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Re: [Thoracic Outlet Syndrome] hello newbie here!   Message List  
Reply | Forward Message #831 of 1333 |
Re: [Thoracic Outlet Syndrome] hello newbie here!

Stephanie,
Yes Steph, I have good days and then days when I can hardly work at the
computer because my hands are so "thick" they just don't move with me. That
is when I am so thankful for Spell check as it looks like a 3 year old wrote
the letter.LOL
Why is she not going to finish the testing? It sounds like you could
certainly use some answers, not just trial and error! Sorry, after all the
surgeries I have had on my back I am a bit cynical sounding I guess..but
darn it, a person likes to know what is going on with their bodies..TOS
itself can cause dizziness!
On the good days I tend to try and change the world and I guess that is
where I get myself in trouble, moderation has never been my strong point..I
am like a dog with a bone when I used to work, could not stop until my body
made me stop, not too bright...
It is good to have someone to talk to...Tonya sounds like she is in the same
boat...
Take care and keep me posted.
Kathy
----- Original Message -----
From: "stephanie wade" <glittersteph@...>
To: <thoracicoutletsyndrome@yahoogroups.com>
Sent: Thursday, September 01, 2005 12:03 PM
Subject: Re: [Thoracic Outlet Syndrome] hello newbie here!


> hi Kathy,
> All the stuff you were talking about in the email I didn't know. I went to
> my dr yesterday. She wants me to stop all of my meds, I have low blood
> pressure, not low enough for meds but low enough to get dizzy all the
time.
> My dizziness has been worse latly. So she thinks I should stop the meds to
> see if that helps. She isn't going to do anymore testing for the tos, she
> wants to see how the PT is helping on its own.
> Do you have good days and bad days too? It seems I have good days then I'm
> paying for them the next 3 days afterwards! LOL
> Well, I better get going. It is good to have you to talk with. Thank you.
> Stephanie
>
>
> >From: "Kathy Pettijohn" <magnolia@...>
> >Reply-To: thoracicoutletsyndrome@yahoogroups.com
> >To: <thoracicoutletsyndrome@yahoogroups.com>
> >Subject: Re: [Thoracic Outlet Syndrome] hello newbie here!
> >Date: Wed, 31 Aug 2005 21:15:33 -0500
> >
> >
> >
> >
> >
> >Steph,
> >
> >From what I have been told, your best bet is within the Neurologist area,
> >
> >Vascular preferably..I don't know where you live but that seems to be
what
> >I
> >
> >have heard from reading everything I can find on the Internet..It is
> >
> >something that is often confused with many other things but that test I
> >
> >mention SSEP and another one that is like a tiny ultra sound machine with
a
> >
> >wand they put over the top of your arteries with your arms in different
> >
> >positions. If I am telling you things you already know sorry, I am just
> >
> >wracking my brain.
> >
> >Let me know how you are doing, I too was a single mother with two
children,
> >
> >they are now all grown up, but I have two grandchildren. There were times
> >
> >raising the kids I never thought I would make it but, we did...
> >
> >Take care!
> >
> >Kath
> >
> >----- Original Message -----
> >
> >From: "stephanie wade" <glittersteph@...>
> >
> >To: <thoracicoutletsyndrome@yahoogroups.com>
> >
> >Sent: Wednesday, August 31, 2005 12:02 PM
> >
> >Subject: Re: [Thoracic Outlet Syndrome] hello newbie here!
> >
> >
> >
> >
> >
> > > Thank you for writting. I'm sure it was hard for you. I will be
praying
> >
> >for
> >
> > > on your surgery date! Good luck.
> >
> > > I have a Dr. appt today, I'm going to print out a few things to take
to
> >
> >her.
> >
> > > Shes a good dr. but no experience with TOS. I wonder how I find one
who
> >
> >is?
> >
> > > Anyway, take care.
> >
> > > ~Stephanie
> >
> > >
> >
> > >
> >
> > > >From: "Kathy Pettijohn" <magnolia@...>
> >
> > > >Reply-To: thoracicoutletsyndrome@yahoogroups.com
> >
