Hey Sandara.. I will be going into the hospital in four weeks and I am trying to cut down on some of my e-mail, so my mail box won't get too full and then they cut off my account. Can you make it so I don't get all the e-mails sent to me here.. and then I will just participate by going to the site?? thanks so much. I couldn't figue out how to do that!!!

                    I hope you are doing well. Take care,

                    Thanks for doing that for me!!

                    Love,

                            Deb 

Hi Kathy;

 

I just took time and went through your site. It is AWESOME! I wanted to do it while I had time and was not rushed. You are VERY good at computers. I think Kathy's site should be the site for next week Sandara.

 

I also took time to go through some of the links and am sending for some samples that I really need badly to try. It is AMAZING how both of you know how to put so much information on a site and just KNOW so much information.

 

Linda

Kathy Smith <kathy_from_england@...> wrote:

Hi Linda,

Thank you for your details. :)

 

I've put it on this page of my website, let me know if you want me to alter it in any way:

http://www.autoimmunity.co.uk/supportboardsgeneral.html

 

I hope you get some hits out of the link.

A very good family friend had a Guide Dog for the Blind and I knew the dog quite well. He was a very independent man before, but the dog gave him that extra independence. I think these schemes are so worthwhile and I wish you luck.

 

Kathy

R Linda <i_poof@...> wrote:

Hi Kathy;

 

I have a Urostomy and a Colostomy. I have had the Urostomy since I was 3 years old and the colostomy since I was 23 years old. Will eventually end up getting rid of colostomy and getting an ileostomy as my bowel continues to die due to the Spina Bifida. Thank you so much for your support!

 

Linda

Kathy Smith <kathy_from_england@...> wrote:

Sandara,

I think that's a great idea!

Linda, are you a double ostomate? I've put a link to your site on my website, but I'd like to include the information that you're an ostomate.

 

The link's here:

http://www.autoimmunity.co.uk/supportboardsgeneral.html

 

Also, if you don't have a website but want to help Linda advertise her site, why not include a link in your email sig? (Then send out several jokes that your friends will forward on......)

 

Kathy

sandy4stomacentral_int <Despoinaj@...> wrote:

I thought we could feature our links individually on a once weekly
basis, for a while, until they have all been seen. So, instead of
you going to log into group web page and then clicking on links. we
bring the link right to your email addy..oh wow..how cool is that :-)

In our first feature from our links page its


http://www.geocities.com/mljr_68/independence.html

its our Lindas web page. And its very important that we all look at
it, cos our Lin is trying hard to raise funds for her helper dog and
she needs her site to be seen by lots of people so that she can get
that money raised.

So, if you are able to link her site to yours so that people get to
see it and donate, it would be great.

Lin, I sooo hope you didnt mind me doing this sweetie.
take care all
peace, health, happiness and wealth for the week.
Sandara

---

ALL-NEW Yahoo! Messenger - all new features - even more fun!

Please take time to visit my web site at:
http://www.geocities.com/mljr_68/independence.html

---

Do you Yahoo!?
Take Yahoo! Mail with you! Get it on your mobile phone.

---

ALL-NEW Yahoo! Messenger - all new features - even more fun!

Please take time to visit my web site at: ~ Newly Updated 9/26/04
http://www.geocities.com/mljr_68/independence.html

---

Do you Yahoo!?
vote.yahoo.com - Register online to vote today!

Sorry I was not at the chat last night. I was busy packing for my week trip of training with Gibson.   I have so much medical stuff I need to take and could not pack it until the last minute.   I will not be to the next chat on Sunday either as I will still not be home. I will be home Monday night then Gibson comes home starting Tuesday.  

Oh yeah.........remember my diet? well it is only a memory at this point        

Hi everyone,
Debbie, and Dan, sorry about your problems getting into the chat
room.  I was not there at 8pm but came soon after and your name was
showing in the room Dan, so I could tell you had been in there and
yahoo had not refreshed the page. Yahoo can be difficult in that
they boot us out the room sometimes.

The easiest way to get to the chat room is by clicking on this link,
or coping and pasting it to your browswer:-

http://health.groups.yahoo.com/group/stomacentralint/

it will tell you to sign into the group if you are a member to
access the features in the group. And then when you sign in, to the
left is a list of links and click on the chat link and it should
take you to chat room.

