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thecleftclub · The Cleft Club - Cleft lip and cleft palate support
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Reply | Forward Message #467 of 10819 |
Re: I'm a new member,glad you're here!

I wanted to thank you for your info. Bryce also
has reflux which I've sort of gotten used to. He
really panics and I think he feels like he can't
breathe. I too have been battling with depression over the
surgeries. Bryce's dad pretty much internalizes everything,
where I talk about it. I have come to find this is very
typical. <br><br>Is your son's condition considered a
syndrome? When the doctor discovered that Bryce was clefted
during a sonogram he really paid a lot of attention to
the kidneys and the heart valves. How is your son
doing now? Is there a history in yours or your husbands
family? Anyway thank you for sharing with me. It makes me
feel less alone and more connected. Christina




Sat Jan 8, 2000 4:20 am

eyce_1999
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Message #467 of 10819 |
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I hope to be able to make it to the chat tomorrow. I wasn't able to make it last week because I was (and still am) very busy helping my husband with his ...
_Calvero_
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Jan 8, 2000
4:04 am

I wanted to thank you for your info. Bryce also has reflux which I've sort of gotten used to. He really panics and I think he feels like he can't breathe. I...
eyce_1999
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Jan 8, 2000
4:20 am

An obturator is a denture that is fitted when the baby is 2 weeks old. The purpose is to keep mother-nature from closing the palate and causing the palate to ...
eyce_1999
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Jan 8, 2000
4:44 am

Hi, I was just wondering if anyone whose baby was born with a cleft lip only has had constant problems with their ears. Brooke has only just turned 1, but she...
gayle77_22
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Jan 8, 2000
10:01 pm

Gayle, I have not had too many problems with Bryce's ears, but I was told to keep in mind that he probably will later. When he's 10 months old he'll have his...
eyce_1999
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Jan 9, 2000
1:09 am

TY for the reply Christina. I actually took Brooke to an ENT specialist in November because she has had glue ear since she was born. He had a quick look in...
gayle77_22
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Jan 9, 2000
4:44 am

I forgot to mention that if you take your kids swimming when they have glue ear, it is the chlorine that helps it clear up, not salt water or fresh water....
gayle77_22
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Jan 9, 2000
4:46 am

Hi!<br><br>I've been out of town lately, and haven't connected with the club for awhile. To answer your question, I now live in Baton Rouge, LA. Not my ideal...
vangent65
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Jan 10, 2000
3:25 am

You probably all think I am worrying over nothing, but I need some advice again. Brooke is 12.5mths old and is not even close to standing alone yet. I am ...
gayle77_22
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Jan 10, 2000
9:07 pm

Her ears could be the culprit. I don't know the exact way of explaining it since I'm not much of a medical expert but the inner ear is important for balance....
_Calvero_
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Jan 11, 2000
4:30 am

OK, I know this may sound wild and way out,<br>but babies who have surgery while they are still in the womb do not develop scars from the surgery. Doctors...
debbiedubose
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Jan 12, 2000
2:13 am

Debbie,<br><br>This sounds like a wonderful dream, but there is one thing, the cleft needs to show up on the sonogram. When I was pregnant with Ian, I had a...
midget0912
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Jan 12, 2000
12:24 pm

Hi, Midge! This is something I'm not clear on (I<br>had my babies before we could even learn their sex). I have read some clefts of the palates are discovered...
debbiedubose
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Jan 12, 2000
2:21 pm

Has there ever been a surgery that you werent happy with or not happy about a part of and how did you react?<br><br><br>ex. revision on the nose or lip that...
joe_c_gillis
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Jan 13, 2000
6:24 am

tongue flap! that was the worst surgery! it's when they attach your tongue to the roof of your mouth and leave it like that for 3 weeks and then u have to go...
readytapartay
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Jan 17, 2000
4:33 am

What's the best excersize for the soft palate (in<br>an adult)to lessen nasal speech? <br>Debbie...
debbiedubose
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Jan 17, 2000
4:41 pm

I am new to the group and so amazed that there are so many of us out there. I have never really met anyone else with a cleft palate. I have had my surgeries ...
portmatilda
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Jan 18, 2000
12:57 am

Hi, my 12.5mth old daughter has had problems with her ears since birth. She only had a unilateral incomplete cleft lip, but she has had glue ear since birth ...
gayle77_22
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Jan 18, 2000
2:08 am

Yes I guess that there are many of us out here,, I wonder how many of the members are active ??? I just recently joined,,, I did not have any ear problems but...
bob104shel
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Jan 18, 2000
3:17 am

My 3.5 year old has had ear problems since birth. They have put tubes in 3 times and she still gets an occasional ifection. Do not let them put tubes in your ...
huffman3shoney1
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Jan 18, 2000
5:41 pm

OMG Steph, our daughters both have clefts and they are both named Brooke!!!! I just had to say that as I thought it was such a coincidence. Jeanette...
gayle77_22
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Jan 18, 2000
8:04 pm

I have had the tubes put in five times and I think it was really effective the first time and after that there really wasn't a noticable difference. My son had...
portmatilda
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Jan 18, 2000
11:04 pm

Hi,<br><br>I'm 52 and STILL have ear problems. The issue is the the Eustacian tube on one or both sides (left side for me) is not formed properly and fluid and...
luxradio47
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Jan 19, 2000
1:48 am

What speech excerise would any of you advise for an adult to lessen nasality? Thanks. Debbie...
debbiedubose
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Jan 19, 2000
2:30 am

Hi Debbie -<br><br>I've been away for awhile but am glad to be back! I don't have a cleft, but I am a speech therapist. I have only had a couple of patients ...
gJagLove
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Jan 19, 2000
6:10 am

I have a question for anyone that can help me. Ian had a really bad ear infection this weekend. We took him to the doctor and got him onto antibiotics. What...
midget0912
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Jan 19, 2000
1:00 pm

Drainage from an ear infection means that the eardrum is ruptured. As long as he is taking antibiotics for it, it should clear up.<br><br>Donna...
luxradio47
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Jan 19, 2000
2:20 pm

I'm sorry I am going to have to disagree with you on the matter of the rupture of the ear drum. Hunter has had many ear infections even with his tubes and his...
aahmom
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Jan 19, 2000
8:57 pm

welcome all new members there are a lot of new names out there. I haven't been around much working and ceder fever has got everyone crazy ...
aahmom
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Jan 19, 2000
9:38 pm

I finally finished reading everthing yeah<br><br>vangent65 I have also had the enjoyment of living in LA. I lived in a little town closer to NO. it was next to...
aahmom
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Jan 19, 2000
9:55 pm
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