> > > >To: <thoracicoutletsyndrome@yahoogroups.com>
> >
> > > >Subject: Re: [Thoracic Outlet Syndrome] hello newbie here!
> >
> > > >Date: Wed, 31 Aug 2005 10:57:32 -0500
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >Stephanie,
> >
> > > >
> >
> > > >As I am disabled due to severe back disorder and two surgeries one of
> >
> >which
> >
> > > >left me with a mess in my lumbar spine, I was diagnosed immediately
by
> >my
> >
> > > >Neurologists. I did not complain I just did not know what was up and
> >they
> >
> > > >caught it right away. They did a number of tests but the most
> >conclusive
> >
> > > >was the SSEP, apparently this checks the nerve conduction to the
brain.
> >
> > > >Well I failed miserably, PT is not an option due to all of the nerve
> >
> > > >damage. Writing this is like writing with two baseball gloves on.
After
> >
> > > >consulting two other Neurologists and my reg. Dr. it was decided that
> >
> >they
> >
> > > >would do surgery right away, Sept.16.
> >
> > > >
> >
> > > >I hope this helps and I will sure be thinking of you.
> >
> > > >
> >
> > > >God Bless,
> >
> > > >
> >
> > > >Kathy
> >
> > > >
> >
> > > > ----- Original Message -----
> >
> > > >
> >
> > > > From: stephanie
> >
> > > >
> >
> > > > To: thoracicoutletsyndrome@yahoogroups.com
> >
> > > >
> >
> > > > Sent: Monday, August 29, 2005 1:14 AM
> >
> > > >
> >
> > > > Subject: [Thoracic Outlet Syndrome] hello newbie here!
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > > I just wanted to say hi and introduce myself. My name is stephanie
and
> >
> > > >
> >
> > > > I live in Bellingham WA. I started having problems about 6-7 months
> >
> > > >
> >
> > > > ago. I didn't have an injury, My arm just started going numb. I have
> >
> > > >
> >
> > > > always had bad neck and shoulder pain. Just ignored it though.
> >
> > > >
> >
> > > > I went to my dr. she did a few in office tests and is "pretty sure
> >it's
> >
> > > >
> >
> > > > TOS" she has started me x-rays, nothing there. Then I went for an
MRI,
> >
> > > >
> >
> > > > again nothing there. So, now she says well if you are still having
> >
> > > >
> >
> > > > symptoms make another appointment. I am in PT once a week. It helps,
> >
> > > >
> >
> > > > but darn do I hurt afterwards. I'm kind of at a loss as to what to
do
> >
> > > >
> >
> > > > now?! I'm starting a new job soon, I'm a single mom, I have 2 little
> >
> > > >
> >
> > > > boys under the age of 3. I really need some advice on manageing the
> >
> > > >
> >
> > > > pain and numbness. I have pain meds and muscle relaxers, but I won't
> >
> > > >
> >
> > > > take them during the day. I can't function enough to take care of
the
> >
> > > >
> >
> > > > kids. I've heard yoga is good, can anyone recommend a video?
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > > >
> >
> > >
> >
> >
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Thu Sep 1, 2005 5:59 pm

magnolia813
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Forward
Message #831 of 1333 |
Expand Messages Author Sort by Date

Stephanie, As I am disabled due to severe back disorder and two surgeries one of which left me with a mess in my lumbar spine, I was diagnosed immediately by...
Kathy Pettijohn
magnolia813
Offline Send Email
Aug 31, 2005
3:58 pm

Hi Kathy, Thank you for writting. I'm sure it was hard for you. I will be praying for on your surgery date! Good luck. I have a Dr. appt today, I'm going to...
stephanie wade
sdwade76
Offline Send Email
Aug 31, 2005
5:03 pm

Steph, From what I have been told, your best bet is within the Neurologist area, Vascular preferably..I don't know where you live but that seems to be what I ...
Kathy Pettijohn
magnolia813
Offline Send Email
Sep 1, 2005
2:16 am

hi Kathy, All the stuff you were talking about in the email I didn't know. I went to my dr yesterday. She wants me to stop all of my meds, I have low blood ...
stephanie wade
sdwade76
Offline Send Email
Sep 1, 2005
5:04 pm

