Hi,
Very nice to hear from you, as far as her risks I wish I could sya more however
the Doctors told us that they consider her standard risk, it was never found in
cns her blood stream at the start of treatment showed 5 % blasts and her bone
marrow showed 95 % leukemic cells, after one day the blast went to zero and at 7
days her marrow went to 5 % and then to zero 14 -18 days later I think, just so
much to remember. she hasn't received cranial radiation yet, whe has been slow
in clearing the high dose methotrexates and kind of three to five weeks delayed
on the roadmap. I don't know if that's bad or good but I kind of believe it's
good that her cells respond so much to this giving her a mnore suppression
rather than less or even none, which I hear could be tougher to keep things in
check etc... but I don't know, I guess I am looking for silver linings
everywhere, we just returned home from the hospital because of her first
fever/cold symptoms since she started treatment, we have been
lucky thus far, heard stories about kids who routinely have fevers get sick and
are in and out every couple of weeks so August until now seems like a good run
without having this happen. how long ago was your son diagnosed? how's his
appetite, Jenny's runs hot and cold sometimes she wil eat great and then go
cold, nothing sounds good, the clinic nurse says that's typical chem kids, and
the hospital nurse said when ever the kids on our wing want to eat anything they
make the caffeteria fix it any time of day. hope this is the info you are
looking for, it seems like all I read about on the net is when kids have tougher
times, I would like to hear about the ones that get through it and are doing
great too. Hope your son is doing good, I look and read anything I can on the
web and it sounds like there is always alternatives and options, but it's
difficult not to worry, it is so scary for us some days are harder than others
but you do what you have to do.


Thanks and I can't wait to hear back form you,
Rob

subl34 <subl34@...> wrote:

Hello Rob. I'm new here. My son is now 9 years old and also has T-
cell ALL... Can you tell me if your daughter is low risk All or
what? Has she ever had white blood cells show up in her spinal taps
or is that all clear? In other words can you give me some back
ground information.

Thanks Shell

--- In survivingleukemiatogether@yahoogroups.com, our fun
<ourfunstl@y...> wrote:
> Hi,
> My Daughter is nine years old and last August she was diagnosed
with T-cell ALL and I too wish to be in contact with survivors for
same reasons, peace of mind that there is hope and a future. so if
you do not mind adding us to your list when you hear from
survivors. My daughter is doing good and we are done with hospital
chemo treatments and now just at clinic fro treatments.
> Thanks Gail
>
> Rob Stock
>
> GAIL HACHEY <ghachey456@r...> wrote:
> Hello, my name is Gail, My eight yr old grandaughter was diagnosed
with ALL when she was about 18 mnths old, When first discovered the
doctors told us, if we didn't discover it when we did we would have
lost her with in two wks, She was rushed directly from the credit
valley hospital in mississauga, ontario, to the toronto hospital for
sick children where she had an immediate blood transfusioin, she
remained in the hospital for six wks where they put her on the most
aggressive chemo (the highest protocol) they could put a child at
her age on, she never required a bone marrow transplant or
radiation, but had to return to the hospital for continuing
treatment of chemo and blood work including lombard puntures. She
has been in remission for three yrs now, and the doctors tell us if
she remains in remission for a total of seven yrs she will be
considered cured. I guess what I'm looking for is confirmation of an
adult survivor who has had A.L.L as a child, survived and grew up to
marry
> and have children, and lived happily ever after. Cancer is a well
known desease in my family, it seems to run through my family like
water, My mother died of breast cancer, My father then died nine
months later of cancer of the pancreas. My sister Mary had a
hystorectomy due to cancer when she was 30yrs old then a partial
masectomy at around 45yrs of age, (she is now 51) and still is in
alot of pain being tested to see if there is any cancer in her bones
two of my other sister an myself had a D & C and caughtery cause we
had the cells that turn into cancer but what caught on time. and so
far are cancer free, I also had an uncle (my mothers brother) who
had got A.L. L. and had passed away, at the age of 51. But I guess
the real reason I'm here is or confirmation, that my grandaughter
will grow up to live a happy normal life, and maybe have children of
her own if she wishes to do so. So if there are any adults out there
that have survived A.L.L as a child I would love to hear from
> you. And if there is any one in need of a little hope cause they
just found out that their child has A.L.L. I have a beautiful blue
eyed blonde eight yr old grandaughter as living proof, that things
do get better.
> thanks for being there
> love hugs kisses and hope
> gail
>
>
>
>
>
> GAIL
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
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