Hi Lisa, I too have been having a problem TOCS for around a year now. You sound
like you have a lot of the same symptoms I have, i.e.: fatigue in both arms,
numbness and tingling. I hope you can find a doctor in your area what believes
in TOCS I know my family doctor is having a hard time with my diagnosis. I was
diagnosed by a vascular surgeon. It is hard because unless you have an extra
cervical rib it seems like nothing else will show anything. I have had both
x-rays and CT scans and nothing showed. It gets pretty frustrating but hang in
there. I hope being a member of this group will help.
All the best, Liz Young.
----- Original Message -----
From: Lisa
To: thoracicoutletsyndrome@yahoogroups.com
Sent: Friday, August 29, 2003 4:57 AM
Subject: Re: [Thoracic Outlet Syndrome] New member


Thank you Cathy. I'm in Michigan, and I've looked on the web. The only thing I
could find regarding doctors familiar with this are in Indiana (I believe).

I just want SOMETHING to show up SOMEWHERE so I know what's wrong and don't
have to live with this anymore. I do have pain with the numbness. Does anything
show on emg's?

Thank you again,
Lisa
----- Original Message -----
From: Cathy
To: thoracicoutletsyndrome@yahoogroups.com
Sent: Thursday, August 28, 2003 6:51 PM
Subject: Re: [Thoracic Outlet Syndrome] New member


I do not know what state you live in but you have TOCS symptoms
absolutely. Maybe you can search on the internet and find a
specialist in your area; you need one. I live in Ky if you are
near here I would recommend Harold Kleinert, M.D> and Atasoy,
M>D.
be sure to email back and let me know what state you are in;
maybe someone in the group can give you the name of a tocs
specailist.

--- Lisa <edmmachine@...> wrote:
> I've been having problems for close to a year now, and am
> currently
> seeing a neurologist. Originally I woke up with shooting pains
> in my
> right arm, then it went away. An emg showed "ulnar nerve
> entrapment at
> the thoracic outlet" but the neurosurgeon said "I don't
> believe in
> throacic outlet, have a nice life" and sent me on my way. A
> few months
> later, my doctor put me on darvocet by day, and vicodin by
> night,
> because i was in such pain. This time in BOTH arms.
>
> I am seeing a neuro, who sent me for an mri of my brain and
> cervical
> spine...both came out fine, though she made one comment on the
> spine
> xray about "something there, but nothing to write hme about" -
> she
> just did another emg, and found "something" in my left arm,
> and is now
> sending me for a chest xray.
>
> My symptoms are extreme fatigue in both arms, and the forearm
> turns
> blotchy when it gets sore. My arms tingle, I lose my grip, and
> putting
> my arms over my head hurts to high heaven cuz they fall asleep
> so
> quickly. I've had a pain behind my right shoulder blade for a
> long
> time, but she doesn't think that's related. The top of my
> right foot
> is also numb, but she hasn't looked at that yet cuz she feels
> it's
> probably unrelated and wants to figure out the big problem
> first.
>
> I'm writing here cuz on the rx for the chest xray it says "dx,
> thoracic outlet syndrome" - do my symptoms sound similar to
> any of yours?
>
>


=====
Cathy

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