Hi Kersten,

I have chronic lymphocytic leukemia (CLL). I'm very chemically sensitive, so
I asked for as little anesthetic as possible. They put some lidocaine on the
spot, and gave me a little more during the procedure. I've always had a high
pain tolerance. If you don't have any sensitivities/allergies, then you can go
for something stronger.

I don't want to have chemotherapy because of my chemical sensitivities. I
normally cannot take regular antibiotics, etc,, so I am very sensitive. I'm
investigating alternative treatments. Today I attended a Body Mind Spirit Expo
to get some ideas of what's out there and what might work for me. The Cancer
Center of America offers both traditional and alternative treatments. There's a
center close to me, and I plan to check them out very soon.

I was diagnosed very late, and they say I'm already at a Stage Three.
Originally, the doctor said they wouldn't even think about chemotherapy for at
least five years. Now she's saying sometime in the next year or so. I'm
working hard on finding alternatives so that next I go to see her, I can say
"absolutely not," and say it with confidence.

If your diagnosis comes back positive, you may want to check out the Fred
Hutchinson Cancer Center in Seattle. I went on their website and found that
they're doing transplants for CLL--which my doctor said hadn't been done yet!

I'm hopeful. I consider this to be just another test on the road of life.

Linda



gaspergoo2000 <gaspergoo2000@...> wrote:

Thanks for the relpy my blood levels are all off and have been for
some time what type of lukemia do oyu h ave and what treatment are you
getting? for you bone marrow did u have a iv twilight sleep?



kersten

















--- In survivingleukemiatogether@yahoogroups.com, Linda Jitmoud
<writermom6@...> wrote:
>
> Hi Kersten,
>
> My symptoms were fatigue and inability to "bounce back" from the
flu. That's why I went to the doctor. The diagnosis took me
completely by surprise. And the doctor tells me I've probably had it
for ten years!
>
> When you go for the bone marrow biopsy, take someone with you. My
husband was there to hold my hand, and that helped a lot. Of course,
my experience was very unusual--it took several tries to get a sample.
You'll be relieved to know that the doctor said that was the first
time she'd had so much difficulty. Still, it's always good to have
someone with you when you go for medical tests and procedures.
>
> Good luck. And if the diagnosis does come back as leukemia, it's
shocking but it's not necessarily the end. It just means another big
change in your life.
>
> Linda
>
> gaspergoo2000 <gaspergoo2000@...> wrote:
> I am new here and need some advice my dr thinks that i have lukemia
> not sure which but i am scared none the less i go in for my bone
> marrow biopsy on fri 17 what are symptoms that i should look for
>
>
> kersten
>
>
>
>
>
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