Well i pray that all will work out with you and my pain tolerence is
zero lol so i will take all the meds i can get thanks for all the info
i really appericate it today i am so very tired all i want to do is sleep
kersten
--- In survivingleukemiatogether@yahoogroups.com, Linda Jitmoud
<writermom6@...> wrote:
>
> Hi Kersten,
>
> I have chronic lymphocytic leukemia (CLL). I'm very chemically
sensitive, so I asked for as little anesthetic as possible. They put
some lidocaine on the spot, and gave me a little more during the
procedure. I've always had a high pain tolerance. If you don't have
any sensitivities/allergies, then you can go for something stronger.
>
> I don't want to have chemotherapy because of my chemical
sensitivities. I normally cannot take regular antibiotics, etc,, so I
am very sensitive. I'm investigating alternative treatments. Today I
attended a Body Mind Spirit Expo to get some ideas of what's out there
and what might work for me. The Cancer Center of America offers both
traditional and alternative treatments. There's a center close to me,
and I plan to check them out very soon.
>
> I was diagnosed very late, and they say I'm already at a Stage
Three. Originally, the doctor said they wouldn't even think about
chemotherapy for at least five years. Now she's saying sometime in
the next year or so. I'm working hard on finding alternatives so that
next I go to see her, I can say "absolutely not," and say it with
confidence.
>
> If your diagnosis comes back positive, you may want to check out
the Fred Hutchinson Cancer Center in Seattle. I went on their website
and found that they're doing transplants for CLL--which my doctor said
hadn't been done yet!
>
> I'm hopeful. I consider this to be just another test on the road
of life.
>
> Linda
>
>
>
> gaspergoo2000 <gaspergoo2000@...> wrote:
>
> Thanks for the relpy my blood levels are all off and have been for
> some time what type of lukemia do oyu h ave and what treatment are you
> getting? for you bone marrow did u have a iv twilight sleep?
>
>
>
> kersten
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> --- In survivingleukemiatogether@yahoogroups.com, Linda Jitmoud
> <writermom6@> wrote:
> >
> > Hi Kersten,
> >
> > My symptoms were fatigue and inability to "bounce back" from the
> flu. That's why I went to the doctor. The diagnosis took me
> completely by surprise. And the doctor tells me I've probably had it
> for ten years!
> >
> > When you go for the bone marrow biopsy, take someone with you. My
> husband was there to hold my hand, and that helped a lot. Of course,
> my experience was very unusual--it took several tries to get a sample.
> You'll be relieved to know that the doctor said that was the first
> time she'd had so much difficulty. Still, it's always good to have
> someone with you when you go for medical tests and procedures.
> >
> > Good luck. And if the diagnosis does come back as leukemia, it's
> shocking but it's not necessarily the end. It just means another big
> change in your life.
> >
> > Linda
> >
> > gaspergoo2000 <gaspergoo2000@> wrote:
> > I am new here and need some advice my dr thinks that i have lukemia
> > not sure which but i am scared none the less i go in for my bone
> > marrow biopsy on fri 17 what are symptoms that i should look for
> >
> >
> > kersten
> >
> >
> >
> >
> >
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