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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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Dear Susan from Anneli   Message List  
Reply | Forward Message #16893 of 21857 |
Dear Susan from Anneli

Dear friend
Thanks again for your kind words.You know what you are talking about and totally hold with you.It is like just now with my little big brother-he is tall and big-I am so worried about him and it is hard to take what he has to go trough.Just like I usually say
I don´t want hepC to my worst enemy or none.But it sounds that he is taking it pretty good putting her trust on me and letting my mom to take care of him and his medication and nutrition.He had moved to her flat because he has too much anxiety and depression to be alone.His dog can´t talk with him only cuddle and give warmth and hold company.
Well over to my days work today.I called my hemaunit and made acute bloodwork before they made the ultrasound and after that went over to hemaunit for answer.Everything is as usual-that is good news.I had this handsome very masculine italian doctor named Faustino-met him for second time.He is very proffesional and very good at his work even he is not so old-maybe around 35-40.Couldn´t hold my mouth when he came in and shouted well Bongiorno il dottore-I can a little bit italian-once when I was young I was together with an Italian guy and very much in love and was almost nearby to move to Italy but life would something else.I have met him again for 4 years ago here in Stockholm,he moved to Sweden in 80thies.Pitty that I didn´t find him those times.So he learned me a lot italian.He couldn´t speak english so I took the chance to learn speak italian.Memories.
Well the doc told me what they are looking for and it is as I knew- livercancer.They make the ultrasound twice a year to pick me up before it is too late and in early state.HepC and liverchirrosis ends up in livercancer or transplantation-these are the two things I have to live with beside my TTP and bleedingdisorder.He showed up the my liver and my spleen and told me what he saw-great guy.He made it first normal way and secondary they give me shot we the liquid directly to my veins to show up clearly to flush of blood.But he told me that my liver is damaged but not more than last time and the bloodflow was all normal and no cancer-thanks God this time.I am in safe hands as you hear.Only thing that happened was that because I have few thrombocytes I was bleeding like pig.It was exploading up with flush flush.There was blood everywhere.
Then I went to hemaunit and it is like to go home.The nurses and espcecially my favorite nurse Victoria were wellcoming me very caring and loving way.My thrombocytes have gone down 10 points from 84 to 73 but hemoglobin and everything else was okay so no TTP lurking around or maybe lurking but not showing himself today.My dear nurse told me that there was a difference from november when I was happy as a bird and energic to my today me-white and ghostlooking and sounding sad.But we see next week probably I have to go and make new bloodwork.My nurse told me to hold contact and call if somtething strange or different was happening.They like me know after five years that if the peak shows down the relaps is near lurking around.The thaught hit my head that time is passing and you longer  hold myself without relaps nearer the day will come because the values are not still being on right side more than maybe twice a year-I mean to be up to 140-150.
I am not asking for much but only maybe 40 points up to 110-120 then I am happy and feel safe.
At last.Some snow coming today and little white powder on the ground-that is our winter this year so far.Everybody waits for snow because then we get out from darkness to more lighted up days and feeling better mood than this depressive rainy cold and gray days.
Now I am very tired and you must be tired to listen to my long stories.So now I will jump in to bed and pull over my blankett over my head and hope that some of my fury family members comes and warms up my bed.lol...
SEnd you all lot of love and HPs from your friend Anneli     


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Wed Jan 2, 2008 11:19 pm

barbarann133
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Hip hip soon are your bladderstones only a memory in box.In old times you could get your stones with you home so you could stay there and think that those...
Anneli
barbarann133
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Oct 11, 2007
5:04 pm

Dear friend Thanks again for your kind words.You know what you are talking about and totally hold with you.It is like just now with my little big brother-he is...
Barb-Ann
barbarann133
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Jan 2, 2008
11:19 pm
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