I was in there for a couple of hours and Julie was there with me for
a while and then I was alone for some time and then Billie came and
gave me some company.

Hope everyone is really well.
take care
Sandara

Hi everyone,
Debbie, and Dan, sorry about your problems getting into the chat
room.  I was not there at 8pm but came soon after and your name was
showing in the room Dan, so I could tell you had been in there and
yahoo had not refreshed the page. Yahoo can be difficult in that
they boot us out the room sometimes.

The easiest way to get to the chat room is by clicking on this link,
or coping and pasting it to your browswer:-

http://health.groups.yahoo.com/group/stomacentralint/

it will tell you to sign into the group if you are a member to
access the features in the group. And then when you sign in, to the
left is a list of links and click on the chat link and it should
take you to chat room.

I was in there for a couple of hours and Julie was there with me for
a while and then I was alone for some time and then Billie came and
gave me some company.

Hope everyone is really well.
take care
Sandara

-----Original Message-----
From: Debbie McCully [mailto:sissy5593@...]
Sent: Sunday, November 07, 2004 3:25 PM
To: stomacentralint@yahoogroups.com
Subject: Re: [stomacentralint] S.C.I. WEEKLY OSTOMY CHAT & DIET GROUP, 11/7/2004, 8:00 pm

I would like to join in but I seem to be having trouble.  I do receive email but I would like to join in the chat. I registered my name and password but it will not take it.  I must be doing something wrong.  Help if you can Thank you Debbie.    -------Original Message-------   From: stomacentralint@yahoogroups.com Date: 11/07/04 13:00:53 To: stomacentralint@yahoogroups.com Subject: [stomacentralint] S.C.I. WEEKLY OSTOMY CHAT & DIET GROUP, 11/7/2004, 8:00 pm   Reminder from the Calendar of stomacentralint S.C.I. WEEKLY OSTOMY CHAT & DIET GROUP Sunday November 7, 2004 8:00 pm - 10:00 pm This event does not repeat. Event Location: Stoma Central International Chat Room Notes: Hello Everyone, this is a reminder of our weekly Ostomy chat which now incorporates our diet group. You can come here each week at 8pm British time to talk about all your ostomy related problems. Or to just chat about general things. You can come to vent, or to just have tea and biscuits or just to hang out and read what others are saying and not say anything at all. We can give each other help and support with our diet group too. Yahoo! Greetings Send a Yahoo! Greeting. Birthday Reminders Set up birthday reminders! ADVERTISEMENT Copyright ©  2004  Yahoo! Inc. All Rights Reserved. Privacy Policy - Terms of Service

Andre

 

Where is your stoma?  Isn't it below your waistline? 

 

When you wear  a shirt that flaps up and exposes the bag... consider it YOUR unique way of mooning someone!  LOL

 

Take LOTS of wonderful pictures and post them.  We'd love to see them.

 

Angel hugs

 

Tina

----- Original Message -----

From: Andre Du-Bois

To: stomacentralint@yahoogroups.com

Sent: Saturday, November 06, 2004 5:51 AM

Subject: Re: [stomacentralint] Tropical Climate

Thank you very much for the reply Tina. I will bear the info in mind. I too intend to go swimming and get a strange shaped tan :) on my belly.

 

I'm off to Thailand and Malaysia for about a month or so. I'll let you all know if i encounter and anomolies.......... I suppose my main fear about swimming is that the bag comes off in the water........ my imagination starts to run wild after that point :(

 

Also, any tips for "disguising" the bag. I can get away with it in the UK using a tee shirt tucked in and a shirt on top just flapping around or just a patterned tee shirt (if I feel brave!). The most annoying thing for me is wearing a shirt (without a teeshirt) and the bottom keeps blowing up and exposing the bag - that's a real pain!

 

Thanks again

 

Andre

anangelseyes <Af12dlite@...> wrote:

  Hi Andre

  I regularly enjoy time in a jacuzzi with temperatures of up to 105 degrees
F.  I have also gone swimming and sun bathing and have had no problems.  I
don't spend hours and hours outside sweating tho.

