I just wanted to introduce myself. Some of you may know me from the MSN group
that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22 and I had my first
episode of ttp a year and a half ago. I came down with a cold, and as the week
went on, I got worse and worse. Eventually, I started noticing massive bruises
and purpura. I was getting jaundice also, and I went to the doctor. She took a
blood sample, let me go home, then called to tell me to get to the emergency
room. I was admitted to the hospital with my platelets at 13,000, which quickly
dropped to 10,000. It took them 2 days to figure out what I had, doing a bone
marrow biopsy and many other tests. Finally, they put the neck catheter in and
went ahead with plasmapheresis. After a week, I was released. I relapsed 3
months later, went in at 100,000 platelets and dropped to 19,000 overnight. They
put the catheter back in, a week and a half of treatment, then I was released.
It's been a year and 3 months since my relapse and I'm doing well. I get tired
sometimes if I don't rest or eat well. I get really bad migraines also, but
otherwise, I'm doing great. I just moved to Pittsburgh, PA for graduate school!
If anyone is in the area, let me know! I hope everyone is well!
Hello all! My name is Christy and I am 31. In 1996, I was hired to work at a Assisted Living Center and they did a CBC before I was hired. About a month...
My name is Pam. I am 24 years old, and married to my wonderful US Navy man. We are very blessed with 3 wonderful kidlets. I have had ITP since I was a kid. It...
Hi Pam! It's good to hear that you have done so well with ITP. Keep your faith in God. I haven't been diagnosed with ITP or TTP, but I have lots of the...
I worry about you - since you havent been diagnosed are they giving you treatment? I was led to believe that the disease is fatal without treatment. ... From:...
I'm not getting any treatment besides getting platelets when I need them and blood. When I go tomorrow to the doctor I will find out what's next. I'lll keep...
Welcome Pam (and the few other new comers to the group)! Sorry to hear what you're going through right now -- I'm sure your doctors will make the right...
Hi Pam! Welcoem to another Military wife! I am also a military spouse. I am married to a wonderful Army man. We are stationed at Ft. Lewis- where are you...
We are stationed at Ft. Lewis- where are you guys! We are actually at Ft Sill Oklahoma right now. lol He is on recruiting duty. ;0) I am so sorry about your...
Hi, I just joined. I would like to tell you a little about myself. I was diagnosed with TTP June 04, 2004. I had gone to the doctor's and was dignosed with a...
Hi there---Welcome to the group! You aren't Gill, are you? This sounds so similar to another story we heard where a woman had recently been married and then...
Hello Lisa, this is Gill's Mum - I thought I'd give you an update. Gill seems to be doing fine and has been off steroids for almost a week. She's hoping the...
Joy---Great news on Gill! It sounds like things are REALLY looking up! Joy <garyandjoy@...> wrote:Hello Lisa, this is Gill's Mum - I thought I'd give...
Wanted to say Hello! I am still reading messages from everyone and wanted to say Thank You and sorry for not writing sooner.I am new to the group and 3 1/2...
Dear Cindy--Good to hear from you! No doubt I'd rather live in Florida instead of Pennsylvania...tooooo cold here. But I was planted here, and can't seem to...
What a wonderful thing Cara is doing. Thank God for the people in this group. I really believe we will beat this disease yet...it messed with the wrong people!...
Deneen--I definitely agree with you, Cara is really doing a great thing for us! And I LOVE what you wrote! TTP messed with the wrong people--Amen to that...
Hello everybody! I just wanted to introduce myself. Some of you may know me from the MSN group that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22...
Hi Lauren! We are somewhat close in age (I'm 27) and I grew up near Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head...
... Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head up that way time to time. Anyways, I have a story very similar...