My SIL has just been diagnosed with Leukemia and will be starting
Chemo today or tomorrow.  As of last night, they have not identified
exactly which type she has.

To make matters much worse, she is 31 weeks pregnant.  Clearly she and
my brother (as well as our whole family) are very frightened.

I am actually looking for advice as to how to be most helpful to them.
Was there anything that friends or family did for you or said to you
that you found helpful/strengthening/comforting?  My SIL is a very
private person and doesn't want a lot of visitors, which I respect.

Thank you for any advice you have to offer.

Blessings,
Monica

.

Hello,

I am new to this group and thought I'll share the Health Listing of
hi-fiweb.
To get the complete health listing you may go to
http://www.hi-fiweb.com/health

Good day!
Kathy

Hello-

our 12 year old daughter was diagnosed on March 14th with ALL
leukemia.  It has been a very difficult month with dealing not only
with the medical side of things but the emotional as well.  We are
slowly getting back to an almost functioning state, but the process
seems to go two steps forward and one back in that regard.  Her
treatment is going along fine, minimal side effects from the chemo.

She told me yesterday that she feels as though everyone who looks at
her sees the cancer, even though she looks essentially the same.  She
has started to lose some hair, but it isn't in large amounts, more
like strands all over the house, one at a time.  How do I help her
through this stage?  She becomes irritable when we are out because she
feels people are staring at her, and they most definately are not.

Any advice regarding this would be so helpful.

Thanks much,
Cindy

My husband has servived accute mylode leukemia.  or AML .He was told he had it
Nov.27,02. Tom has been in  remissiom for 2 years know. They gave him a short
time to live but they were wrong and the Drs. are surprized that Tom has made it
this far. On September 13.01 he had a heartache and just about lost him then.In
Nov.5 he took sick the Drs. thought it was the flue. They put him in hospital
for 5 days then back in again Nov.28.03 .He was sent to Victoria hospital in
London Ontario where the Drs. said one more day getting there he would of
died.My husband had never been sick a day in his life other than the odd cold or
flue. Tom was to have a transplant he had two perfect matches from his
brothers.To days before the transplant he got a call telling him it's a no go
and that someone had read his test wrong that his heart wouldn't take the tramma
which ment that he had a short time to live. My husband's nerves has got the
best of him and he won't go for help. I told him that I would
  look on the net and see  if there is some site that we can go to with my
daughters help here we are. Maybe if he can talk to other survivers this might
help him and the rest of us as well. Tom just went for his checkup this last
Wednesday 16.05 and doesn't have to go back for 6 months unless something
happens.




---------------------------------
Do you Yahoo!?
  Yahoo! Small Business - Try our new resources site!

[Non-text portions of this message have been removed]

Hey,I just added my recent photos.Register a completed profile and
Check me out!Please get back to me if you are interested.I am sure
you won't be disappointed!Please fill out your details in your
profile.

Attention:You have to finish two steps,or your profile will not be
shown up on the top of search results!!!!
http://millionairesingles.Zu5.net

Greetings,

I was wondering if anyone had any information on the non-
myeloablative or low intensity regimen transplant? Any information
would be helpful.

John Cole-AML
Diagnosis 10-2000
Relapse 10-2004

The Saturn car company is working to raise awareness of the
importance of life-saving organ, blood and marrow donation.  From
March 2 – 8, the first 60,000 visitors to the community section of
Saturn.com can request a free "People First" wristband to wear in
support donation, and the automaker will donate 50 cents per
wristband to the Marrow Foundation.

www.saturn.com

its easy and its free!  Spread the word!

check yahoogroups.com or msn.com groups for philanthropy.
bonnie

In a message dated 2/28/2005 3:51:22 PM Eastern Standard Time,
jonquilsandtulips@... writes:

>
> Hi everyone!
>
> My name is Cassi Friedman.  About 6 years ago I lost my best friend
> from age 2 1/2 on to Leukemia.  She was a first grade teacher and
> was very open and honest with her students throughout her
> treatment.  Her wish was to write a children's book to help kids
> going through treatments be less frightened.  Unfortunately, she ran
> out of time.  It took me several years, but I finally sat down to
> write this book for her.  In September, I sent it out to several
> publishers.  A very small, but legitimate, publisher is interested
> in the story!  However, they can only budget half the money, and
> told me to look for a sponsor - possibly the Leukemia Society.  So
> far, I have been unsuccessful in contacting the right person.  Does
> anyone have any contacts within the society they could recommend?
> In addition, I will have to help promote the book myself and I am
> trying to build a mailing list to send postcards to when the book is
> published.  If you would be interested in being on the mailing list,
> please email me privately with your address at
> jonquilsandtulips@....  I guarantee that your address would
> only be used in connection with this book.  Put Mailing List in
> subject line, please.
> I am only looking for opinions here, but I thought who better to ask
> than you:  I am toying with the ideas of trying to raise some of the
> money myself by selling "IN HONOR OF ...." and "IN MEMORY OF..."
> listing on my dedication page.  Do you think anyone out there would
> be interesting in buying such a thing?  Thanks for your input.
>
> Also, I would love to hear some of your stories, particularly
> regarding bone marrow transplant.  I wrote the story about a bone
> marrow transplant, but having not had one myself I'd considering it
> a huge favor and extra research to make sure I have great info in my
> final draft.  I would also be happy to share my story for critique
> with anyone interested in giving me feedback on accuracy.
>
> Thanks so much.  I hope to hear from some of you soon!
>
> Cassi Friedman
>



[Non-text portions of this message have been removed]

Hi everyone!

My name is Cassi Friedman.  About 6 years ago I lost my best friend
from age 2 1/2 on to Leukemia.  She was a first grade teacher and
was very open and honest with her students throughout her
treatment.  Her wish was to write a children's book to help kids
going through treatments be less frightened.  Unfortunately, she ran
out of time.  It took me several years, but I finally sat down to
write this book for her.  In September, I sent it out to several
publishers.  A very small, but legitimate, publisher is interested
in the story!  However, they can only budget half the money, and
told me to look for a sponsor - possibly the Leukemia Society.  So
far, I have been unsuccessful in contacting the right person.  Does
anyone have any contacts within the society they could recommend?
In addition, I will have to help promote the book myself and I am
trying to build a mailing list to send postcards to when the book is
published.  If you would be interested in being on the mailing list,
please email me privately with your address at
jonquilsandtulips@....  I guarantee that your address would
only be used in connection with this book.  Put Mailing List in
subject line, please.
I am only looking for opinions here, but I thought who better to ask
than you:  I am toying with the ideas of trying to raise some of the
money myself by selling "IN HONOR OF ...." and "IN MEMORY OF..."
listing on my dedication page.  Do you think anyone out there would
be interesting in buying such a thing?  Thanks for your input.

Also, I would love to hear some of your stories, particularly
regarding bone marrow transplant.  I wrote the story about a bone
marrow transplant, but having not had one myself I'd considering it
a huge favor and extra research to make sure I have great info in my
final draft.  I would also be happy to share my story for critique
with anyone interested in giving me feedback on accuracy.

Thanks so much.  I hope to hear from some of you soon!

