Hi Lauren! We are somewhat close in age (I'm 27) and I grew up near Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head up that way time to time. Anyways, I have a story very similar to yours. I first came down with TTP at 17 years old. I had bronchitis and was taking antibiotics for that when about 2 weeks later I went back to the doctor because I was vomiting blood, had a massive headache, and was white as a ghost. He took one look at me and sent me to the ER where I was in the run of my life. I spent 16 days in the ICU and had several plasma pheresis treatments. They thought I was in the clear and sent me home. By the way my first catheter was in my groin area but that got infected with a staph infection and that was a whole huge mess in its self. So I was sent home and so excited to go back to school...at the time I
was a junior in high school. Two weeks went by and I felt pretty good but my blood tests were showing differently and by the end of my second week out of the hospital I was sent back in for a relapse. I cringed at the thought of having to go back there and actually backed a bag to stay at hospital this time. This time they put the catheter in my neck. I ended up being there for 6 weeks basically ended up missing half of my junior year of high school. Thankfully, when I left the second time I never had to go back. It's been 10 years since I've had TTP and I couldn't be more thankful to God for keeping me healthy.
Feel free to email me back to share stories or thoughts.
Are you on facebook? I joined a group on there for TTP and TTP supporters! Feel free to look me up and add me! My name's Elizabeth Snoke
--- On Mon, 7/13/09, starskittles87 <starskittles87@...> wrote:
From: starskittles87 <starskittles87@...> Subject: [thrombocytopenia] Hello! To: thrombocytopenia@yahoogroups.com Date: Monday, July 13, 2009, 5:34 PM
Hello everybody!
I just wanted to introduce myself. Some of you may know me from the MSN group that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22 and I had my first episode of ttp a year and a half ago. I came down with a cold, and as the week went on, I got worse and worse. Eventually, I started noticing massive bruises and purpura. I was getting jaundice also, and I went to the doctor. She took a blood sample, let me go home, then called to tell me to get to the emergency room. I was admitted to the hospital with my platelets at 13,000, which quickly dropped to 10,000. It took them 2 days to figure out what I had, doing a bone marrow biopsy and many other tests. Finally, they put the neck catheter in and went ahead with plasmapheresis. After a week, I was released. I relapsed 3 months later, went in at 100,000 platelets and dropped to 19,000 overnight. They put the catheter back in, a week and a half of treatment, then I was released. It's been a year and 3
months since my relapse and I'm doing well. I get tired sometimes if I don't rest or eat well. I get really bad migraines also, but otherwise, I'm doing great. I just moved to Pittsburgh, PA for graduate school! If anyone is in the area, let me know! I hope everyone is well!
Hello all! My name is Christy and I am 31. In 1996, I was hired to work at a Assisted Living Center and they did a CBC before I was hired. About a month...
My name is Pam. I am 24 years old, and married to my wonderful US Navy man. We are very blessed with 3 wonderful kidlets. I have had ITP since I was a kid. It...
Hi Pam! It's good to hear that you have done so well with ITP. Keep your faith in God. I haven't been diagnosed with ITP or TTP, but I have lots of the...
I worry about you - since you havent been diagnosed are they giving you treatment? I was led to believe that the disease is fatal without treatment. ... From:...
I'm not getting any treatment besides getting platelets when I need them and blood. When I go tomorrow to the doctor I will find out what's next. I'lll keep...
Welcome Pam (and the few other new comers to the group)! Sorry to hear what you're going through right now -- I'm sure your doctors will make the right...
Hi Pam! Welcoem to another Military wife! I am also a military spouse. I am married to a wonderful Army man. We are stationed at Ft. Lewis- where are you...
We are stationed at Ft. Lewis- where are you guys! We are actually at Ft Sill Oklahoma right now. lol He is on recruiting duty. ;0) I am so sorry about your...
Hi, I just joined. I would like to tell you a little about myself. I was diagnosed with TTP June 04, 2004. I had gone to the doctor's and was dignosed with a...
Hi there---Welcome to the group! You aren't Gill, are you? This sounds so similar to another story we heard where a woman had recently been married and then...
Hello Lisa, this is Gill's Mum - I thought I'd give you an update. Gill seems to be doing fine and has been off steroids for almost a week. She's hoping the...
Joy---Great news on Gill! It sounds like things are REALLY looking up! Joy <garyandjoy@...> wrote:Hello Lisa, this is Gill's Mum - I thought I'd give...
Wanted to say Hello! I am still reading messages from everyone and wanted to say Thank You and sorry for not writing sooner.I am new to the group and 3 1/2...
Dear Cindy--Good to hear from you! No doubt I'd rather live in Florida instead of Pennsylvania...tooooo cold here. But I was planted here, and can't seem to...
What a wonderful thing Cara is doing. Thank God for the people in this group. I really believe we will beat this disease yet...it messed with the wrong people!...
Deneen--I definitely agree with you, Cara is really doing a great thing for us! And I LOVE what you wrote! TTP messed with the wrong people--Amen to that...
Hello everybody! I just wanted to introduce myself. Some of you may know me from the MSN group that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22...
Hi Lauren! We are somewhat close in age (I'm 27) and I grew up near Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head...
... Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head up that way time to time. Anyways, I have a story very similar...
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