UNfortunatly this condition takes alot of testing and money to do that. I you
contact a Dr., ask for a referal because you are suffering from chronic pain
thenyou must see a Dr. now otherwise please call the American Pain Foundation
and tell them your situation. I am in cinctant chronic pain and most people with
TOS are really suffering alot! If you are not almost always in pain them
personally speaking you most likeely dont have TOS. This condition severely
attacks the entire neurological makeup and the vascular system once it has done
its initial damage but you will hardly be able to work or mentally funtion as it
takes over you thinking and ability to do NORAMAL THINGs like drive, lift, walk,
move, sleep, dance, care for yourself, eat, read and believe me you dont want to
lean in this TOS direction unless you have decides your out of it!!!

dtwells_03 <dtwells_03@...> wrote: Hi,
I was just diagnosed with TOS. This is the first time I heard about
it. My dr. suggested physical therapy and said surgery for this
condition is so intense, I guess it isn't an option. When I
described my symptoms to my dr, he acted like I was talking out of
the side of my neck.
Anybody got any more answers?-








- In thoracicoutletsyndrome@yahoogroups.com, "Jill" <Iwish214@...>
wrote:
>
> Hello Everyone. I just found your group. I started going through
> posts, but I am in to much pain to find my answers. So, I am sorry
if
> I am asking questions that are already answered somewhere. I have
a
> long list of medical conditions. Klippel Fiel Syndrome (thoracic
> spine is crushed and fused, Sprengels deformity (something to do
with
> ribs and other deformities on my left side, scoliosis. I was also
> diagnosed with a DVT in my left jugular vein, signoid sinus and
> another vein over 9 years ago. They have put me on long term
Lovenox
> injections which cause me a lot of joint pain. There was never any
> discussion to go in to unblock it.
>
> The past years have been horrible. I have been having severe
> throbbing in my left arm and the last 3 fingers. I get a burning
> sharp pain under my arm pit and lower inner arm. I having
numbness,
> tingling in my arm and fingers. Chest pressure. The numbness is
> slowly moving into my jaw and now up my face on the left hand
side.
> My head falls asleep on the left side. Those are just a few
symptoms
> that I can think of. I can only sleep in about 2 positions.
>
> I have been to every doctor imaginable. Vascular, neurological,
> internal medicine, Auto immune disorders, Autonomic dysfunction's
> etc..........I have had MRI's, MRA's (vascular MRI), Nerve
conduction
> test and emg? Many Doppler's looking for more blood clots because
of
> the sever throbbing and burning sensation. The only thing that
shows
> on a Doppler is that when I am lying down, the blood flow in my
lower
> jugular vein takes a lot of time to fill when compressed. But when
> sitting up, the flow is faster. Every test (other than the left
> jugular vein being blocked) has been normal.
>
> At this point, my doctor is treating me as if I am a
hypochondriac.
> My big questions is, is it possible to have TOS even if all your
> tests are normal? Do some DR's not believe in it? Or is it likely
> that my Dr.'s know about it but do not think I have it?
>
> I am so sorry for typing so much. Any help would be greatly
> appreciated.
>
> Thank you!
> Jill from Pittsburgh, PA
>







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