Cassi Friedman

Save 50% to 80% on dental services, braces, eye glasses, contact
lenses, prescriptions, and chiropractic services. Must see to
believe. Incredible savings and very affordable rates!
http://www.MybenefitsPlus.com/JRiddle

Hi Windy, My names is Jan. My 28 year old son James was diagnosed in
Dec. with ALL so I am new to the emotions also.
I couldnt even imagine it happening to a small child. When I started
my on line search all the pictures of the children made me
cry......they are so young and innocent.
  James is on day 36 of treatment now.....into the secound
round...round one was really hard but so far round two is much
better. Actually we got the marrow report back yesterday for Jan.
31st and there is no leukemia present at this time.
I had to go after about 3 weeks and get lexapro, I wasnt functioning
at all. It was a hard decission to make but the way I was I sure
wasnt going to be of any help to him. This has helped me out a big
bunch. I can now sleep, eat and think (I dont think I was a good
thinker before it all happened :)

Good luck with this, and if you need to talk I havnt been in your
shoes but I will gladly be here for you.
Give her a big hug for me ok.....
My Prayers are with you
  ~jan

--- In survivingleukemiatogether@yahoogroups.com, <windya@f...>
wrote:
> Hello All! I am joining this group looking for new friends and
support. Our daughter was diagnosed with A.L.L. 2 weeks before her
3rd birthday. She is doing well right now. We have already had 2
bouts with hospital stays, vancristine poinsoning and she has about
doubled her weight from the steroids she has been taking. This
diagnosis was such a shocker to us..no childhood cancers in our
family...but to watch our healthy baby girl..go through this its
heartbreaking...we are on day 26 of treatment, so all these emotions
are new...
> Looking forward to getting to know everyone.
> Windy
>
> Windy
> Pursue the things you love doing, and then do them so well that
people can't take their eyes off you
>
> Independant Beauty Consultant with Mary Kay
> www.marykay.com/windya
>
> Independant Kitchen Consultant
> www.pamperedchef.biz/windy
> Like to cook?Book a catalog show and get free products!

Hello All! I am joining this group looking for new friends and support. Our
daughter was diagnosed with A.L.L. 2 weeks before her 3rd birthday. She is doing
well right now. We have already had 2 bouts with hospital stays, vancristine
poinsoning and she has about doubled her weight from the steroids she has been
taking. This diagnosis was such a shocker to us..no childhood cancers in our
family...but to watch our healthy baby girl..go through this its
heartbreaking...we are on day 26 of treatment, so all these emotions are new...
Looking forward to getting to know everyone.
Windy

Windy
Pursue the things you love doing, and then do them so well that people can’t
take their eyes off you

Independant Beauty Consultant with Mary Kay
www.marykay.com/windya

Independant Kitchen Consultant
www.pamperedchef.biz/windy
Like to cook?Book a catalog show and get free products!

Hi,
I am a new member to your group and I work for the Leukemia Research
Foundation which is based in the Chicagoland Area. Our mission is to
conquer leukemia, lymphoma and myelodysplastic syndromes by funding
research into their causes and cures, and to enrich the quality of
life of those touched by these diseases. I have recently joined
several groups relating to these diseases in the hopes of offering
assistance to those that we can help. Most of the money we raise
goes to world-wide research, but we also have a financial assistance
program for those who live in Illinois or within 100 miles of
Chicago. We also offer free patient programs such as an annual Town
Hall Meeting and there is a new program in March that is for people
wanting to learn more about transplants. Please see our website at
www.leukemia-research.org or feel free to email me for more
information.

Amy Meyer

You are more the welcome. I know I didn't help out much, but know I
understand and if you ever just need to talk I'll be here to listen.

Take care God BLess. Shell

--- In survivingleukemiatogether@yahoogroups.com, C de K
<carok71@y...> wrote:
> Thank you for your reply Shell.
> And your prayers too. .
> :) Caroline
>
>
>
> ---------------------------------
> Find local movie times and trailers on Yahoo! Movies.
>
>
> [Non-text portions of this message have been removed]

Thank you for your reply Shell.
And your prayers too. .
:) Caroline



---------------------------------
Find local movie times and trailers on Yahoo! Movies.


[Non-text portions of this message have been removed]

Hello Jan

My heart goes out to you. I know what you are going through being a
mom myself, and yes it doesn't matter how old your kids get, they
are still your babies.

I'm so glad to hear that your son gets to spend time with his kids.
If there is one thing that will get him through all the nasty chemo
and such is the love from his family. It will keep him going even if
he sometimes feels like saying I'm done.

You did the right thing by taking the anti depressents. Believe it
or not I wouldn't have anything to do with them. But after doing
this for 6 years I couldn't take any more ( Or some everyone told me
because they thought I was going over the deep end ) So I started
taking them ( Just for a while ) and they seems to help me out if
for only one thing to help me focus. ( My spelling is bad sorry )

So I'm here for you if you need to talk. Scream, yell what ever.
Believe me it helps to talk even if the person doensn't say anything
other then listen. It helped me get all my ducks in line.

Well I will be thinking of you and your son and I'll stay a little
prayer..

I need to go to work. God BLess You All

Shell


--- In survivingleukemiatogether@yahoogroups.com, "Jan"
<b1dragunlady@y...> wrote:
>
> Hello my name is Jan,
> on Dec. 27 my 28 year old son James was diagnosed with ALL. He has
> since gone through round one of Chemo spending three weeks in this
> hospital and this week has started round two, entering the
hospital
> on Monday and being released as a out patient on Tuesday.
> James is divorced with two children ages 4 and 6. His ex wife has
> let his 6 year old come to stay with him while he goes through
this
> which makes Daddy and son very happy.
> It is amazing how rapidly your life changes when this happens in
> your life. Our Children are our babies no matter what the age and
I
> am having a tough time with this so my doctor has advised me to
find
> a online support group to help me to cope with this along with
> giving me some anti depressents to help me out a lot.
> It seems that ALL is not common James age group so he has not had
> much luck finding other young adults to talk to about this on line.
> Thank You for listening to me.....I could actually rattle on and
on
> as Im sure you understand.
> ~Jan

Dear Caroline

First off I'm very sorry to hear about your brother. Please tell him
I am thinking of him here in the Michigan.

I can understand how he feels. It very scary to have cancer. Then go
through all the nasty stuff you have to. Having a bone marrow
transplant because that is something I said I'd never want to go
through again. ( seeing my son go through all the pain ) Yet when we
found out he came out of remission for the second time and his cells
changed we had no choice. ( He is only 9 years old ) So we went
through yet another one and so far he seems to be fine.

I have read a lot about bone marrow transplants. It seems that on
the average most people end out having at least two before the are
cancer free. Why this is I don't know.

I'd like to ask just a few question. When your brother had the bone
marrow transplant, after words did they do a spinal tap and bone
marrow asperiation on him to see if any his cells where left or
where they just all donor cells.

Just give your brother some space to work things out. It seems the
more I would talk to my son the more up set he would be come. If I
just didnt' say anything he seems to cool off is faster and then was
ready to start to talking.

I wish I could help out in some way. I feel for him. But he is very
lucky he has caring people around him and willing to be there for
him, and who love him.

I need to go. Time for work. My thougths and prayers are with you.

God Bless you and your family  Caroline ..

