Liz,
Let me suggest a great website for support for TOS.
It is called Brain Talk Communities. Just scroll down
until you find TOS on the list and go into the forum.
Post your questions and the area you live in and you
will get some response to help you.
They started me on Neurotin also and it worked
alittle. I finally, 8 weeks ago had surgery. It helped
alot, but still have a few problems that I know I will
just have to learn to deal with.
It's not fun Liz. Just take one day at a time. I would
suggest getting to either a Vascular Surgeon or Neruro
Surgeon to discuss your proper medications. Family
doctors haven't a clue what your going thru and really
don't know how to treat TOS.
Hope to see ya in Brain Talk Communites!
Peggy Schatzberg
--- liz31aub <liz31aub@...> wrote:
> I posted a letter the other day and didnt get any
> responses. I have
> alot of pain with my tos. I was wondering what other
> people doctors
> were giving them for tos. I have taken neurotin for
> a pretty good while
> and it doesnt help at all so now I am back to taking
> nothing. I am 32
> years old and my family doctor will not give me
> anything for pain
> because he said I was to young and didnt want me to
> get addicted to
> pain medicine. I live in Kentucky and was wondering
> if there were any
> doctors around here that deals with tos.
> Thanks, Liz
>
>
>
>
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