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Dear Cindy--Good to hear from you! No doubt I'd rather live in Florida instead of Pennsylvania...tooooo cold here. But I was planted here, and can't seem to get my roots outta the ground. 
We'd all LOVE to get together, to actually meet one another. I mentioned something about Oprah or Montel, and bam, Cara has been in touch with the people at Montel's show...so we can only hope! I'm so glad she's been DOING what I only dreamed of. (Thank you Cara, you're just wonderful, gf! 
) TTP is more or less an orphan disease, there aren't "enough" people with it for the drug companies to spend a fortune on seeking a cure, so we wait and hope. If someone famous got it (one of the top actors, singers, somone like that) I bet there would be articles, shows, specials
about this "rare and deadly disease"...but would it increase the research? Doubt it unless an upper echelon politician got it!
We'd all LOVE to get together, to actually meet one another. I mentioned something about Oprah or Montel, and bam, Cara has been in touch with the people at Montel's show...so we can only hope! I'm so glad she's been DOING what I only dreamed of. (Thank you Cara, you're just wonderful, gf! ) TTP is more or less an orphan disease, there aren't "enough" people with it for the drug companies to spend a fortune on seeking a cure, so we wait and hope. If someone famous got it (one of the top actors, singers, somone like that) I bet there would be articles, shows, specials
about this "rare and deadly disease"...but would it increase the research? Doubt it unless an upper echelon politician got it! Happy Spring to you, too! I say this as they forecast the weather is going to be COLDER, but it's always jumping around this time of year here. When
I see the crocus and tulips begin to push up...I'll KNOW it's spring. So glad to see you're back in touch.
Blessings!!! Mary
flr256 <flr256@...> wrote
Wanted to say Hello! I am still reading messages from everyone and
wanted to say Thank You and sorry for not writing sooner.I am new to
the group and 3 1/2 months out of the hospital. Just left florida to go
to the midwest. Think it was a big mistake. Does anyone live in South
Carolina ? Also have been reading messages from everyone and was
curious if any members have decided to get together? I have been
reading up on the medical side and it is less than it ever was.Curious
why there hasn't been more of a research on this maybe because there
are not enough who suffer from this disease? Has anyone had family
members that have been ill with this? I have a cousin that had ITP at a
very early age, about the time I was going through the first bout of
TTP, almost ten years to the day that I relapsed. Doctors could give me
no reason for the relapse. Happy Spring Everyone! Cindy/flr256
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wanted to say Thank You and sorry for not writing sooner.I am new to
the group and 3 1/2 months out of the hospital. Just left florida to go
to the midwest. Think it was a big mistake. Does anyone live in South
Carolina ? Also have been reading messages from everyone and was
curious if any members have decided to get together? I have been
reading up on the medical side and it is less than it ever was.Curious
why there hasn't been more of a research on this maybe because there
are not enough who suffer from this disease? Has anyone had family
members that have been ill with this? I have a cousin that had ITP at a
very early age, about the time I was going through the first bout of
TTP, almost ten years to the day that I relapsed. Doctors could give me
no reason for the relapse. Happy Spring Everyone! Cindy/flr256
Yahoo! Mail
Use Photomail to share photos without annoying attachments.
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