Shell

--- In survivingleukemiatogether@yahoogroups.com, C de K
<carok71@y...> wrote:
> Hi All, don't if I know I'm in the right place, but my brother has
just come out of remission from Acute Myeloid Leukemia after an
autologus bone marrow transplant 4 years ago. He's 37 I'm 34. We
live in Melbourne Australia. I'm having a hard time with him because
of his anger. I'm even scared to ask How are you? I want to learn
how to tell him he has crossed the line with his anger, and is
making us scared, without minimising his own fear. I Hope someone
can help!
> With love and prayers for all
> Caroline
>
>
>
> ---------------------------------
> Find local movie times and trailers on Yahoo! Movies.
>
>
> [Non-text portions of this message have been removed]

Hello my name is Jan,
on Dec. 27 my 28 year old son James was diagnosed with ALL. He has
since gone through round one of Chemo spending three weeks in this
hospital and this week has started round two, entering the hospital
on Monday and being released as a out patient on Tuesday.
James is divorced with two children ages 4 and 6. His ex wife has
let his 6 year old come to stay with him while he goes through this
which makes Daddy and son very happy.
It is amazing how rapidly your life changes when this happens in
your life. Our Children are our babies no matter what the age and I
am having a tough time with this so my doctor has advised me to find
a online support group to help me to cope with this along with
giving me some anti depressents to help me out a lot.
It seems that ALL is not common James age group so he has not had
much luck finding other young adults to talk to about this on line.
Thank You for listening to me.....I could actually rattle on and on
as Im sure you understand.
~Jan

Hi All, don't if I know I'm in the right place, but my brother has just come out
of remission from Acute Myeloid Leukemia after an autologus bone marrow
transplant 4 years ago. He's 37 I'm 34. We live in Melbourne Australia. I'm
having a hard time with him because of his anger. I'm even scared to ask How are
you? I want to learn how to tell him he has crossed the line with his anger, and
is making us scared, without minimising his own fear. I Hope someone can help!
With love and prayers for all
Caroline



---------------------------------
Find local movie times and trailers on Yahoo! Movies.


[Non-text portions of this message have been removed]

Hello Rob

I'm sorry It has taken me a while to write back. Being a single mom
and taking care of two kids, ( One who is sick ) And working I don't
have much time.

I have to say it really sounds like you are doing everything right.
If they had gave me the choice of Radiation on not I would have. He
did get it when he came out of remisson the first time, but that was
only becuase that was part of getting him ready for a bone marrow
transplant. Boy is that a long story!

My son goes to Childrens Hosptial in Michigan. It's a teaching
hosptial and they have been very kind to us, even when I thought at
times I was being to much of a pain in the ass with them. Who
couldn't be when your baby is so sick. The mother bear comes out of
me. Giggles.


All's I can say is no matter what try to find some fun things to do.
I know you are limited like myself. But we have a lot of fun playing
board games and such. With my son being sick it has only brought us
closer. Thank goodness for that. I know it sounds crazy, but to keep
me from going crazy I joke around a lot and laugh. So don't forget
to laugh besides it makes for a better world right? Also don't for
get Make A Wish as well. My son deiced to go on a shopping spree...
Boy he had fun! He still has money left over that he uses from time
to time. ( They give you everything in gift cards from the stores
you ask to go to.)

Well I have to be going. I'm not a very good typer and I'm tying to
type as fast as I can, because I need to go to work.. So sorry if
things are missed spelling and such.... Psst Lack of sleep too if
you know what I mean!

My thoughts and prayers are with you and your family. God Bless You..

Shell


--- In survivingleukemiatogether@yahoogroups.com, our fun
<ourfunstl@y...> wrote:
> Hi,
> we spent the weekend at the hospital and finally got her fever
down, Jenny is in good spirits, the plan is for cranial radiation,
when we met with the radiologist he felt very confident that the
treatment would be well tolerated but they have to list all the
possible side effects, so we feel ok about it, and also look at it
as another level of leukemia removal/curing so that's how we are
taking it, when Jenny was diagnosed her wbc was not high but a very
normal level so I think that helps too, don't know, and yes with her
interthecal I believe it was methotrexate, I don't have her book
here at work.  Please don't withhold because of the relapses, it's
good for you to have an outlet too.  Dr. Shenoy at St. Louis
Children's has done some great work on gvhd and recovery time
improvements, it is truly amazing what they can do compared with a
few years ago.  thank you for chatting with me, it really helps to
bring things in focus and helps me feel more normal too.
>
> you are in our prayers
> Rob
>
> subl34 <subl34@y...> wrote:
>
> Well from what I read it really sounds like she is doing a
wonderful
> job. That the chemo is working and doing what it should, and I
can't
> tell you how happy I am for you.
>
> Most of the kids that got sick the same time my son ( 1999 ) did
> with ALL are doing fine and have no signs of being sick again. It
> really does sound like she is doing really well with the treatment
> from everything said. When they do a spinal tap do they put
> Vincristin ( spelling ) Or methotrexates in her spin even though
she
> doesn't have the leukemia in her nervuse ststem?
>
> As far as it taking longer then you wanted to get the Methotrexate
> out of her system is okay. It all comes down to how well she is
> drinking or how much fluid she is getting, so it flushes out her
> system. Some times my son would have it hanging around for longer
> then I thought it should be, other times he was right on target.
The
> doctors told me it has to do with how hydrated ( spelling again )
he
> was before it started chemo during the chemo.
>
> As far as the Radtiation some hosptials believe that chemo and
> radaition are the best way to go. Some think just chemo is the way
> to go. Radiation is very hard on the body with a lot of side
afects.
> Some say it gives kids learning problems and so forth. I can give
> you more info on that if that is a road you might be taking.
>
> As far as her cold. I was one of the lucky ones. My son never
really
> seem to have a problem when he got one. Sure I freaked out, but he
> always did fine. I think it depends on how weak the body is before
> you get one that matters.
>
> I wouldn't worry about her eatting some times and other times not.
> The chemo will make all the foods she loved teast funny. Do you
have
> to watch what she eats? Such as not eatting fruits that can't be
> peeled and such?
>
> I'm not going to tell you to much about my son, because I don't
want
> you to become scared or lose hope. Hope is everything and it gets
> you through the hardest times. I'll only say that His is bad and
he
> has relapesed two times, and just had his second bone marrow
> transplant. The first one didn't work. There where not enought
donor
> cells so it didn't take. That is a very long story in it's self.
The
> second one so far is good, and as every mother hopes all will be
> well. It just takes time and that is the hardest part isn't!
>
> Well I should be going. God Bless you and your family. I'll be
> thinking of you and saying a pray..
>
> Shell
>
> --- In survivingleukemiatogether@yahoogroups.com, our fun
> <ourfunstl@y...> wrote:
> > Hi,
> > Very nice to hear from you, as far as her risks I wish I could
sya
> more however the Doctors told us that they consider her standard
> risk, it was never  found in cns her blood stream at the start of
> treatment showed 5 % blasts and her bone marrow showed 95 %
leukemic
> cells, after one day the blast went to zero and at 7 days her
marrow
> went to 5 % and then to zero 14 -18 days later I think, just so
much
> to remember.  she hasn't received cranial radiation yet, whe has
> been slow in clearing the high dose methotrexates and kind of
three
> to five weeks delayed on the roadmap.  I don't know if that's bad
or
> good but I kind of believe it's good that her cells respond so
much
> to this giving her a mnore suppression rather than less or even
> none, which I hear could be tougher to keep things in check etc...
> but I don't know, I guess I am looking for silver linings
> everywhere, we just returned home from the hospital because of her
> first fever/cold symptoms since she started treatment, we have been
> >  lucky thus far, heard stories about kids who routinely have
> fevers get sick and are in and out every couple of weeks so August
> until now seems like a good run without having this happen.  how
> long ago was your son diagnosed?  how's his appetite, Jenny's runs
> hot and cold sometimes she wil eat great and then go cold, nothing
> sounds good, the clinic nurse says that's typical chem kids, and
the
> hospital nurse said when ever the kids on our wing want to eat
> anything they make the caffeteria fix it any time of day.  hope
this
> is the info you are looking for, it seems like all I read about on
> the net is when kids have tougher times, I would like to hear
about
> the ones that get through it and are doing great too.  Hope your
son
> is doing good, I look and read anything I can on the web and it
> sounds like there is always alternatives and options, but it's
> difficult not to worry, it is so scary for us some days are harder
> than others but you do what you have to do.
> >
> >
> > Thanks and I can't wait to hear back form you,
> > Rob
> >
> > subl34 <subl34@y...> wrote:
> >
> > Hello Rob. I'm new here. My son is now 9 years old and also has
T-
> > cell ALL... Can you tell me if your daughter is low risk All or
> > what? Has she ever had white blood cells show up in her spinal
> taps
> > or is that all clear? In other words can you give me some back
> > ground information.
> >
> > Thanks Shell
> >
> > --- In survivingleukemiatogether@yahoogroups.com, our fun
> > <ourfunstl@y...> wrote:
> > > Hi,
> > > My Daughter is nine years old and last August she was
diagnosed
> > with T-cell ALL and I too wish to be in contact with survivors
for
> > same reasons, peace of mind that there is hope and a future.  so
> if
> > you do not mind adding us to your list when you hear from
> > survivors.  My daughter is doing good and we are done with
> hospital
> > chemo treatments and now just at clinic fro treatments.
> > > Thanks Gail
> > >
> > > Rob Stock
> > >
> > > GAIL HACHEY <ghachey456@r...> wrote:
> > > Hello, my name is Gail, My eight yr old grandaughter was
> diagnosed
> > with ALL when she was about 18 mnths old, When first discovered
> the
> > doctors told us, if we didn't discover it when we did we would
> have
> > lost her with in two wks, She was rushed directly from the
credit
> > valley hospital in mississauga, ontario, to the toronto hospital
> for
> > sick children where she had an immediate blood transfusioin, she
> > remained in the hospital for six wks where they put her on the
> most
> > aggressive chemo (the highest protocol) they could put a child
at
> > her age on, she never required a bone marrow transplant or
> > radiation, but had to return to the hospital for continuing
> > treatment of chemo and blood work including lombard puntures.
She
> > has been in remission for three yrs now, and the doctors tell us
> if
> > she remains in remission for a total of seven yrs she will be
> > considered cured. I guess what I'm looking for is confirmation
of
> an
> > adult survivor who has had A.L.L as a child, survived and grew
up
> to
> > marry
> > > and have children, and lived happily ever after. Cancer is a
> well
> > known desease in my family, it seems to run through my family
like
> > water, My mother died of breast cancer, My father then died nine
> > months later of cancer of the pancreas. My sister Mary had a
> > hystorectomy due to cancer when she was 30yrs old then a partial
> > masectomy at around 45yrs of age, (she is now 51) and still is
in
> > alot of pain being tested to see if there is any cancer in her
> bones
> > two of my other sister an myself had a D & C and caughtery cause
> we
> > had the cells that turn into cancer but what caught on time. and
> so
> > far are cancer free, I also had an uncle (my mothers brother)
who
> > had  got A.L. L. and had passed away, at the age of 51. But I
> guess
> > the real reason I'm here is or confirmation, that my
grandaughter
> > will grow up to live a happy normal life, and maybe have
children
> of
> > her own if she wishes to do so. So if there are any adults out
> there
> > that have survived A.L.L as a child I would love to hear from
> > > you. And if there is any one in need of a little hope cause
they
> > just found out that their child has A.L.L. I have a beautiful
blue
> > eyed blonde eight yr old grandaughter as living proof, that
things
> > do get better.
> > > thanks for being there
> > > love hugs kisses and hope
> > > gail
> > >
> > >
> > >
> > >
> > >
> > > GAIL
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > >
> > >
> > > ---------------------------------
> > > Yahoo! Groups Links
> > >
> > >    To visit your group on the web, go to:
> > > http://groups.yahoo.com/group/survivingleukemiatogether/
> > >
> > >    To unsubscribe from this group, send an email to:
> > > survivingleukemiatogether-unsubscribe@yahoogroups.com
> > >
> > >    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> > Service.
> > >
> > >
> > >
> > > ---------------------------------
> > > Do you Yahoo!?
> > >  Yahoo! Mail - You care about security. So do we.
> > >
> > > [Non-text portions of this message have been removed]
> >
> >
> >
> >
> >
> > ---------------------------------
> > Yahoo! Groups Links
> >
> >    To visit your group on the web, go to:
> > http://groups.yahoo.com/group/survivingleukemiatogether/
> >
> >    To unsubscribe from this group, send an email to:
> > survivingleukemiatogether-unsubscribe@yahoogroups.com
> >
> >    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
> >
> >
> >
> > ---------------------------------
> > Do you Yahoo!?
> >  Yahoo! Search presents - Jib Jab's 'Second Term'
> >
> > [Non-text portions of this message have been removed]
>
>
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/survivingleukemiatogether/
>
>    To unsubscribe from this group, send an email to:
> survivingleukemiatogether-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
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> Tired of spam?  Yahoo! Mail has the best spam protection around
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> [Non-text portions of this message have been removed]

