To Liz: What I have figured out is that when you send email to
people in the club I get copies of it. I guess that is because
I am the Moderator and I have it set so that I get messages from
the club in my email. Sometimes I mess up and read them when
they are not directed to me; sorry; or if I think I can assist.
Be sure to tell your M.D. about this. When I first had TOCs I
slept in my hand/wrist splints. I don't know if you have any of
these or not.
It may be that you are sleeping on this arm/hand or turning over
on it; I don't know. My pain was so bad that before I went to
bed they told me to sit on the couch and eleveate my arms up on
pillows until they became numb. That way I could sleep a little
longer before the pain woke me up. I have problems when I wake
up with the neck the arms the hands. The proper way to sleep
when you have tocs is on your back with you shoulders somewhat
raised up. This takes the pressure off the nerves. I even walk
around like that somtimes; it helps cut the pain back a tiny
bit. TOCs had a lot of symptoms and they may change and come
and go. My hands were often red and swollen at first I have not
had that in years. The symptoms somtimes change day to day
also. After awhile you get to know them and sometimes the old
ones grow dimmer or other ones pop up. I hope someone can help
you out on this. be sure to ask the m.d. what he suggests you do
to help this... IF you have splints try sleeping in them I don't
know if it will help
or maybe elevating it on a pillow. Try anything that works for
you...I know living with this is real hell. I am not able to do
my student teaching because of my disabiilties which means I
won't get my degree for what is supposed to be an occupation I
can go part time. I have tried for two weeks but there is no
way this body can drive 45 minutes work 4 hours a day drive 45
minutes and make bulletin boards and set up dramatic play
centers and do all that is required to meet the grade for this
last class...make 20 art activities, make 10 math, take in 25
storybooks...so ...
oh well... I have been at myslef all week but the bottom line is
it is not my fault and beating myself up over this 24 hours a
day does not help.. Good luck.
--- Liz Young <theyoungones@...> wrote:
> Hi Cathy, I hope all is well for you. I think I must have done
> something wrong yesterday I thought I had posted a message for
> Shawna. I looked on the site today, I don't see it, maybe I
> e-mailed her? I will hopefully find out my mistake soon.
> The reason I wanted to send a message to Shawna, is I wanted
> to see what all her symptoms where with Venous tos.
> You see I have been waking up during the night with a sore
> right hand. By the time I get up each morning it is really
> swollen and discoloured. In fact the swelling does not go away
> for any length of time, although some times it's worse then
> others, it just depends on what I have been doing. I am
> wondering if this is my tos just getting worse. I was hoping
> someone can explain why I keep getting different symptoms and
> are some of the symptoms I describe similar to Shawna's, and
> is the swelling and discolouration something I should be
> really concerned about?
> Maybe you can help. Thanks Cathy and I hope you are having a
> good day.
> Liz.
> ----- Original Message -----
> From: Cathy
> To: thoracicoutletsyndrome@yahoogroups.com
> Sent: Thursday, June 05, 2003 7:53 PM
> Subject: Re: [Thoracic Outlet Syndrome] I thought I was
> finally getting better
>
>
> this is for Liz....You can really aggravate that TOCs
> without
> knowing it. You have to find a new way to do things. I put
> 24
> begonia plants in the yard but I only put in two a day and
> it
> took me 2 months but my yard looks great. Over time you
> will
> learn what aggravtes it. IF IT HURTS...OR BEGINS TO HURT
> STOP.
> Most likely it was the weeding you did that set it off.
> Sometimes just sleeping the wrong way or turning the wrong
> way
> can set it off. Somedays are stable but if I ever begin to
> even
> think hey its better; boom it hits me. I know it is there
> sometimes it is just a little be more asleep until it WAKES
> UP
> AND ZAPS ME. A lot of living with TOCs is sometimes an hour
> at
> a time and it is always a day at a time. YOu don't know
> about
> work until it is time to do it. There is no way to know but
> if
> you worry and get yourself all stressed about it your mucles
> and
> tighten up and put more pressure on the nerves. I am so
> sorry
> to tell you that this is TOCs. I can only say that I am
> glad I
> started this group for you and be sure to know you are not
> alone, we are all in the same boat with you. What is inside
> your head will have a great deal to do with living with
> TOCS.
> YOu have to be determined and you have to find new ways to
> do
> things. I have to break everything I do down into small
> jobs...
> and find another way to do it. Be patient with yourself as
> this
> is all new to you and; it may get better, who knows.
> --- crazycoro <theyoungones@...> wrote:
> > Hi I was wondering if anyone can give me some advice.
> > Last weekend I was actually pain free, I really thought I
> had
> > cracked
> > it and that I was going to get back to work. I felt so
> good I
> > did
> > some weeding in the garden on Sunday. On Monday at the
> Rehab
> > centre I
> > attend I even progressed upto the black theraband. Well
> that
> > night I
> > was woken up with the most terrible pain, first in my
> right
> > arm and
> > then in my left arm, the following day I was in a lot of
> pain.
> > By
> > Wednesday I thought I would be feeling somewhat better,
> but I
> > wasn't.
> > I went back to the rehab centre and couldn't do any of my
> > excercises.
> > I spoke to my physiotherapist, he examained me and found
> that
> > the
> > Thoracic area on my left side of my neck was swollen.
> > Help, is this the way anyone fighting symtomatic thoracic
> > outlet is
> > going to react every time they do something I would think
> is
> > normal.
> > I really am wanting to know if this is what is in store
> for me
> > if I
> > try to return to my job on the printing press I work on.
> How
> > can one
> > feel so good one day and wake up the next in so much pain.
> > Any advice is truely appreciated.
> > Thanks, Liz.
> >
> >
>
>
> =====
> Cathy
>
> __________________________________
> Do you Yahoo!?
> Yahoo! Calendar - Free online calendar with sync to
> Outlook(TM).
> http://calendar.yahoo.com
>
> Yahoo! Groups Sponsor
>
>
>
> To unsubscribe from this group, send an email to:
> thoracicoutletsyndrome-unsubscribe@yahoogroups.com
>
>
>
> Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
>
>
> [Non-text portions of this message have been removed]
>
>


=====
Cathy

__________________________________
Do you Yahoo!?
Yahoo! Calendar - Free online calendar with sync to Outlook(TM).
http://calendar.yahoo.com