Another suggestion would be to see a physiatrist or an orthopedic Dr. who
specializes with work injuries and such. They would be more accustomed to
dealing with this type of injury/symptoms, etc. This would possibly be in
conjunction with a pain specialist who deals with the same types of cases.
I, too am on neurontin. started on lower doses, ie. 500 mg/day. It worked really
great until the insurance co. forced me into voc. rehab. I certainly wasn't
ready for it and it was too much computer time for me, although not much (2-3
hours a day). My pain got extremely worse and I went up drastically on
neurontin. We started out slow, adding in 100 mg doses and now I take
2700mg/day. I feel that had a lot of things gone different, maybe I could have
avoided surgery but now the only way I will ever be off pain meds is to have it.
I also take morphine, baclofen, lidoderm patches, imitrex, celebrex, and
cymbalta. In addition to the TOS I have problems with my neck and my upper and
lower back. I am looking at botox injections for my neck having already done 2
epidurals with great success. My back is another story...it's chronic muscle
pain and spasms and I've just got to deal with it. Trigger point injections help
a lot and I'm grateful for those.
Getting in the hands of the right Dr is key. It makes a huge difference to feel
like you have someone on your side and willing to fight for you.
Nidia
-------------- Original message --------------

> Liz,
>
> Let me suggest a great website for support for TOS.
> It is called Brain Talk Communities. Just scroll down
> until you find TOS on the list and go into the forum.
> Post your questions and the area you live in and you
> will get some response to help you.
>
> They started me on Neurotin also and it worked
> alittle. I finally, 8 weeks ago had surgery. It helped
> alot, but still have a few problems that I know I will
> just have to learn to deal with.
>
> It's not fun Liz. Just take one day at a time. I would
> suggest getting to either a Vascular Surgeon or Neruro
> Surgeon to discuss your proper medications. Family
> doctors haven't a clue what your going thru and really
> don't know how to treat TOS.
>
> Hope to see ya in Brain Talk Communites!
>
> Peggy Schatzberg
>
>
> --- liz31aub wrote:
>
> > I posted a letter the other day and didnt get any
> > responses. I have
> > alot of pain with my tos. I was wondering what other
> > people doctors
> > were giving them for tos. I have taken neurotin for
> > a pretty good while
> > and it doesnt help at all so now I am back to taking
> > nothing. I am 32
> > years old and my family doctor will not give me
> > anything for pain
> > because he said I was to young and didnt want me to
> > get addicted to
> > pain medicine. I live in Kentucky and was wondering
> > if there were any
> > doctors around here that deals with tos.
> > Thanks, Liz
> >
> >
> >
> >
>
>
>
>
> __________________________________
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> http://www.yahoo.com/r/hs
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>

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