Hi,
we spent the weekend at the hospital and finally got her fever down, Jenny is in
good spirits, the plan is for cranial radiation, when we met with the
radiologist he felt very confident that the treatment would be well tolerated
but they have to list all the possible side effects, so we feel ok about it, and
also look at it as another level of leukemia removal/curing so that's how we are
taking it, when Jenny was diagnosed her wbc was not high but a very normal level
so I think that helps too, don't know, and yes with her interthecal I believe it
was methotrexate, I don't have her book here at work.  Please don't withhold
because of the relapses, it's good for you to have an outlet too.  Dr. Shenoy at
St. Louis Children's has done some great work on gvhd and recovery time
improvements, it is truly amazing what they can do compared with a few years
ago.  thank you for chatting with me, it really helps to bring things in focus
and helps me feel more normal too.

you are in our prayers
Rob

subl34 <subl34@...> wrote:

Well from what I read it really sounds like she is doing a wonderful
job. That the chemo is working and doing what it should, and I can't
tell you how happy I am for you.

Most of the kids that got sick the same time my son ( 1999 ) did
with ALL are doing fine and have no signs of being sick again. It
really does sound like she is doing really well with the treatment
from everything said. When they do a spinal tap do they put
Vincristin ( spelling ) Or methotrexates in her spin even though she
doesn't have the leukemia in her nervuse ststem?

As far as it taking longer then you wanted to get the Methotrexate
out of her system is okay. It all comes down to how well she is
drinking or how much fluid she is getting, so it flushes out her
system. Some times my son would have it hanging around for longer
then I thought it should be, other times he was right on target. The
doctors told me it has to do with how hydrated ( spelling again ) he
was before it started chemo during the chemo.

As far as the Radtiation some hosptials believe that chemo and
radaition are the best way to go. Some think just chemo is the way
to go. Radiation is very hard on the body with a lot of side afects.
Some say it gives kids learning problems and so forth. I can give
you more info on that if that is a road you might be taking.

As far as her cold. I was one of the lucky ones. My son never really
seem to have a problem when he got one. Sure I freaked out, but he
always did fine. I think it depends on how weak the body is before
you get one that matters.

I wouldn't worry about her eatting some times and other times not.
The chemo will make all the foods she loved teast funny. Do you have
to watch what she eats? Such as not eatting fruits that can't be
peeled and such?

I'm not going to tell you to much about my son, because I don't want
you to become scared or lose hope. Hope is everything and it gets
you through the hardest times. I'll only say that His is bad and he
has relapesed two times, and just had his second bone marrow
transplant. The first one didn't work. There where not enought donor
cells so it didn't take. That is a very long story in it's self. The
second one so far is good, and as every mother hopes all will be
well. It just takes time and that is the hardest part isn't!

Well I should be going. God Bless you and your family. I'll be
thinking of you and saying a pray..