  Where are you planning on going?  As long as the area is dry when you
place your barrier/wafer/flange on, you shouldn't have a problem with it
adhering to your skin.  I understand that quite a number of people will
frame the barrier with hy tape, a pink (supposedly) water proof tape.  I
choose not to as I don't care for the additional adhesive on my skin and I
don't care for how it looks. Just a personal preference.  I did so that in
the beginning, but would rather change more often.

  I'm not familiar with stoma caps as I have an ileostomy which runs 24/7
and thus I cannot use them.

  Travel is no problem.  I've flown 10-12 times in the last 3.5 years and
have never had a problem with inflation of my pouch.  I use a 2 piece
ConvaTec Natura system with a closed end pouch.

  Recommendation:  for travel - it is much more convenient to use a closed
end pouch if you have a 2 pc system. Just remove the pouch - empty into the
toilet - place the used pouch into a zip-lock baggie and dispose of - place
a new pouch on.  Makes changing in the TINY airplane bathroom so much
easier.  I just stand over the toilet, remove and... etc.

  I am leaving for Florida next week and will be gone for almost a week.  I
intend to swim, jacuzzi, and party hearty!  We are having a memorial service
for my Mom who passed on last November. 60 of us going via boat out into the
ocean and scattering her ashes and celebrating her life!

  Let us know ab! out your trip!

  If you have any other questions, please feel free to ask away!

  Angel hugs

  Tina


  ----- Original Message -----
  From: "Andre" <andre_du_bois@...>
  To: <stomacentralint@yahoogroups.com>
  Sent: Friday, November 05, 2004 5:17 AM
  Subject: [stomacentralint] Tropical Climate


  >
  >
  > Hi all,
  >
  > Does anyone have any "top tips" for colostomies and tropical climates
  > or am I worrying myself unduely?
  >
  > Do they still stick as well in the humidity and with copious amounts
  > of sweat produced?
  >
  > Do they stay stuck on in the sea? How good are stoma caps?
  >
  > All basic questions but I have never done this before........
  >
  > If anyone can help or there are any other to! tips, i'd really
  > appreciate knowing......
  >
  > How about plane travel at 33,000ft + ? Do they inflate?
  >
  > Thanks if you can help
  >
  > Andre
  >
  >
  >
  >
  >
  >
  >
  > Yahoo! Groups Links
  >
  >
  >
  >
  >
  >
  >


--------------------------------------------------------------------------------

Thanks

Andre

---

ALL-NEW Yahoo! Messenger - all new features - even more fun!

---

Thank you very much for the reply Tina. I will bear the info in mind. I too intend to go swimming and get a strange shaped tan :) on my belly.

 

I'm off to Thailand and Malaysia for about a month or so. I'll let you all know if i encounter and anomolies.......... I suppose my main fear about swimming is that the bag comes off in the water........ my imagination starts to run wild after that point :(

 

Also, any tips for "disguising" the bag. I can get away with it in the UK using a tee shirt tucked in and a shirt on top just flapping around or just a patterned tee shirt (if I feel brave!). The most annoying thing for me is wearing a shirt (without a teeshirt) and the bottom keeps blowing up and exposing the bag - that's a real pain!

 

Thanks again

 

Andre

anangelseyes <Af12dlite@...> wrote:

  Hi Andre

  I regularly enjoy time in a jacuzzi with temperatures of up to 105 degrees
F.  I have also gone swimming and sun bathing and have had no problems.  I
don't spend hours and hours outside sweating tho.

  Where are you planning on going?  As long as the area is dry when you
place your barrier/wafer/flange on, you shouldn't have a problem with it
adhering to your skin.  I understand that quite a number of people will
frame the barrier with hy tape, a pink (supposedly) water proof tape.  I
choose not to as I don't care for the additional adhesive on my skin and I
don't care for how it looks. Just a personal preference.  I did so that in
the beginning, but would rather change more often.

  I'm not familiar with stoma caps as I have an ileostomy which runs 24/7
and thus I cannot use them.

  Travel is no problem.  I've flown 10-12 times in the last 3.5 years and
have never had a problem with inflation of my pouch.  I use a 2 piece
ConvaTec Natura system with a closed end pouch.

  Recommendation:  for travel - it is much more convenient to use a closed
end pouch if you have a 2 pc system. Just remove the pouch - empty into the
toilet - place the used pouch into a zip-lock baggie and dispose of - place
a new pouch on.  Makes changing in the TINY airplane bathroom so much
easier.  I just stand over the toilet, remove and... etc.

