We are a support group for people with sun and light sensitivities. Sun sensitivity may appear as bad sunburn or rash. Reaction usually occurs after a very short amount of exposure time. Some people experience an immediate reaction and others react after a delay. Sun sensitivity can be due to a primary medical condition, or side effect from medication, or reaction to product ingredients. Other terms for sun sensitivity include: photoreaction, photoallergic, photosensitivity, phototoxic. Diagnoses include solar urticaria, lupus, porphyria, sun hives, polymorphic light eruption, sun allergy, and other light reactive conditions. We share our day-to-day experiences and ways of living with sun sensitivity. We discuss coping techniques such as sunscreens, clothing, and medical interventions. SUN1 is a place to feel comfortable exchanging ideas, discussing concerns, and asking questions.
Moderators:Gail(owner), Polly, and Wendi
sun1-owner@yahoogroups.com
WEBSITE: http://sun1.awardspace.com/
TO JOIN AND READ MESSAGES:
Membership is limited to people with light sensitivity, and persons who care about people with light sensitivity. Group management approves new members. Choose mailing preference at the website. Post a message and introduce yourself. Let us know about you and your condition; share and ask questions.
This is a partially moderated list. Personal attacks will not be tolerated. SUN 1 is not a place to discuss politics or religious beliefs. Information is kept in confidence and not shared or sold.
Disclaimer: The information provided on this site is designed to support, not replace, the relationships that exist between visitors to this site and their health practitioners. Consult with a clinician regarding any treatments or medical advice suggested by this forum. We are not physicians; we are people trying to learn about our conditions and ways to cope.
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