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thrombocytopenia · I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this
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Reply | Forward Message #11236 of 21740 |
Hello!

Wanted to say Hello! I am still reading messages from everyone and
wanted to say Thank You and sorry for not writing sooner.I am new to
the group and 3 1/2 months out of the hospital. Just left florida to go
to the midwest. Think it was a big mistake. Does anyone live in South
Carolina ? Also have been reading messages from everyone and was
curious if any members have decided to get together? I have been
reading up on the medical side and it is less than it ever was.Curious
why there hasn't been more of a research on this maybe because there
are not enough who suffer from this disease? Has anyone had family
members that have been ill with this? I have a cousin that had ITP at a
very early age, about the time I was going through the first bout of
TTP, almost ten years to the day that I relapsed. Doctors could give me
no reason for the relapse. Happy Spring Everyone! Cindy/flr256






Thu Feb 23, 2006 7:06 pm

flr256
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Message #11236 of 21740 |
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Hello all! My name is Christy and I am 31. In 1996, I was hired to work at a Assisted Living Center and they did a CBC before I was hired. About a month...
Ask me, I might tell!
c_brooke_99
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Sep 10, 2003
6:37 am

My name is Pam. I am 24 years old, and married to my wonderful US Navy man. We are very blessed with 3 wonderful kidlets. I have had ITP since I was a kid. It...
Pam
usnavybyinje...
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Dec 9, 2003
10:15 pm

Hi Pam! It's good to hear that you have done so well with ITP. Keep your faith in God. I haven't been diagnosed with ITP or TTP, but I have lots of the...
De'Vonda Williams
ljadmw
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Dec 10, 2003
1:25 am

I worry about you - since you havent been diagnosed are they giving you treatment? I was led to believe that the disease is fatal without treatment. ... From:...
Joyce Encizo
encizo15
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Dec 10, 2003
2:20 am

I'm not getting any treatment besides getting platelets when I need them and blood. When I go tomorrow to the doctor I will find out what's next. I'lll keep...
De'Vonda Williams
ljadmw
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Dec 10, 2003
7:34 pm

Welcome Pam (and the few other new comers to the group)! Sorry to hear what you're going through right now -- I'm sure your doctors will make the right...
Ollie616@...
ollie6162002
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Dec 10, 2003
2:58 am

Hi Pam! Welcoem to another Military wife! I am also a military spouse. I am married to a wonderful Army man. We are stationed at Ft. Lewis- where are you...
nhisgrip1@...
momto3itpkids
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Dec 10, 2003
7:21 pm

We are stationed at Ft. Lewis- where are you guys! We are actually at Ft Sill Oklahoma right now. lol He is on recruiting duty. ;0) I am so sorry about your...
Pam & Rich
usnavybyinje...
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Dec 11, 2003
2:59 am

Hi, I just joined. I would like to tell you a little about myself. I was diagnosed with TTP June 04, 2004. I had gone to the doctor's and was dignosed with a...
mcarr2
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Sep 17, 2004
3:53 am

Hi there---Welcome to the group! You aren't Gill, are you? This sounds so similar to another story we heard where a woman had recently been married and then...
Lisa Schmitz
catsgreen777
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Sep 18, 2004
4:05 pm

Hello Lisa, this is Gill's Mum - I thought I'd give you an update. Gill seems to be doing fine and has been off steroids for almost a week. She's hoping the...
Joy
gertrude9992000
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Sep 18, 2004
5:24 pm

Joy---Great news on Gill! It sounds like things are REALLY looking up! Joy <garyandjoy@...> wrote:Hello Lisa, this is Gill's Mum - I thought I'd give...
Lisa Schmitz
catsgreen777
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Sep 19, 2004
10:45 pm

Wanted to say Hello! I am still reading messages from everyone and wanted to say Thank You and sorry for not writing sooner.I am new to the group and 3 1/2...
flr256
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Feb 23, 2006
7:07 pm

Dear Cindy--Good to hear from you! No doubt I'd rather live in Florida instead of Pennsylvania...tooooo cold here. But I was planted here, and can't seem to...
Mary
earthboundblue
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Feb 24, 2006
1:38 am

What a wonderful thing Cara is doing. Thank God for the people in this group. I really believe we will beat this disease yet...it messed with the wrong people!...
Deneen Drake
dneendrk
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Feb 24, 2006
7:00 am

Deneen--I definitely agree with you, Cara is really doing a great thing for us! And I LOVE what you wrote! TTP messed with the wrong people--Amen to that...
Mary
earthboundblue
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Feb 24, 2006
12:54 pm

Hello everybody! I just wanted to introduce myself. Some of you may know me from the MSN group that switched to Multiply. I'm Lauren, a ttp survivor. I'm 22...
starskittles87
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Jul 13, 2009
9:35 pm

Hi Lauren! We are somewhat close in age (I'm 27) and I grew up near Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head...
Elizabeth Snoke
esnoke23
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Jul 14, 2009
12:52 am

... Pittsburgh (Youngstown, OH which is about 45 min from the 'burgh) I live in FL now but head up that way time to time. Anyways, I have a story very similar...
mjreynolds0756
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Jul 14, 2009
12:42 pm
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