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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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Losing count No 5 was No 6 .... Jeannie reporting in   Message List  
Reply | Forward Message #20575 of 21768 |
My dearest family

How are you all??

I hope you are all well :-)

Well here I am home from the hospital, feeling very, very weak & tired but I
wanted to post a short update for you..


I didn't feel too clever on 25th June & had the rash - only had three bruises
this time -

went to get a FBC & plates where 45.. I was jaundiced too, I thought I had a tan
!!!

Admitted immediatly, line fitted & plasma (PE) commenced that night... the next
day plates where 25...


Plates have slowly risen but HB taking longer. I had PE until last monday we got
through 5 bags & then I started having rigors, chills & severe nausea - the line
was taken out immediately & I commenced on IV antibiotics..

Unfortunately I've got septicaemia - blood cultures came back positive that I
have 2 infections.

There where lots of cold / flu viruses on the ward so it was thought best to
return home with meds as it was safer than catching more bugs.. so for now its
20 antibiotics a day, which Ive been advised may lower the plates so fingers
crossed all will be ok..

I'm back next week for a check up... & will post an update xx


I was that shocked with the platelet count I thought it was No 5 but its relapse
No 6.. so lets hope I have a few years in remission, as you all know this has
been a long one for me - since October so lets hope its all sorted now..

Thank you all for your support (as always) your all so very dear to me, I'll
post next week

Until then my friends
high plates & lots of love

Jeannie xxxxxxxx


ps: time for some sleep xx






Sun Jul 12, 2009 5:03 pm

jeanetterb2002
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Message #20575 of 21768 |
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My dearest family How are you all?? I hope you are all well :-) Well here I am home from the hospital, feeling very, very weak & tired but I wanted to post a...
jeanetterb2002
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Jul 12, 2009
5:04 pm

Jeannie, Stay strong I know how the rigors can make you feel, I have had them many times in the past, it takes a lot out of you, but know you have some praying...
chelevelazquez@...
michelevelaz...
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Jul 12, 2009
6:06 pm

Hi Jeannie, Wow, you sure are going thru the wringer this time 'round. It's not enough to have a relapse, but to get 2 infections as well!! I'm glad they let...
namacinnis
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Jul 13, 2009
12:26 am

You are in my prayers. Sandy S. ________________________________ From: namacinnis <namacinnis@...> To: thrombocytopenia@yahoogroups.com Sent: Sunday, July...
Sandra Stanley
vetnurse480...
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Jul 13, 2009
2:52 pm

Thanks Sandy xxxx The Trail Is Beautiful, Be Still...... Dakota Indians Do something amazing ..... give blood Tel: 0845 7 711 711 ...
jeannie belfield
jeannierb2002
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Jul 15, 2009
5:17 pm

Hi there Nancy Just logged on :-) & seen ur msg xx yes its been really hard going & the infections are making everything 100% worse boohooo... feel extremly...
jeannie belfield
jeannierb2002
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Jul 15, 2009
5:03 pm

... but I wanted to post a short update for you.. ... bruises this time - ... had a tan !!! ... the next day plates where 25... ... monday we got through 5...
mjreynolds0756
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Jul 13, 2009
6:21 pm

Jeannie, My prayers are with you. please take good care of yourself and get lots of rest. Barb Delfino ________________________________ From: jeanetterb2002...
Barb Delfino
barbdelfino
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Jul 15, 2009
3:31 am

Thank you Barb xxxxx The Trail Is Beautiful, Be Still...... Dakota Indians Do something amazing ..... give blood Tel: 0845 7 711 711 ...
jeannie belfield
jeannierb2002
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Jul 15, 2009
5:19 pm
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