Shell

--- In survivingleukemiatogether@yahoogroups.com, our fun
<ourfunstl@y...> wrote:
> Hi,
> Very nice to hear from you, as far as her risks I wish I could sya
more however the Doctors told us that they consider her standard
risk, it was never  found in cns her blood stream at the start of
treatment showed 5 % blasts and her bone marrow showed 95 % leukemic
cells, after one day the blast went to zero and at 7 days her marrow
went to 5 % and then to zero 14 -18 days later I think, just so much
to remember.  she hasn't received cranial radiation yet, whe has
been slow in clearing the high dose methotrexates and kind of three
to five weeks delayed on the roadmap.  I don't know if that's bad or
good but I kind of believe it's good that her cells respond so much
to this giving her a mnore suppression rather than less or even
none, which I hear could be tougher to keep things in check etc...
but I don't know, I guess I am looking for silver linings
everywhere, we just returned home from the hospital because of her
first fever/cold symptoms since she started treatment, we have been
>  lucky thus far, heard stories about kids who routinely have
fevers get sick and are in and out every couple of weeks so August
until now seems like a good run without having this happen.  how
long ago was your son diagnosed?  how's his appetite, Jenny's runs
hot and cold sometimes she wil eat great and then go cold, nothing
sounds good, the clinic nurse says that's typical chem kids, and the
hospital nurse said when ever the kids on our wing want to eat
anything they make the caffeteria fix it any time of day.  hope this
is the info you are looking for, it seems like all I read about on
the net is when kids have tougher times, I would like to hear about
the ones that get through it and are doing great too.  Hope your son
is doing good, I look and read anything I can on the web and it
sounds like there is always alternatives and options, but it's
difficult not to worry, it is so scary for us some days are harder
than others but you do what you have to do.
>
>
> Thanks and I can't wait to hear back form you,
> Rob
>
> subl34 <subl34@y...> wrote:
>
> Hello Rob. I'm new here. My son is now 9 years old and also has T-
> cell ALL... Can you tell me if your daughter is low risk All or
> what? Has she ever had white blood cells show up in her spinal
taps
> or is that all clear? In other words can you give me some back
> ground information.
>
> Thanks Shell
>
> --- In survivingleukemiatogether@yahoogroups.com, our fun
> <ourfunstl@y...> wrote:
> > Hi,
> > My Daughter is nine years old and last August she was diagnosed
> with T-cell ALL and I too wish to be in contact with survivors for
> same reasons, peace of mind that there is hope and a future.  so
if
> you do not mind adding us to your list when you hear from
> survivors.  My daughter is doing good and we are done with
hospital
> chemo treatments and now just at clinic fro treatments.
> > Thanks Gail
> >
> > Rob Stock
> >
> > GAIL HACHEY <ghachey456@r...> wrote:
> > Hello, my name is Gail, My eight yr old grandaughter was
diagnosed
> with ALL when she was about 18 mnths old, When first discovered
the
> doctors told us, if we didn't discover it when we did we would
have
> lost her with in two wks, She was rushed directly from the credit
> valley hospital in mississauga, ontario, to the toronto hospital
for
> sick children where she had an immediate blood transfusioin, she
> remained in the hospital for six wks where they put her on the
most
> aggressive chemo (the highest protocol) they could put a child at
> her age on, she never required a bone marrow transplant or
> radiation, but had to return to the hospital for continuing
> treatment of chemo and blood work including lombard puntures. She
> has been in remission for three yrs now, and the doctors tell us
if
> she remains in remission for a total of seven yrs she will be
> considered cured. I guess what I'm looking for is confirmation of
an
> adult survivor who has had A.L.L as a child, survived and grew up
to
> marry
> > and have children, and lived happily ever after. Cancer is a
well
> known desease in my family, it seems to run through my family like
> water, My mother died of breast cancer, My father then died nine
> months later of cancer of the pancreas. My sister Mary had a
> hystorectomy due to cancer when she was 30yrs old then a partial
> masectomy at around 45yrs of age, (she is now 51) and still is in
> alot of pain being tested to see if there is any cancer in her
bones
> two of my other sister an myself had a D & C and caughtery cause
we
> had the cells that turn into cancer but what caught on time. and
so
> far are cancer free, I also had an uncle (my mothers brother) who
> had  got A.L. L. and had passed away, at the age of 51. But I
guess
> the real reason I'm here is or confirmation, that my grandaughter
> will grow up to live a happy normal life, and maybe have children
of
> her own if she wishes to do so. So if there are any adults out
there
> that have survived A.L.L as a child I would love to hear from
> > you. And if there is any one in need of a little hope cause they
> just found out that their child has A.L.L. I have a beautiful blue
> eyed blonde eight yr old grandaughter as living proof, that things
> do get better.
> > thanks for being there
> > love hugs kisses and hope
> > gail
> >
> >
> >
> >
> >
> > GAIL
> >
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > ---------------------------------
> > Yahoo! Groups Links
> >
> >    To visit your group on the web, go to:
> > http://groups.yahoo.com/group/survivingleukemiatogether/
> >
> >    To unsubscribe from this group, send an email to:
> > survivingleukemiatogether-unsubscribe@yahoogroups.com
> >
> >    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
> >
> >
> >
> > ---------------------------------
> > Do you Yahoo!?
> >  Yahoo! Mail - You care about security. So do we.
> >
> > [Non-text portions of this message have been removed]
>
>
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/survivingleukemiatogether/
>
>    To unsubscribe from this group, send an email to:
> survivingleukemiatogether-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
>  Yahoo! Search presents - Jib Jab's 'Second Term'
>
> [Non-text portions of this message have been removed]





---------------------------------
Yahoo! Groups Links

    To visit your group on the web, go to:
http://groups.yahoo.com/group/survivingleukemiatogether/

    To unsubscribe from this group, send an email to:
survivingleukemiatogether-unsubscribe@yahoogroups.com

    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

[Non-text portions of this message have been removed]

Well from what I read it really sounds like she is doing a wonderful
job. That the chemo is working and doing what it should, and I can't
tell you how happy I am for you.

Most of the kids that got sick the same time my son ( 1999 ) did
with ALL are doing fine and have no signs of being sick again. It
really does sound like she is doing really well with the treatment
from everything said. When they do a spinal tap do they put
Vincristin ( spelling ) Or methotrexates in her spin even though she
doesn't have the leukemia in her nervuse ststem?

As far as it taking longer then you wanted to get the Methotrexate
out of her system is okay. It all comes down to how well she is
drinking or how much fluid she is getting, so it flushes out her
system. Some times my son would have it hanging around for longer
then I thought it should be, other times he was right on target. The
doctors told me it has to do with how hydrated ( spelling again ) he
was before it started chemo during the chemo.

As far as the Radtiation some hosptials believe that chemo and
radaition are the best way to go. Some think just chemo is the way
to go. Radiation is very hard on the body with a lot of side afects.
Some say it gives kids learning problems and so forth. I can give
you more info on that if that is a road you might be taking.

As far as her cold. I was one of the lucky ones. My son never really
seem to have a problem when he got one. Sure I freaked out, but he
always did fine. I think it depends on how weak the body is before
you get one that matters.

I wouldn't worry about her eatting some times and other times not.
The chemo will make all the foods she loved teast funny. Do you have
to watch what she eats? Such as not eatting fruits that can't be
peeled and such?

I'm not going to tell you to much about my son, because I don't want
you to become scared or lose hope. Hope is everything and it gets
you through the hardest times. I'll only say that His is bad and he
has relapesed two times, and just had his second bone marrow
transplant. The first one didn't work. There where not enought donor
cells so it didn't take. That is a very long story in it's self. The
second one so far is good, and as every mother hopes all will be
well. It just takes time and that is the hardest part isn't!

