Well from what I read it really sounds like she is doing a wonderful
job. That the chemo is working and doing what it should, and I can't
tell you how happy I am for you.

Most of the kids that got sick the same time my son ( 1999 ) did
with ALL are doing fine and have no signs of being sick again. It
really does sound like she is doing really well with the treatment
from everything said. When they do a spinal tap do they put
Vincristin ( spelling ) Or methotrexates in her spin even though she
doesn't have the leukemia in her nervuse ststem?

As far as it taking longer then you wanted to get the Methotrexate
out of her system is okay. It all comes down to how well she is
drinking or how much fluid she is getting, so it flushes out her
system. Some times my son would have it hanging around for longer
then I thought it should be, other times he was right on target. The
doctors told me it has to do with how hydrated ( spelling again ) he
was before it started chemo during the chemo.

As far as the Radtiation some hosptials believe that chemo and
radaition are the best way to go. Some think just chemo is the way
to go. Radiation is very hard on the body with a lot of side afects.
Some say it gives kids learning problems and so forth. I can give
you more info on that if that is a road you might be taking.

As far as her cold. I was one of the lucky ones. My son never really
seem to have a problem when he got one. Sure I freaked out, but he
always did fine. I think it depends on how weak the body is before
you get one that matters.

I wouldn't worry about her eatting some times and other times not.
The chemo will make all the foods she loved teast funny. Do you have
to watch what she eats? Such as not eatting fruits that can't be
peeled and such?

I'm not going to tell you to much about my son, because I don't want
you to become scared or lose hope. Hope is everything and it gets
you through the hardest times. I'll only say that His is bad and he
has relapesed two times, and just had his second bone marrow
transplant. The first one didn't work. There where not enought donor
cells so it didn't take. That is a very long story in it's self. The
second one so far is good, and as every mother hopes all will be
well. It just takes time and that is the hardest part isn't!

Well I should be going. God Bless you and your family. I'll be
thinking of you and saying a pray..

Shell

--- In survivingleukemiatogether@yahoogroups.com, our fun
<ourfunstl@y...> wrote:
> Hi,
> Very nice to hear from you, as far as her risks I wish I could sya
more however the Doctors told us that they consider her standard
risk, it was never found in cns her blood stream at the start of
treatment showed 5 % blasts and her bone marrow showed 95 % leukemic
cells, after one day the blast went to zero and at 7 days her marrow
went to 5 % and then to zero 14 -18 days later I think, just so much
to remember. she hasn't received cranial radiation yet, whe has
been slow in clearing the high dose methotrexates and kind of three
to five weeks delayed on the roadmap. I don't know if that's bad or
good but I kind of believe it's good that her cells respond so much
to this giving her a mnore suppression rather than less or even
none, which I hear could be tougher to keep things in check etc...
but I don't know, I guess I am looking for silver linings
everywhere, we just returned home from the hospital because of her
first fever/cold symptoms since she started treatment, we have been
> lucky thus far, heard stories about kids who routinely have
fevers get sick and are in and out every couple of weeks so August
until now seems like a good run without having this happen. how
long ago was your son diagnosed? how's his appetite, Jenny's runs
hot and cold sometimes she wil eat great and then go cold, nothing
sounds good, the clinic nurse says that's typical chem kids, and the
hospital nurse said when ever the kids on our wing want to eat
anything they make the caffeteria fix it any time of day. hope this
is the info you are looking for, it seems like all I read about on
the net is when kids have tougher times, I would like to hear about
the ones that get through it and are doing great too. Hope your son
is doing good, I look and read anything I can on the web and it
sounds like there is always alternatives and options, but it's
difficult not to worry, it is so scary for us some days are harder
than others but you do what you have to do.
>
>
> Thanks and I can't wait to hear back form you,
> Rob
>
> subl34 <subl34@y...> wrote:
>
> Hello Rob. I'm new here. My son is now 9 years old and also has T-
> cell ALL... Can you tell me if your daughter is low risk All or
> what? Has she ever had white blood cells show up in her spinal
taps
> or is that all clear? In other words can you give me some back
> ground information.
>
> Thanks Shell
>
> --- In survivingleukemiatogether@yahoogroups.com, our fun
> <ourfunstl@y...> wrote:
> > Hi,
> > My Daughter is nine years old and last August she was diagnosed
> with T-cell ALL and I too wish to be in contact with survivors for
> same reasons, peace of mind that there is hope and a future. so
if
> you do not mind adding us to your list when you hear from
> survivors. My daughter is doing good and we are done with
hospital
> chemo treatments and now just at clinic fro treatments.
> > Thanks Gail
> >
> > Rob Stock
> >
> > GAIL HACHEY <ghachey456@r...> wrote:
> > Hello, my name is Gail, My eight yr old grandaughter was
diagnosed
> with ALL when she was about 18 mnths old, When first discovered
the
> doctors told us, if we didn't discover it when we did we would
have
> lost her with in two wks, She was rushed directly from the credit
> valley hospital in mississauga, ontario, to the toronto hospital
for
> sick children where she had an immediate blood transfusioin, she
> remained in the hospital for six wks where they put her on the
most
> aggressive chemo (the highest protocol) they could put a child at
> her age on, she never required a bone marrow transplant or
> radiation, but had to return to the hospital for continuing
> treatment of chemo and blood work including lombard puntures. She
> has been in remission for three yrs now, and the doctors tell us
if
> she remains in remission for a total of seven yrs she will be
> considered cured. I guess what I'm looking for is confirmation of
an
> adult survivor who has had A.L.L as a child, survived and grew up
to
> marry
> > and have children, and lived happily ever after. Cancer is a
well
> known desease in my family, it seems to run through my family like
> water, My mother died of breast cancer, My father then died nine
> months later of cancer of the pancreas. My sister Mary had a
> hystorectomy due to cancer when she was 30yrs old then a partial
> masectomy at around 45yrs of age, (she is now 51) and still is in
> alot of pain being tested to see if there is any cancer in her
bones
> two of my other sister an myself had a D & C and caughtery cause
we
> had the cells that turn into cancer but what caught on time. and
so
> far are cancer free, I also had an uncle (my mothers brother) who
> had got A.L. L. and had passed away, at the age of 51. But I
guess
> the real reason I'm here is or confirmation, that my grandaughter
> will grow up to live a happy normal life, and maybe have children
of
> her own if she wishes to do so. So if there are any adults out
there
> that have survived A.L.L as a child I would love to hear from
> > you. And if there is any one in need of a little hope cause they
> just found out that their child has A.L.L. I have a beautiful blue
> eyed blonde eight yr old grandaughter as living proof, that things
> do get better.
> > thanks for being there
> > love hugs kisses and hope
> > gail
> >
> >
> >
> >
> >
> > GAIL
> >
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > ---------------------------------
> > Yahoo! Groups Links
> >
> > To visit your group on the web, go to:
> > http://groups.yahoo.com/group/survivingleukemiatogether/
> >
> > To unsubscribe from this group, send an email to:
> > survivingleukemiatogether-unsubscribe@yahoogroups.com
> >
> > Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
> >
> >
> >
> > ---------------------------------
> > Do you Yahoo!?
> > Yahoo! Mail - You care about security. So do we.
> >
> > [Non-text portions of this message have been removed]
>
>
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
> To visit your group on the web, go to:
> http://groups.yahoo.com/group/survivingleukemiatogether/
>
> To unsubscribe from this group, send an email to:
> survivingleukemiatogether-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Search presents - Jib Jab's 'Second Term'
>
> [Non-text portions of this message have been removed]