Hi everyone,

I have been taking Oxycodone since my surgery on 9/15/05. It seems to help,
but I don't know how long the doctor will prescribe them. My surgery
consisted of a right rib resection. Now all of a sudden, I am experiencing
TOS symptoms on my left side. Needless to say, I am very frustrated.

Has anyone found temporary pain relief from whirlpools? I know that heating
pads help and I have been going to a massage therapists (who also suffers
from TOS). I thought that combining the 2 in the form of a Jacuzzi might be
a good idea. Anyone out there that has had any luck by using a Jacuzzi?

T.

-----Original Message-----
From: thoracicoutletsyndrome@yahoogroups.com
[mailto:thoracicoutletsyndrome@yahoogroups.com]On Behalf Of RDAMRAM
Sent: Saturday, November 12, 2005 11:35 PM
To: thoracicoutletsyndrome@yahoogroups.com
Subject: Re: [Thoracic Outlet Syndrome] Digest Number 360


TOS Survivors:
Recently I was going to conduct a poll or two...or three. I'm really curious
about other peoples experience with medication and TOS. I know in the past
we have gone over board with our discussions regarding whats not ok to
discuss here and I thought that discussing medication might not be ok since
some people may think it gives people the idea who dont take meds we are a
bunch of druggies.
Well I have a better idea. You can personally email me your answer if you
took medication or used to. My first question is to people who have had TOS
surgery, all types, especially Rib Resection, only from a vascular surgeon.
Question is,"After the surgery for TOS what effects did the surgery have on
your medication use?"
For example: Did you lessen your meds? by how much? What meds? If your
answer is "No, my medication is the same after surgery," then please explain
to me why and what went wrong or what did the Dr. tell you was normal?
I will be having Rib Resection in a year or so and I have TOS on both sides.
I am Permanently disabled from it. I take only one Pain Med, Norco. I used
to take 5 meds! By the way it is the best newest drug I've have used for TOS
after being diagnosed by a state board medical evaluator 4 yrs. ago. My
neurologist who is new started me on it a few months ago and even though it
is an Opioid I have to believe that it was made for me and I do not misuse
it since it is more effective.
Once again I am not implying here at all that people with TOS should take
meds and that I believe that people with TOS should also be aware of
natural remedies, physical therapy, massage, exercises, yoga and all the
other non-addicting approaches before using pain killer to make you feel
better.
RMM

thoracicoutletsyndrome@yahoogroups.com wrote:

There is 1 message in this issue.

Topics in this digest:

1. Re: doctor
From: nidia.mc@...


________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Fri, 11 Nov 2005 22:37:01 +0000
From: nidia.mc@...
Subject: Re: doctor

Another suggestion would be to see a physiatrist or an orthopedic Dr. who
specializes with work injuries and such. They would be more accustomed to
dealing with this type of injury/symptoms, etc. This would possibly be in
conjunction with a pain specialist who deals with the same types of cases.
I, too am on neurontin. started on lower doses, ie. 500 mg/day. It worked
really great until the insurance co. forced me into voc. rehab. I certainly
wasn't ready for it and it was too much computer time for me, although not
much (2-3 hours a day). My pain got extremely worse and I went up
drastically on neurontin. We started out slow, adding in 100 mg doses and
now I take 2700mg/day. I feel that had a lot of things gone different, maybe
I could have avoided surgery but now the only way I will ever be off pain
meds is to have it. I also take morphine, baclofen, lidoderm patches,
imitrex, celebrex, and cymbalta. In addition to the TOS I have problems with
my neck and my upper and lower back. I am looking at botox injections for my
neck having already done 2 epidurals with great success. My back is another
story...it's chronic muscle pain and spasms and I've just got to deal with
it. Trigger point injections help a lot and I'm grateful for those.
Getting in the hands of the right Dr is key. It makes a huge difference to
feel like you have someone on your side and willing to fight for you.
Nidia
-------------- Original message --------------

> Liz,
>
> Let me suggest a great website for support for TOS.
> It is called Brain Talk Communities. Just scroll down
> until you find TOS on the list and go into the forum.
> Post your questions and the area you live in and you
> will get some response to help you.
>
> They started me on Neurotin also and it worked
> alittle. I finally, 8 weeks ago had surgery. It helped
> alot, but still have a few problems that I know I will
> just have to learn to deal with.
>
> It's not fun Liz. Just take one day at a time. I would
> suggest getting to either a Vascular Surgeon or Neruro
> Surgeon to discuss your proper medications. Family
> doctors haven't a clue what your going thru and really
> don't know how to treat TOS.
>
> Hope to see ya in Brain Talk Communites!
>
> Peggy Schatzberg
>
>
> --- liz31aub wrote:
>
> > I posted a letter the other day and didnt get any
> > responses. I have
> > alot of pain with my tos. I was wondering what other
> > people doctors
> > were giving them for tos. I have taken neurotin for
> > a pretty good while
> > and it doesnt help at all so now I am back to taking
> > nothing. I am 32
> > years old and my family doctor will not give me
> > anything for pain
> > because he said I was to young and didnt want me to
> > get addicted to
> > pain medicine. I live in Kentucky and was wondering
> > if there were any
> > doctors around here that deals with tos.
> > Thanks, Liz
> >
> >
> >
> >
>
>
>
>
> __________________________________
> Start your day with Yahoo! - Make it your home page!
> http://www.yahoo.com/r/hs
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>

[Non-text portions of this message have been removed]



________________________________________________________________________
________________________________________________________________________



------------------------------------------------------------------------
Yahoo! Groups Links




------------------------------------------------------------------------






[Non-text portions of this message have been removed]



SPONSORED LINKS Thoracic outlet syndrome Repetitive strain injury


----------------------------------------------------------------------------
----
YAHOO! GROUPS LINKS

a.. Visit your group "thoracicoutletsyndrome" on the web.

b.. To unsubscribe from this group, send an email to:
thoracicoutletsyndrome-unsubscribe@yahoogroups.com

c.. Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


----------------------------------------------------------------------------
----



[Non-text portions of this message have been removed]