Hi<br>happy New year y'all<br>I was wondering if anyone had any information on cleft related conditions or where on the net there would be such info.<br>Thanks...
Lori, I think I can relate to what you posted. It has always been a huge frustration of mine that my 'corrective process' has taken soooo long. As most of us...
I know all too well how you feel. I'll be 25 this year and I don't feel that I am where I want to be with my surgeries. I'm hoping that this year I'll have ...
I hope everyone had a good time ringing in the New Year! I know must of you had too much snow so remember to mail some down here. We NEVER get snow! lol!! ...
My daughter was born with cleft lip/cleft palate and had both her surgeries while she lived in Russia. I understand that there are medical procedures that may...
Hi my name is Evon, I have a 4 and a half month old daughter with a cleft palate. I can understand how you feel about the breast feeding. I didn't know until...
Hi my name is robin. My family and I just moved back here from FL. As you can see we also live in PA. I would love to chat. My son is 10 months actually almost...
Hello Club<br><br>I had an experience I had on New Years Eve I would like to share. I have decided to post it here because this is one of the few areas where I...
Hello Club<br><br>I had an experience I had on New Years Eve I would like to share. I have decided to post it here because this is one of the few areas where I...
Hi Sheila,<br> Good post as usual.<br> Yes , Having the old ego stroked really can make you feel pretty good!<br> I think more so for cleft affected ...
Wow Sheila!! You must have felt great! Sounds like you had a wonderful night. I really hope you have many more like that. Right now I could only dream of ...
Hi Rauch,<br> Frankly there is no VALID medical reason that a health care provider can decline you daughters procedures ( including orthodontics).<br> There ...
I am really new to this issue. My son will not be born for another 2 days, and I live in Arizona.<br><br>Here...there is an organization...CRS....Children's ...
I don't know about PA but I have heard that every state by law has to have a program to help "handicapped" children. In Kentucky where we live it is called ...
Good afternoon club! <br>I was wondering if anyone knows if genetic testing is covered by an HMO. My husband & I both have an HMO and I really wanted to get ...
HI Ana,<br>We have an HMO and my daughter just had genetic testing done and it was covered. Unfortunatley they are having trouble locating her blood ...
Every State does have a program. Some are better than others as far a finacial eligability requirements. I have links to all the state programs so if anyone...
I was just wondering if anyone has heard from Yyzlady lately. I posted a message for her and haven't seen her post for a few weeks now. I'm hoping that she ...
Hi Monica,<br><br>I was disappointed that you missed us last time in NY. Although we never chatted, I was looking forward to meeting you. I am not sure if I...
Thanks Carol. I will be calling my PCP soon. I hope that my husbands HMO can cover it too. <br>By the way, you mentioned in another post that you have ...
Hi Lori!<br><br>I'm still bummed about it! I think you all were at a big table near the front windows - maybe I should have been more nosy. Truth be told, from...
