I cannot imagine your pain, any more than anyone can put themselves in my shoes; but when I had surgery for a pharyngeal flap done in New Orleans,<br>I knew I...
Your son is an absolute angel! His surgeon did a wonderful job. He is definately going to break hearts, but I'm sure he was charming everyone before his...
Just a reminder about tonghit's chat at 9pm Eastern.<br><br>And for you newer members, I recommend using CheetaChat to connect to the Yahoo chat. It's a free...
Hi everyone been working hard for a while so I've been out of touch but I had to reply to you!<br><br>First of all don't ever feel alone. If you need support ...
hello<br>My name is Sheila. I'm a 34 yo female born with a bilateral cl and pallet. I've had more surgeries than I can remember. Most people who know me are ...
Sheila:<br><br>Hey pal, you shouldn't feel like some kind of freak just because you were born a little different from the "norm". You're a Pharmacist??? Wow. ...
here's a question for those of you that have clefts,<br><br>Do you think you were made fun of more because of speech or scars?<br><br>My son's scars are hardly...
Good question, but actually these two features were used to make fun of me more than either the scars or speech.<br><br>1)My Nose, which used to be flat ...
That seems to be true for a lot of the children I have seen with Hunter's team clinics, you really don't notice scars because the nose is usually flat or...
my son benjamin is going to have his palate closed on the 15th can anyone tell me what to expect especialy after we bring him home he is 11 months it is just...
When my daughter had hers done it wasn't near as bad as i thought it would be. she still took her bottle and wasn't fussy really at all. i just gave her ...
Hunter also had his repaired at 11 mo. he did fine I think it confuses the tongue more than anything. I had Hunter off the bottle and pacifer before his op. so...
I read my message and we did not blend the mac and cheese with the jello we had to put the mac and cheese in the blender to get it small enough to go the tube....
I must send a big "kudos" to the founder of this message board and club. My son was born with a unliateral cleft lip and palate 12 years ago, and I would have ...
My daughter had the same surgery about a year and a half ago. We had tubes put in her ears at the same time. She was still on the bottle. We used Haberman...
I forgot to tell you about the arm braces. We had to put these arm braces on her to keep her from putting anything in her mouth. The biggest problem we had ...
Thanks anybody tell me about when he might be back to his busy self or when he will be able to go back to eating is regular food how will I feed him until then...
I was a mess the 2 weeks befor we had surgery. I was just really out of control at my job. I didn't sleep, I was angry. I was mad at the whole world. I want to...
Where do you think the cleft in your family came from? Some say they are genetic, and others say they can come from environmental factors. Where do you think...
Hi Marieliz, <br>My daughter is 11 years old and we are just starting with orthodontia. She was born with a unilateral cleft lip and palate. We met with the...
Hi,<br>I'm new here> I have an 11 year old daughter that was born with a unilateral cleft lip and palate. The orthodontist an oral surgeon are in agreement ...
The doctors aren't sure where my daughters cleft came from. She is the first in both sides of the family to have a cleft of any sort. During my pregnancy with...
In Australia, people with low incomes or disabilities get what is called a health care card. It covers medical and dental expenses as well as ambulance. Brooke...
In Maryland, there was a law passed last year that stated that orthodontia was covered, if it was due to a birth defect. We haven't gotten that far yet, since...
Jeanette<br>As a parent I know you are asking yourself, why? Why us? I am the only one that we know of in my family that ever had a cleft. No one knows for ...
I am not only asking "why??" about Brooke's cleft, I am also asking "why??" about my sons kidneys. No one else in either family has had any kidney problems....
Hello!!<br><br>I was just catching up on the postings and I wanted to put in my 2 cents worth. There have been studies done that low levels of Folic Acid could...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