Hi there , I must say I have my good days and my bad days . It is all dependant on what I have done at work and if I respect the symptoms when they play up...
Osrin Jeff
jeffosrin
Offline Send Email
Sep 1, 2005
5:40 pm

Stephanie, Yes Steph, I have good days and then days when I can hardly work at the computer because my hands are so "thick" they just don't move with me. That ...
Kathy Pettijohn
magnolia813
Offline Send Email
Sep 1, 2005
5:59 pm

I would switch Dr.s and ask for a 2nd opinion, 3rd if necessary...get someone who will be in your corner. Nidia ... [Non-text portions of this message have...
nidia.mc@...
nidia74
Offline Send Email
Sep 6, 2005
8:59 pm

Thanks, I think I will have to do that. Not sure how to find a dr. though. Maybe I should ask around. I wish there was a local support group. ~Stephanie ... ...
stephanie wade
sdwade76
Offline Send Email
Sep 7, 2005
1:42 pm

a single mom, with two boys under age three, now that is a challenge, even without tos. i am a stay at home mom of three boys 5 and under. the youngest is 6...
Kathlyn W Carico
zeedeewah
Offline Send Email
Sep 7, 2005
2:06 pm

Thanks for all of the info! That was a lot of typing! LOL hope your going to pay for it later!!! I will check out the links you sent later today. I hope to...
stephanie wade
sdwade76
Offline Send Email
Sep 7, 2005
2:22 pm

I think I've had enough testing. All test lead to TOS. I have tried Feldenkrais therapy, but it seems to me that this is a proactive/preventative type...
tcyosh121@...
tcyosh
Offline Send Email
Sep 7, 2005
3:40 pm

Ok, so if I get more testing, and the only thing causing my TOS is my muscles I wonder what can be done to relieve it? What kind of surgery are you having? ...
stephanie wade
sdwade76
Offline Send Email
Sep 7, 2005
3:58 pm

TOCS IS CAUSED MY THE NERVES IN THORACIC AREA BEING COMPRESSED. IT CAN BE CAUSED BY REPETIVIE COMPUTER TYPING FOR YEARS, BY AN EXTRA RIB AT BIRTH, EVEN BY A...
Cathy
cathyannee
Offline Send Email
Sep 7, 2005
6:43 pm

IF YOU HAVE BEEN DIAGNOSED WITH TOCS YOU SHOULD NOT BE DOING ANY REPETITIVE TYPING WHATSOEVER. THAT WILL AGGRAVATE THE CONDITION AND WORSEN IT. MOST PEOPLE...
Cathy
cathyannee
Offline Send Email
Sep 7, 2005
6:46 pm

I am having the scalenectomy and/or rib resection (1st rib removal). This is suppose to relieve the compression on my nerves. Have you seen a vascular...
tcyosh121@...
tcyosh
Offline Send Email
Sep 7, 2005
4:08 pm

TOCS CAN BE TREATED SUCCESSFULLY WITH THE RIGHT KIND OF PT. SOME PT IS USELESS. THE PT THAT WORKED FOR ME WAS DONE BY A PT TRAINED UNDER THE AAOM. AMERICAN...
Cathy
cathyannee
Offline Send Email
Sep 7, 2005
6:51 pm

Tonya... Wow. I would be very cautious at expecting that quick of a recovery. My surgeon told me that you would actually feel worse at about 6 weeks because...
nidia.mc@...
nidia74
Offline Send Email
Sep 7, 2005
6:06 pm

FOR THE THIRD TIME I AM ADVISING YOU PEOPLE TO SEEK OUT A PT IN YOUR AREA TRAINED UNDER THE AAOM AMERICAN ACADEMY FOR ORTHOPEDIC MEDICINE. THIS PT WILL REDUCE...
Cathy
cathyannee
Offline Send Email
Sep 7, 2005
6:55 pm

Thanks for the information, Nidia! It is probably wishful thinking that I will be skiing this winter, but I'm just trying to stay on the positive side of...
tcyosh121@...
tcyosh
Offline Send Email
Sep 7, 2005
8:27 pm
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