Sorry this is so long. <br><br>Anyway, I hope
that this can be of some encouragement to someone. Tae
has never given up. So as parents neither can you,
you just never know. We were told that she would
never talk. She does. She wouldn't live past the night.
She did. That there was no way that they were going
to waste their time and money and reputations on
trying to fix anything. Ok!!! But we all refused to just
give up. The human body is so amazing at how it can
adapt. Tae not only walks, she can ride a ten-speed
bike. Oh yea I forgot to mention that her rt arm does
not straightern and her rt leg does not bend. Tae
also drives a car. She has no special equipment. There
is no restrictions on her lisence. The person who
gave her the driving test said Tae was the best driver
she had all day!<br>This is only some of the
highlights, but I just want you to know as parents and
children or adults that do not ever give up there is
always hope. I am not saying that it has been easy. We
had to give our house we were living in back to the
bank earlier in our fight to succeed, because it was
either pay the house payment or buy Tae's formula. We
bought the formula. She had a gastrostomy tube at the
time. She now eats and drinks by mouth. Like I said you
just never can give up. I hope that this is making
sense to you. If anyone would like to share or would
like to get something off their chest I am willing to
listen and give any support I can. I hope I haven't
bored you with all this info. Again Thank you for
allowing me to be apart of your fight. Thanks,<br>With all
my support,<br>Braxton, Tae's mom
I just became a member. My daughter was born with a bilaterial cleft palate. She has no front teeth on top. She didn't have anything wrong with her lip. My...
Sorry this is so long. <br><br>Anyway, I hope that this can be of some encouragement to someone. Tae has never given up. So as parents neither can you, you...
BRAXTON,<br>Hi. My name is Ernesto. Thank you so much for your words. Welcome to the club!! It's not too busy in here yet, but I have the feeling it soon will...
I don't remember exactly how I found this club but I am glad I did.<br><br>My son Brian was born 7/24/98(premature,too) with a unilateral incomplete cleft lip...
I wasted no time and was able to upload some photos of my little pumpkin. Ufortunately I don't have anything real recent, but hopefully in the next couple of ...
Ernesto,<br><br>Hi, I don't mean to be rude or depressing or anything.. but maybe you should have let your wife have an abortion if she wanted one... your...
Tae sounds like a remarkable person! And also so lucky to be born into a loving family! Though I'm sure you feel just as lucky to have her :).<br><br>It's ...
I just wanted you to know that I'm glad your wife changed her mind. Please read my post from previous. If we would have aborted Tae, that would have been a ...
im glad i stumbled across this club, I was starting to feel alone which I know is not the case. I'm glad to see others like me with questions. anyone who would...
With respect to you Emma, I disagree with you with having an abortion in this situation. Yes, it's difficult..you and I both know that. The operations are very...
Hi. I'm the mother of a 19 mth old girl and yes this is a small place starting out but its getting bigger. I would love to chat with u and become friends. my...
I was born with a bilateral cleft lip.<br>I'm 32, a mother of three boys 4 yrs and under.<br>My boys are fine, no clefting.<br>I would like to be of any help...
I just tried to upload the second picture in "Calvero's pics" with Netscape 4.6 and had no problem so I don't know what to say to help :(. Try it again and if ...
>does anyone ever chat in this club? <br><br>So far no. Since the club is rather small (but growing!!) it's very rare when you can go into the chat and find...
I think that would be great. I know I have alot of questions and would like to chat with other people about them. I work nightshift but im up from 4:00p.m....
Hi,<br>I was born with a fairly rare craniofacial condition called arhinia, which is the absence of the nose. I think that it is the only craniofacial...
How uplifting!!! If you don't mind I'd like for my daughter to read your post. She also works very hard! Tae has a job right now at the city swimming pool as a...
I'm thinking about a chat tommorow, Sunday, at 9pm (that Eastern time, so add or subtract the hours for whatever time zome your in. If the baby allows it, I...
Hi. again. Since I know some about everyone here and everyone is introducing themselves, I figured I would to. My daughter was born Jan 2, 1999 weighing 5'0"....
Hi Kristi! I was glad to see you joined the other day. And glad to see that you got your own domain now ... design and content. I might get my own domain...
The chat went pretty well last night, especailly since it was on short notice. Thanks to alyshnya28 and braxton2_99 for showing up :).<br><br>Remember there's...
I noticed not much has been happening in here for a couple days. Hope everyone is doing well!<br><br>I was a bit late for the chat the other night and showed...
I've read some of the comments. I didn' exactly pay attention to who they were from, but one stuck out. It was one about how people treated you so differently...
I know what it feels like to be alone. My 8 1/2 month old daughter Melissa-Lynn has a cleft and it hurts me so much to know she will get teased for the rest of...
Hi my name is Tina and I have 4 children and the oldest is 4, twins 2 and a 8 month old with a cleft lip and palate. She has had 2 surgeries so far and has ...