While viewing the contact list and editing my own<br>profile, I noticed some members asked for others to write them, but failed to include an email address....
Our son, Bryce, is 4 months old on Jan. 8th. He's huge! 16lbs. 24in. and always eating! He has an incomplete bilateral cleft lip and palate. He recently had ...
Hi, Marcella! <br>Yeah, I was born with my cleft affecting the soft<br>palate. Over the holiday, I read where cleft onlies were 50% more likely to have another...
Hi Christina,<br><br>Welcome to the club. I have a cleft lip and pallate and am 52. I'm glad to hear that your little boy is doing so well.<br><br>I'm really...
hello i have a daughter that was born with a bi-laterial lip and palate in feb of 98 she has had both the lip and palate repaired. i also have a daughter that ...
Thank you so much for the advice. It helped a little. I just wanted to say that he had his surgery and we are home and he did really well he is almost back to...
I have posted a more recent picture of Brooke and it is more of a close up than the older one. You can hardly tell that she even had a cleft lip. I hope this ...
Hi Christina, welcome to the club. Both of my kids have had to have surgery. My son had bilateral hydronephrosis which in english means that his ureters had ...
Hi there, how are you? <br>I was born with cleft or the soft and hard palate. I guess I'm the other 50% since i have no other problems at all. I guess I was...
It's no biggy! I think mine sounds cool lol. Kinda diff though. Atleast i get attention. Do you know if i can do anything bout it? any surgury for nasal...
I hope to be able to make it to the chat tomorrow. I wasn't able to make it last week because I was (and still am) very busy helping my husband with his ...
I wanted to thank you for your info. Bryce also has reflux which I've sort of gotten used to. He really panics and I think he feels like he can't breathe. I...
An obturator is a denture that is fitted when the baby is 2 weeks old. The purpose is to keep mother-nature from closing the palate and causing the palate to ...
Hi, I was just wondering if anyone whose baby was born with a cleft lip only has had constant problems with their ears. Brooke has only just turned 1, but she...
Gayle, I have not had too many problems with Bryce's ears, but I was told to keep in mind that he probably will later. When he's 10 months old he'll have his...
TY for the reply Christina. I actually took Brooke to an ENT specialist in November because she has had glue ear since she was born. He had a quick look in...
I forgot to mention that if you take your kids swimming when they have glue ear, it is the chlorine that helps it clear up, not salt water or fresh water....
Hi!<br><br>I've been out of town lately, and haven't connected with the club for awhile. To answer your question, I now live in Baton Rouge, LA. Not my ideal...
You probably all think I am worrying over nothing, but I need some advice again. Brooke is 12.5mths old and is not even close to standing alone yet. I am ...
Her ears could be the culprit. I don't know the exact way of explaining it since I'm not much of a medical expert but the inner ear is important for balance....
OK, I know this may sound wild and way out,<br>but babies who have surgery while they are still in the womb do not develop scars from the surgery. Doctors...
Debbie,<br><br>This sounds like a wonderful dream, but there is one thing, the cleft needs to show up on the sonogram. When I was pregnant with Ian, I had a...
Hi, Midge! This is something I'm not clear on (I<br>had my babies before we could even learn their sex). I have read some clefts of the palates are discovered...
Has there ever been a surgery that you werent happy with or not happy about a part of and how did you react?<br><br><br>ex. revision on the nose or lip that...
tongue flap! that was the worst surgery! it's when they attach your tongue to the roof of your mouth and leave it like that for 3 weeks and then u have to go...
I am new to the group and so amazed that there are so many of us out there. I have never really met anyone else with a cleft palate. I have had my surgeries ...
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