Ok, I'll put my TOS experience out there.

I have had TOS for over 2 years. It took a year and a half to finally be
diagnosed. No, I did not wake up one morining in chronic pain. I first had
problems with my wrist and arm hurting when I lifted things. Then it got worse
with swelling and blueness in the hand. After about a year, I started also
having pain in my chest at night. I had to take sleeping pills to sleep. I was
not in chronic pain all the time. I had a good day here and there, but I sure
knew when I over did it.

I was finally diagnosed by a Vascular Surgeon in Sept.04. I had surgery 2
weeks later to remove the first rib and scalene muscle.

I am 75% better than I was before the surgery. The bottom line is though, I
will always have TOS. Surgery doesn't take it away, but relieve the discomfort.
I still have to be careful at what I do. I also know what I can't do or I pay
for it in flare ups.

I've talked to alot of people with TOS. We all seem to share alot of the same
symptoms, but no two people are exactly alike.

Good luck to all!

Iwish214@... wrote:
I am a little thrown back from the email from rdamram3663@....

You say that if you don't have chronic pain then you most likely don't have
TOS. Are you saying that you woke up one day and were in chronic pain? From
what I have read the symptoms slowly come about and that most testing is normal
at first. Without any explanations as to what is causing your problems. Is this
not true? I have also read that if you catch it fast enough their are
preventative therapies that can help you to keep most functions.

Would love to know other TOS sufferers opinions.
Thanks,
Jill
Pgh, PA


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