hi Kathy,
All the stuff you were talking about in the email I didn't know. I went to
my dr yesterday. She wants me to stop all of my meds, I have low blood
pressure, not low enough for meds but low enough to get dizzy all the time.
My dizziness has been worse latly. So she thinks I should stop the meds to
see if that helps. She isn't going to do anymore testing for the tos, she
wants to see how the PT is helping on its own.
Do you have good days and bad days too? It seems I have good days then I'm
paying for them the next 3 days afterwards! LOL
Well, I better get going. It is good to have you to talk with. Thank you.
Stephanie


>From: "Kathy Pettijohn" <magnolia@...>
>Reply-To: thoracicoutletsyndrome@yahoogroups.com
>To: <thoracicoutletsyndrome@yahoogroups.com>
>Subject: Re: [Thoracic Outlet Syndrome] hello newbie here!
>Date: Wed, 31 Aug 2005 21:15:33 -0500
>
>
>
>
>
>Steph,
>
>From what I have been told, your best bet is within the Neurologist area,
>
>Vascular preferably..I don't know where you live but that seems to be what
>I
>
>have heard from reading everything I can find on the Internet..It is
>
>something that is often confused with many other things but that test I
>
>mention SSEP and another one that is like a tiny ultra sound machine with a
>
>wand they put over the top of your arteries with your arms in different
>
>positions. If I am telling you things you already know sorry, I am just
>
>wracking my brain.
>
>Let me know how you are doing, I too was a single mother with two children,
>
>they are now all grown up, but I have two grandchildren. There were times
>
>raising the kids I never thought I would make it but, we did...
>
>Take care!
>
>Kath
>
>----- Original Message -----
>
>From: "stephanie wade" <glittersteph@...>
>
>To: <thoracicoutletsyndrome@yahoogroups.com>
>
>Sent: Wednesday, August 31, 2005 12:02 PM
>
>Subject: Re: [Thoracic Outlet Syndrome] hello newbie here!
>
>
>
>
>
> > Thank you for writting. I'm sure it was hard for you. I will be praying
>
>for
>
> > on your surgery date! Good luck.
>
> > I have a Dr. appt today, I'm going to print out a few things to take to
>
>her.
>
> > Shes a good dr. but no experience with TOS. I wonder how I find one who
>
>is?
>
> > Anyway, take care.
>
> > ~Stephanie
>
> >
>
> >
>
> > >From: "Kathy Pettijohn" <magnolia@...>
>
> > >Reply-To: thoracicoutletsyndrome@yahoogroups.com
>
> > >To: <thoracicoutletsyndrome@yahoogroups.com>
>
> > >Subject: Re: [Thoracic Outlet Syndrome] hello newbie here!
>
> > >Date: Wed, 31 Aug 2005 10:57:32 -0500
>
> > >
>
> > >
>
> > >
>
> > >
>
> > >
>
> > >Stephanie,
>
> > >
>
> > >As I am disabled due to severe back disorder and two surgeries one of
>
>which
>
> > >left me with a mess in my lumbar spine, I was diagnosed immediately by
>my
>
> > >Neurologists. I did not complain I just did not know what was up and
>they
>
> > >caught it right away. They did a number of tests but the most
>conclusive
>
> > >was the SSEP, apparently this checks the nerve conduction to the brain.
>
> > >Well I failed miserably, PT is not an option due to all of the nerve
>
> > >damage. Writing this is like writing with two baseball gloves on. After
>
> > >consulting two other Neurologists and my reg. Dr. it was decided that
>
>they
>
> > >would do surgery right away, Sept.16.
>
> > >
>
> > >I hope this helps and I will sure be thinking of you.
>
> > >
>
> > >God Bless,
>
> > >
>
> > >Kathy
>
> > >
>
> > > ----- Original Message -----
>
> > >
>
> > > From: stephanie
>
> > >
>
> > > To: thoracicoutletsyndrome@yahoogroups.com
>
> > >
>
> > > Sent: Monday, August 29, 2005 1:14 AM
>
> > >
>
> > > Subject: [Thoracic Outlet Syndrome] hello newbie here!
>
> > >
>
> > >
>
> > >
>
> > >
>
> > >
>
> > > I just wanted to say hi and introduce myself. My name is stephanie and
>
> > >
>
> > > I live in Bellingham WA. I started having problems about 6-7 months
>
> > >
>
> > > ago. I didn't have an injury, My arm just started going numb. I have
>
> > >
>
> > > always had bad neck and shoulder pain. Just ignored it though.
>
> > >
>
> > > I went to my dr. she did a few in office tests and is "pretty sure
>it's
>
> > >
>
> > > TOS" she has started me x-rays, nothing there. Then I went for an MRI,
>
> > >
>
> > > again nothing there. So, now she says well if you are still having
>
> > >
>
> > > symptoms make another appointment. I am in PT once a week. It helps,
>
> > >
>
> > > but darn do I hurt afterwards. I'm kind of at a loss as to what to do
>
> > >
>
> > > now?! I'm starting a new job soon, I'm a single mom, I have 2 little
>
> > >
>
> > > boys under the age of 3. I really need some advice on manageing the
>
> > >
>
> > > pain and numbness. I have pain meds and muscle relaxers, but I won't
>
> > >
>
> > > take them during the day. I can't function enough to take care of the
>
> > >
>
> > > kids. I've heard yoga is good, can anyone recommend a video?
>
> > >
>
> > >
>
> > >
>
> > >
>
> > >
>
> > >
>
> > >
>
> > >
>
> > >
>
> >
>
> >---------------------------------------------------------------------------
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