Well I should be going. God Bless you and your family. I'll be
thinking of you and saying a pray..

Shell

--- In survivingleukemiatogether@yahoogroups.com, our fun
<ourfunstl@y...> wrote:
> Hi,
> Very nice to hear from you, as far as her risks I wish I could sya
more however the Doctors told us that they consider her standard
risk, it was never  found in cns her blood stream at the start of
treatment showed 5 % blasts and her bone marrow showed 95 % leukemic
cells, after one day the blast went to zero and at 7 days her marrow
went to 5 % and then to zero 14 -18 days later I think, just so much
to remember.  she hasn't received cranial radiation yet, whe has
been slow in clearing the high dose methotrexates and kind of three
to five weeks delayed on the roadmap.  I don't know if that's bad or
good but I kind of believe it's good that her cells respond so much
to this giving her a mnore suppression rather than less or even
none, which I hear could be tougher to keep things in check etc...
but I don't know, I guess I am looking for silver linings
everywhere, we just returned home from the hospital because of her
first fever/cold symptoms since she started treatment, we have been
>  lucky thus far, heard stories about kids who routinely have
fevers get sick and are in and out every couple of weeks so August
until now seems like a good run without having this happen.  how
long ago was your son diagnosed?  how's his appetite, Jenny's runs
hot and cold sometimes she wil eat great and then go cold, nothing
sounds good, the clinic nurse says that's typical chem kids, and the
hospital nurse said when ever the kids on our wing want to eat
anything they make the caffeteria fix it any time of day.  hope this
is the info you are looking for, it seems like all I read about on
the net is when kids have tougher times, I would like to hear about
the ones that get through it and are doing great too.  Hope your son
is doing good, I look and read anything I can on the web and it
sounds like there is always alternatives and options, but it's
difficult not to worry, it is so scary for us some days are harder
than others but you do what you have to do.
>
>
> Thanks and I can't wait to hear back form you,
> Rob
>
> subl34 <subl34@y...> wrote:
>
> Hello Rob. I'm new here. My son is now 9 years old and also has T-
> cell ALL... Can you tell me if your daughter is low risk All or
> what? Has she ever had white blood cells show up in her spinal
taps
> or is that all clear? In other words can you give me some back
> ground information.
>
> Thanks Shell
>
> --- In survivingleukemiatogether@yahoogroups.com, our fun
> <ourfunstl@y...> wrote:
> > Hi,
> > My Daughter is nine years old and last August she was diagnosed
> with T-cell ALL and I too wish to be in contact with survivors for
> same reasons, peace of mind that there is hope and a future.  so
if
> you do not mind adding us to your list when you hear from
> survivors.  My daughter is doing good and we are done with
hospital
> chemo treatments and now just at clinic fro treatments.
> > Thanks Gail
> >
> > Rob Stock
> >
> > GAIL HACHEY <ghachey456@r...> wrote:
> > Hello, my name is Gail, My eight yr old grandaughter was
diagnosed
> with ALL when she was about 18 mnths old, When first discovered
the
> doctors told us, if we didn't discover it when we did we would
have
> lost her with in two wks, She was rushed directly from the credit
> valley hospital in mississauga, ontario, to the toronto hospital
for
> sick children where she had an immediate blood transfusioin, she
> remained in the hospital for six wks where they put her on the
most
> aggressive chemo (the highest protocol) they could put a child at
> her age on, she never required a bone marrow transplant or
> radiation, but had to return to the hospital for continuing
> treatment of chemo and blood work including lombard puntures. She
> has been in remission for three yrs now, and the doctors tell us
if
> she remains in remission for a total of seven yrs she will be
> considered cured. I guess what I'm looking for is confirmation of
an
> adult survivor who has had A.L.L as a child, survived and grew up
to
> marry
> > and have children, and lived happily ever after. Cancer is a
well
> known desease in my family, it seems to run through my family like
> water, My mother died of breast cancer, My father then died nine
> months later of cancer of the pancreas. My sister Mary had a
> hystorectomy due to cancer when she was 30yrs old then a partial
> masectomy at around 45yrs of age, (she is now 51) and still is in
> alot of pain being tested to see if there is any cancer in her
bones
> two of my other sister an myself had a D & C and caughtery cause
we
> had the cells that turn into cancer but what caught on time. and
so
> far are cancer free, I also had an uncle (my mothers brother) who
> had  got A.L. L. and had passed away, at the age of 51. But I
guess
> the real reason I'm here is or confirmation, that my grandaughter
> will grow up to live a happy normal life, and maybe have children
of
> her own if she wishes to do so. So if there are any adults out
there
> that have survived A.L.L as a child I would love to hear from
> > you. And if there is any one in need of a little hope cause they
> just found out that their child has A.L.L. I have a beautiful blue
> eyed blonde eight yr old grandaughter as living proof, that things
> do get better.
> > thanks for being there
> > love hugs kisses and hope
> > gail
> >
> >
> >
> >
> >
> > GAIL
> >
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > ---------------------------------
> > Yahoo! Groups Links
> >
> >    To visit your group on the web, go to:
> > http://groups.yahoo.com/group/survivingleukemiatogether/
> >
> >    To unsubscribe from this group, send an email to:
> > survivingleukemiatogether-unsubscribe@yahoogroups.com
> >
> >    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
> >
> >
> >
> > ---------------------------------
> > Do you Yahoo!?
> >  Yahoo! Mail - You care about security. So do we.
> >
> > [Non-text portions of this message have been removed]
>
>
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/survivingleukemiatogether/
>
>    To unsubscribe from this group, send an email to:
> survivingleukemiatogether-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
>  Yahoo! Search presents - Jib Jab's 'Second Term'
>
> [Non-text portions of this message have been removed]

Hi,
Very nice to hear from you, as far as her risks I wish I could sya more however
the Doctors told us that they consider her standard risk, it was never  found in
cns her blood stream at the start of treatment showed 5 % blasts and her bone
marrow showed 95 % leukemic cells, after one day the blast went to zero and at 7
days her marrow went to 5 % and then to zero 14 -18 days later I think, just so
much to remember.  she hasn't received cranial radiation yet, whe has been slow
in clearing the high dose methotrexates and kind of three to five weeks delayed
on the roadmap.  I don't know if that's bad or good but I kind of believe it's
good that her cells respond so much to this giving her a mnore suppression
rather than less or even none, which I hear could be tougher to keep things in
check etc... but I don't know, I guess I am looking for silver linings
everywhere, we just returned home from the hospital because of her first
fever/cold symptoms since she started treatment, we have been
  lucky thus far, heard stories about kids who routinely have fevers get sick and
are in and out every couple of weeks so August until now seems like a good run
without having this happen.  how long ago was your son diagnosed?  how's his
appetite, Jenny's runs hot and cold sometimes she wil eat great and then go
cold, nothing sounds good, the clinic nurse says that's typical chem kids, and
the hospital nurse said when ever the kids on our wing want to eat anything they
make the caffeteria fix it any time of day.  hope this is the info you are
looking for, it seems like all I read about on the net is when kids have tougher
times, I would like to hear about the ones that get through it and are doing
great too.  Hope your son is doing good, I look and read anything I can on the
web and it sounds like there is always alternatives and options, but it's
difficult not to worry, it is so scary for us some days are harder than others
but you do what you have to do.


Thanks and I can't wait to hear back form you,
Rob

subl34 <subl34@...> wrote:

Hello Rob. I'm new here. My son is now 9 years old and also has T-
cell ALL... Can you tell me if your daughter is low risk All or
what? Has she ever had white blood cells show up in her spinal taps
or is that all clear? In other words can you give me some back
ground information.

