I'm sorry to hear about this, sounds like you've been misdiagnosed
for far too long. Good thing you found a doctor that at least knew
what he was doing. This is one of my greatest fears of doctors, that
they only guess on far too many issues and miss the actual problem,
thereby treating a symptom rather than the cause of it.

Obviously my situation was nowhere near what yours is, I wish there
was something I could say to help, but unfortunately there isn't, I
don't know what I could say. One thing you should do, in my opinion,
although it won't help with your current situation, is speak to a
lawyer about going after the first doctor, at least do what you can
to help keep this or any other misdiagnosises happening to anyone
else. It's a hard thing, and I've seen it far too many times, doctors
seem to think they know all there is, and they don't really. Only a
very few do have the ability to look beyond the symptom and consider
that there's something more than what might be obvious.

I wish you all the best in your treatment and recovery, you're not
alone.

Steve

--- In testicularcancersupport@y..., powerfull001 <no_reply@y...>
wrote:
> Hi guys,
> I had my right testicle removed last year. I must of had cancer in
it
> for 18months before it was diagnosed. I complained to my doctor of
> the pain in the testicles and he kept blaming it on my bad back
> causing refered pain.He never gave me a proper test.Always said lay
> on the couch pull your shirt up and would feel my lower abdoman and
> say cough and would say there was no hernia. Never gave me a
> testicle "feelling" examination. Last december My testicle swelled
so
> large within a few days and became heavy. Luckily my doctor was
away
> so I went to another and as soon as he looked at it he new it was
> cancer. It was a 6.5 seminoma malignant cancer with some spread. So
a
> removal was done. After that a cat scan showed numerous enlarged
> nodes in my chest and lungs. So then chemotherapy was aranged. 2
days
> before chemo was aranged I had a lung biopsy. I was admitted to
> hospital for the chemo and I was all ready for the iv and it was
> cancelled as the biopsy results came in that I had sarcoidosis in
> both lungs too. So the haematologist and oncologist said it was too
> risky to do as I most probably would have life threatening lung
> damage to proceed. So it was decided to do 5 weeks of radiation. I
> got really ill from it and was sick every day. Further scans since
> then still show numerous enlarged nodes. It was decided to monitor
me
> with regularfull body catscans and blood tests and once they start
to
> get bigger or spread is shown to risk chemo as a last resort.So im
> stuck in a serveillance mode not knowing what lays ahead for me.
> Also since my testicle removal my testosterone production plumeted
to
> very low.Caused me to be so depressed,weak. body ache and sexual
> problems. So started hormone therapy 4 months ago taking
sustanon250
> injections every 2 weeks. Ouch very painful jabs as it is a oil
based
> injection and deep muscle. In 2 weeks I will have testosterone
> pellets implanted into my abdoman and that will give me a steady
flow
> of hormones for 4 to 5 months before a new lot of pellets have to
be
> implanted.
> At present I am having a hard time still trying to come to terms
with
> it all.Just wish everything was all clear.
> powerfull001