed 3 months later, went in at 100,000 platelets and dropped to
19,000 overnight. They put the catheter back in, a week and a half of
treatment, then I was released. It's been a year and 3
> months since my relapse and I'm doing well. I get tired sometimes if
I don't rest or eat well. I get really bad migraines also, but
otherwise, I'm doing great. I just moved to Pittsburgh, PA for graduate
school! If anyone is in the area, let me know! I hope everyone is well!
>