Thanks Shell

--- In survivingleukemiatogether@yahoogroups.com, our fun
<ourfunstl@y...> wrote:
> Hi,
> My Daughter is nine years old and last August she was diagnosed
with T-cell ALL and I too wish to be in contact with survivors for
same reasons, peace of mind that there is hope and a future.  so if
you do not mind adding us to your list when you hear from
survivors.  My daughter is doing good and we are done with hospital
chemo treatments and now just at clinic fro treatments.
> Thanks Gail
>
> Rob Stock
>
> GAIL HACHEY <ghachey456@r...> wrote:
> Hello, my name is Gail, My eight yr old grandaughter was diagnosed
with ALL when she was about 18 mnths old, When first discovered the
doctors told us, if we didn't discover it when we did we would have
lost her with in two wks, She was rushed directly from the credit
valley hospital in mississauga, ontario, to the toronto hospital for
sick children where she had an immediate blood transfusioin, she
remained in the hospital for six wks where they put her on the most
aggressive chemo (the highest protocol) they could put a child at
her age on, she never required a bone marrow transplant or
radiation, but had to return to the hospital for continuing
treatment of chemo and blood work including lombard puntures. She
has been in remission for three yrs now, and the doctors tell us if
she remains in remission for a total of seven yrs she will be
considered cured. I guess what I'm looking for is confirmation of an
adult survivor who has had A.L.L as a child, survived and grew up to
marry
> and have children, and lived happily ever after. Cancer is a well
known desease in my family, it seems to run through my family like
water, My mother died of breast cancer, My father then died nine
months later of cancer of the pancreas. My sister Mary had a
hystorectomy due to cancer when she was 30yrs old then a partial
masectomy at around 45yrs of age, (she is now 51) and still is in
alot of pain being tested to see if there is any cancer in her bones
two of my other sister an myself had a D & C and caughtery cause we
had the cells that turn into cancer but what caught on time. and so
far are cancer free, I also had an uncle (my mothers brother) who
had  got A.L. L. and had passed away, at the age of 51. But I guess
the real reason I'm here is or confirmation, that my grandaughter
will grow up to live a happy normal life, and maybe have children of
her own if she wishes to do so. So if there are any adults out there
that have survived A.L.L as a child I would love to hear from
> you. And if there is any one in need of a little hope cause they
just found out that their child has A.L.L. I have a beautiful blue
eyed blonde eight yr old grandaughter as living proof, that things
do get better.
> thanks for being there
> love hugs kisses and hope
> gail
>
>
>
>
>
> GAIL
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/survivingleukemiatogether/
>
>    To unsubscribe from this group, send an email to:
> survivingleukemiatogether-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
>  Yahoo! Mail - You care about security. So do we.
>
> [Non-text portions of this message have been removed]





---------------------------------
Yahoo! Groups Links

    To visit your group on the web, go to:
http://groups.yahoo.com/group/survivingleukemiatogether/

    To unsubscribe from this group, send an email to:
survivingleukemiatogether-unsubscribe@yahoogroups.com

    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
Do you Yahoo!?
  Yahoo! Search presents - Jib Jab's 'Second Term'

[Non-text portions of this message have been removed]

Hello Marlene

Although my son is only 9 years old I have seen a lot and may be
able to help you with any questions you might have. He has gone
through two bone marrow transplants and such and we have met a lot
of wonderful people a long the way. My son's age or older. So please
feel free to ask any questions you might have and I'll do my best to
answer them..

Shell New memeber

--- In survivingleukemiatogether@yahoogroups.com, "Marc (30)& Marlene
(28)" <imaginethat1976@y...> wrote:
> hi My name is Marlene and my fiance Marc was just recently
diagnosed
> with all 2 weeks ago. he is 30 yrs old. He is still in the
hospital
> doing chemo and so far is handling it pretty good. He and I talked
> and decided that a group like this would be a good idea. I am
trying
> to find others who have this and are about his age that have gone
> throug remission already or have had a transplant or basically
> anything it would just be comforting to talk to someone else who
> isn't afraid to tell us the ups and downs that they have
> expierienced. we are in Philadelphia Pennsylvania but email is
world
> wide. can anyone offer some advice???
>                                                   Marlene

Hello Rob. I'm new here. My son is now 9 years old and also has T-
cell ALL... Can you tell me if your daughter is low risk All or
what? Has she ever had white blood cells show up in her spinal taps
or is that all clear? In other words can you give me some back
ground information.

Thanks Shell

--- In survivingleukemiatogether@yahoogroups.com, our fun
<ourfunstl@y...> wrote:
> Hi,
> My Daughter is nine years old and last August she was diagnosed
with T-cell ALL and I too wish to be in contact with survivors for
same reasons, peace of mind that there is hope and a future.  so if
you do not mind adding us to your list when you hear from
survivors.  My daughter is doing good and we are done with hospital
chemo treatments and now just at clinic fro treatments.
> Thanks Gail
>
> Rob Stock
>
> GAIL HACHEY <ghachey456@r...> wrote:
> Hello, my name is Gail, My eight yr old grandaughter was diagnosed
with ALL when she was about 18 mnths old, When first discovered the
doctors told us, if we didn't discover it when we did we would have
lost her with in two wks, She was rushed directly from the credit
valley hospital in mississauga, ontario, to the toronto hospital for
sick children where she had an immediate blood transfusioin, she
remained in the hospital for six wks where they put her on the most
aggressive chemo (the highest protocol) they could put a child at
her age on, she never required a bone marrow transplant or
radiation, but had to return to the hospital for continuing
treatment of chemo and blood work including lombard puntures. She
has been in remission for three yrs now, and the doctors tell us if
she remains in remission for a total of seven yrs she will be
considered cured. I guess what I'm looking for is confirmation of an
adult survivor who has had A.L.L as a child, survived and grew up to
marry
> and have children, and lived happily ever after. Cancer is a well
known desease in my family, it seems to run through my family like
water, My mother died of breast cancer, My father then died nine
months later of cancer of the pancreas. My sister Mary had a
hystorectomy due to cancer when she was 30yrs old then a partial
masectomy at around 45yrs of age, (she is now 51) and still is in
alot of pain being tested to see if there is any cancer in her bones
two of my other sister an myself had a D & C and caughtery cause we
had the cells that turn into cancer but what caught on time. and so
far are cancer free, I also had an uncle (my mothers brother) who
had  got A.L. L. and had passed away, at the age of 51. But I guess
the real reason I'm here is or confirmation, that my grandaughter
will grow up to live a happy normal life, and maybe have children of
her own if she wishes to do so. So if there are any adults out there
that have survived A.L.L as a child I would love to hear from
> you. And if there is any one in need of a little hope cause they
just found out that their child has A.L.L. I have a beautiful blue
eyed blonde eight yr old grandaughter as living proof, that things
do get better.
> thanks for being there
> love hugs kisses and hope
> gail
>
>
>
>
>
> GAIL
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/survivingleukemiatogether/
>
>    To unsubscribe from this group, send an email to:
> survivingleukemiatogether-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
>  Yahoo! Mail - You care about security. So do we.
>
> [Non-text portions of this message have been removed]

Hello sorry I havent been here for awhile but I know alot of you
already have my sister Gloria's website, sister was doing great up
until she hit her 100 days then she started getting dry mouth really
really bad, and so what she found out is that she has GVHD of the
mouth and possibly of the liver she goes tomorrow for a biopsy of the
liver to determine such. Here is Gloria's post for today :::

I just got back from my weekly clinic appt at Karmanos.
If you remember from last Thursdays post, I was telling of how they
believe I may have GVHD of the Liver.
My labs weren't too good today, they showed that my liver enzymes are
up 10% from last week.
I was so hoping and praying that it had gotten better.
Now the plan of action is I'm going in for a Liver biopsy tommorrow
morning so they can rule out if it is in fact GVHD. If it's not, it
could be damage due to the chemotherapy or some type of toxicity due
to all the meds I'm on. I'm trying to stay positive thru prayer,
knowing that ultimately I am in God's hands. Please continue to
remember me in your prayers as I remember you in mine.

