What a wonderful thing Cara is doing. Thank God for
the people in this group. I really believe we will
beat this disease yet...it messed with the wrong
people! Deneen

--- Mary <earthboundblue@...> wrote:

> Dear Cindy--Good to hear from you! No doubt I'd
> rather live in Florida instead of
> Pennsylvania...tooooo cold here. But I was planted
> here, and can't seem to get my roots outta the
> ground. We'd all LOVE to get together, to actually
> meet one another. I mentioned something about Oprah
> or Montel, and bam, Cara has been in touch with the
> people at Montel's show...so we can only hope! I'm
> so glad she's been DOING what I only dreamed of.
> (Thank you Cara, you're just wonderful, gf! ) TTP
> is more or less an orphan disease, there aren't
> "enough" people with it for the drug companies to
> spend a fortune on seeking a cure, so we wait and
> hope. If someone famous got it (one of the top
> actors, singers, somone like that) I bet there would
> be articles, shows, specials about this "rare and
> deadly disease"...but would it increase the
> research? Doubt it unless an upper echelon
> politician got it!
> Happy Spring to you, too! I say this as
> they forecast the weather is going to be COLDER, but
> it's always jumping around this time of year here.
> When
> I see the crocus and tulips begin to push
> up...I'll KNOW it's spring. So glad to see you're
> back in touch.
> Blessings!!! Mary
>
> flr256 <flr256@...> wrote
> Wanted to say Hello! I am still reading messages
> from everyone and
> wanted to say Thank You and sorry for not writing
> sooner.I am new to
> the group and 3 1/2 months out of the hospital. Just
> left florida to go
> to the midwest. Think it was a big mistake. Does
> anyone live in South
> Carolina ? Also have been reading messages from
> everyone and was
> curious if any members have decided to get together?
> I have been
> reading up on the medical side and it is less than
> it ever was.Curious
> why there hasn't been more of a research on this
> maybe because there
> are not enough who suffer from this disease? Has
> anyone had family
> members that have been ill with this? I have a
> cousin that had ITP at a
> very early age, about the time I was going through
> the first bout of
> TTP, almost ten years to the day that I relapsed.
> Doctors could give me
> no reason for the relapse. Happy Spring Everyone!
> Cindy/flr256
>
>
>
>
>
>
> SPONSORED LINKS
> Health and wellness Health wellness
> product Health and wellness program Diet
> fitness health nutrition wellness Business health
> wellness Womens health and wellness
>
> ---------------------------------
> YAHOO! GROUPS LINKS
>
>
> Visit your group "thrombocytopenia" on the web.
>
> To unsubscribe from this group, send an email
> to:
> thrombocytopenia-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to the
> Yahoo! Terms of Service.
>
>
> ---------------------------------
>
>
>
>
>
> ---------------------------------
> Yahoo! Mail
> Use Photomail to share photos without annoying
attachments.


__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com