What a wonderful thing Cara is doing. Thank God for
the people in this group. I really believe we will
beat this disease yet...it messed with the wrong
people!                           Deneen

--- Mary <earthboundblue@...> wrote:

> Dear Cindy--Good to hear from you!  No doubt I'd
> rather live in Florida instead of
> Pennsylvania...tooooo cold here.  But I was planted
> here, and can't seem to get my roots outta the
> ground.   We'd all LOVE to get together, to actually
> meet one another.  I mentioned something about Oprah
> or Montel, and bam, Cara has been in touch with the
> people at Montel's show...so we can only hope!  I'm
> so glad she's been DOING what I only dreamed of.
> (Thank you Cara, you're just wonderful, gf!  )  TTP
> is more or less an orphan disease, there aren't
> "enough" people with it for the drug companies to
> spend a fortune on seeking a cure, so we wait and
> hope.  If someone famous got it (one of the top
> actors, singers, somone like that) I bet there would
> be articles, shows, specials about this "rare and
> deadly disease"...but would it increase the
> research?  Doubt it unless an upper echelon
> politician got it!
>           Happy Spring to you, too!  I say this as
> they forecast the weather is going to be COLDER, but
> it's always jumping around this time of year here.
> When
>   I see the crocus and tulips begin to push
> up...I'll KNOW it's spring.  So glad to see you're
> back in touch.
>   Blessings!!!   Mary
>   
>   flr256 <flr256@...> wrote
>   Wanted to say Hello! I am still reading messages
> from everyone and
> wanted to say Thank You and sorry for not writing
> sooner.I am new to
> the group and 3 1/2 months out of the hospital. Just
> left florida to go
> to the midwest. Think it was a big mistake. Does
> anyone live in South
> Carolina ? Also have been reading messages from
> everyone and was
> curious if any members have decided to get together?
> I have been
> reading up on the medical side and it is less than
> it ever was.Curious
> why there hasn't been more of a research on this
> maybe because there
> are not enough who suffer from this disease? Has
> anyone had family
> members that have been ill with this? I have a
> cousin that had ITP at a
> very early age, about the time I was going through
> the first bout of
> TTP, almost ten years to the day that I relapsed.
> Doctors could give me
> no reason for the relapse. Happy Spring Everyone!
> Cindy/flr256
>
>
>
>
>
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