Let's all remember to keep Hope and Faith...

Love Gloria

Please keep my sister in your prayers as she continues with her
journey and also please send her some encouraging love to her guest
book she really needs some, thank you..
http://www2.caringbridge.org/mi/gloriadunford/

love & hugs to all, Mary - Gloria's baby sister

Hi,
My Daughter is nine years old and last August she was diagnosed with T-cell ALL
and I too wish to be in contact with survivors for same reasons, peace of mind
that there is hope and a future.  so if you do not mind adding us to your list
when you hear from survivors.  My daughter is doing good and we are done with
hospital chemo treatments and now just at clinic fro treatments.
Thanks Gail

Rob Stock

GAIL HACHEY <ghachey456@...> wrote:
Hello, my name is Gail, My eight yr old grandaughter was diagnosed with ALL when
she was about 18 mnths old, When first discovered the doctors told us, if we
didn't discover it when we did we would have lost her with in two wks, She was
rushed directly from the credit valley hospital in mississauga, ontario, to the
toronto hospital for sick children where she had an immediate blood
transfusioin, she remained in the hospital for six wks where they put her on the
most aggressive chemo (the highest protocol) they could put a child at her age
on, she never required a bone marrow transplant or radiation, but had to return
to the hospital for continuing treatment of chemo and blood work including
lombard puntures. She has been in remission for three yrs now, and the doctors
tell us if she remains in remission for a total of seven yrs she will be
considered cured. I guess what I'm looking for is confirmation of an adult
survivor who has had A.L.L as a child, survived and grew up to marry
and have children, and lived happily ever after. Cancer is a well known desease
in my family, it seems to run through my family like water, My mother died of
breast cancer, My father then died nine months later of cancer of the pancreas.
My sister Mary had a hystorectomy due to cancer when she was 30yrs old then a
partial masectomy at around 45yrs of age, (she is now 51) and still is in alot
of pain being tested to see if there is any cancer in her bones two of my other
sister an myself had a D & C and caughtery cause we had the cells that turn into
cancer but what caught on time. and so far are cancer free, I also had an uncle
(my mothers brother) who had  got A.L. L. and had passed away, at the age of 51.
But I guess the real reason I'm here is or confirmation, that my grandaughter
will grow up to live a happy normal life, and maybe have children of her own if
she wishes to do so. So if there are any adults out there that have survived
A.L.L as a child I would love to hear from
you. And if there is any one in need of a little hope cause they just found out
that their child has A.L.L. I have a beautiful blue eyed blonde eight yr old
grandaughter as living proof, that things do get better.
thanks for being there
love hugs kisses and hope
gail





GAIL








[Non-text portions of this message have been removed]



---------------------------------
Yahoo! Groups Links

    To visit your group on the web, go to:
http://groups.yahoo.com/group/survivingleukemiatogether/

    To unsubscribe from this group, send an email to:
survivingleukemiatogether-unsubscribe@yahoogroups.com

    Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
Do you Yahoo!?
  Yahoo! Mail - You care about security. So do we.

[Non-text portions of this message have been removed]

I would like to share with you an auction on eBay which is VERY near
and dear to my heart!  I am running a half marathon and would like
to do so in Honor of or Loving Memory of someone striken with
leukemia, lymphoma, Hodgkin's disease, myeloma, and other blood
cancers.

If anyone is interested and has a loved one who has battled this
horrible disease, I would love to hear from you...it helps me push
through this training!  Your stories give me REASON!

PLEASE take a moment to help support an AWESOME cause and give me
the chance to fight my personal battle to run 13.1 miles so I can
help others who are fighting every day for their lives!!!

PLEASE VISIT:
http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=5551112027

Please take a look and pass this along, I am really hoping to get as
MANY hits on this auction as possible.  It is a charity auction to
raise money for the Leukemia & Lymphoma Sociey...Please take a
moment to make a difference!

Kicking Cancer in the Asphalt!!

Lisa
Team in Training 2005

************************************

Hello, my name is Gail, My eight yr old grandaughter was diagnosed with ALL when
she was about 18 mnths old, When first discovered the doctors told us, if we
didn't discover it when we did we would have lost her with in two wks, She was
rushed directly from the credit valley hospital in mississauga, ontario, to the
toronto hospital for sick children where she had an immediate blood
transfusioin, she remained in the hospital for six wks where they put her on the
most aggressive chemo (the highest protocol) they could put a child at her age
on, she never required a bone marrow transplant or radiation, but had to return
to the hospital for continuing treatment of chemo and blood work including
lombard puntures. She has been in remission for three yrs now, and the doctors
tell us if she remains in remission for a total of seven yrs she will be
considered cured. I guess what I'm looking for is confirmation of an adult
survivor who has had A.L.L as a child, survived and grew up to marry
  and have children, and lived happily ever after. Cancer is a well known desease
in my family, it seems to run through my family like water, My mother died of
breast cancer, My father then died nine months later of cancer of the pancreas.
My sister Mary had a hystorectomy due to cancer when she was 30yrs old then a
partial masectomy at around 45yrs of age, (she is now 51) and still is in alot
of pain being tested to see if there is any cancer in her bones two of my other
sister an myself had a D & C and caughtery cause we had the cells that turn into
cancer but what caught on time. and so far are cancer free, I also had an uncle
(my mothers brother) who had  got A.L. L. and had passed away, at the age of 51.
But I guess the real reason I'm here is or confirmation, that my grandaughter
will grow up to live a happy normal life, and maybe have children of her own if
she wishes to do so. So if there are any adults out there that have survived
A.L.L as a child I would love to hear from
  you. And if there is any one in need of a little hope cause they just found out
that their child has A.L.L. I have a beautiful blue eyed blonde eight yr old
grandaughter as living proof, that things do get better.
thanks for being there
love hugs kisses and hope
gail





  GAIL








[Non-text portions of this message have been removed]

I have never seen anything catch on quicker than this program. All I
am hearing about at relatives homes, work, all over the internet and
now on television is the program at http://www.wrldofproduct.com
Being a professional researcher I decided to do some homework and
find out about this program and behind the scenes of this program.
The company who is a registered business since 1983 has been
developing programs to assist people in saving money in all aspects
of their life for the past 12 years. Paypal has reviewed their
documents and offers a guarantee for their products. Evidentally the
company has developed/refined the programs that they have been
researching and have come up with what is supposed to be the all
inclusive savings program which allows you to make drastic savings
with your grocery orders (between 60% - 70%) and earn free
restaurant gift certificates as well. I aslo checked them out with
the BBB where dating back to the beginning they have only had 3
complaints filed and all three of those complaints were immediately
resolved to the customers satisfaction. It appears that the company
has served in excess of 165,000 customers over that stretch of time.
So I decided to join and check the program out and this is how I
realized why this thing is spreading like fire. It took about 7 days
for me to receive my sampler package in the mail and ever since
becomming a member some 4 months ago, I have been saving more money
at the supermarket than I could have ever imagined. I am literally
paying pennies on the dollar for everything. This certainly is the
most effective program I have ever researched!