  I am leaving for Florida next week and will be gone for almost a week.  I
intend to swim, jacuzzi, and party hearty!  We are having a memorial service
for my Mom who passed on last November. 60 of us going via boat out into the
ocean and scattering her ashes and celebrating her life!

  Let us know about your trip!

  If you have any other questions, please feel free to ask away!

  Angel hugs

  Tina


  ----- Original Message -----
  From: "Andre" <andre_du_bois@...>
  To: <stomacentralint@yahoogroups.com>
  Sent: Friday, November 05, 2004 5:17 AM
  Subject: [stomacentralint] Tropical Climate


  >
  >
  > Hi all,
  >
  > Does anyone have any "top tips" for colostomies and tropical climates
  > or am I worrying myself unduely?
  >
  > Do they still stick as well in the humidity and with copious amounts
  > of sweat produced?
  >
  > Do they stay stuck on in the sea? How good are stoma caps?
  >
  > All basic questions but I have never done this before........
  >
  > If anyone can help or there are any other to tips, i'd really
  > appreciate knowing......
  >
  > How about plane travel at 33,000ft + ? Do they inflate?
  >
  > Thanks if you can help
  >
  > Andre
  >
  >
  >
  >
  >
  >
  >
  > Yahoo! Groups Links
  >
  >
  >
  >
  >
  >
  >


--------------------------------------------------------------------------------

Thanks

Andre

---

ALL-NEW Yahoo! Messenger - all new features - even more fun!

  Hi Andre

  I regularly enjoy time in a jacuzzi with temperatures of up to 105 degrees
F.  I have also gone swimming and sun bathing and have had no problems.  I
don't spend hours and hours outside sweating tho.

  Where are you planning on going?  As long as the area is dry when you
place your barrier/wafer/flange on, you shouldn't have a problem with it
adhering to your skin.  I understand that quite a number of people will
frame the barrier with hy tape, a pink (supposedly) water proof tape.  I
choose not to as I don't care for the additional adhesive on my skin and I
don't care for how it looks. Just a personal preference.  I did so that in
the beginning, but would rather change more often.

  I'm not familiar with stoma caps as I have an ileostomy which runs 24/7
and thus I cannot use them.

  Travel is no problem.  I've flown 10-12 times in the last 3.5 years and
have never had a problem with inflation of my pouch.  I use a 2 piece
ConvaTec Natura system with a closed end pouch.

  Recommendation:  for travel - it is much more convenient to use a closed
end pouch if you have a 2 pc system. Just remove the pouch - empty into the
toilet - place the used pouch into a zip-lock baggie and dispose of - place
a new pouch on.  Makes changing in the TINY airplane bathroom so much
easier.  I just stand over the toilet, remove and... etc.

  I am leaving for Florida next week and will be gone for almost a week.  I
intend to swim, jacuzzi, and party hearty!  We are having a memorial service
for my Mom who passed on last November. 60 of us going via boat out into the
ocean and scattering her ashes and celebrating her life!

  Let us know about your trip!

  If you have any other questions, please feel free to ask away!

  Angel hugs

  Tina


  ----- Original Message -----
  From: "Andre" <andre_du_bois@...>
  To: <stomacentralint@yahoogroups.com>
  Sent: Friday, November 05, 2004 5:17 AM
  Subject: [stomacentralint] Tropical Climate


  >
  >
  > Hi all,
  >
  > Does anyone have any "top tips" for colostomies and tropical climates
  > or am I worrying myself unduely?
  >
  > Do they still stick as well in the humidity and with copious amounts
  > of sweat produced?
  >
  > Do they stay stuck on in the sea? How good are stoma caps?
  >
  > All basic questions but I have never done this before........
  >
  > If anyone can help or there are any other to tips, i'd really
  > appreciate knowing......
  >
  > How about plane travel at 33,000ft + ? Do they inflate?
  >
  > Thanks if you can help
  >
  > Andre
  >
  >
  >
  >
  >
  >
  >
  > Yahoo! Groups Links
  >
  >
  >
  >
  >
  >
  >


--------------------------------------------------------------------------------

Hi Andre

   I regularly enjoy time in a jacuzzi with temperatures of up to 105 degrees
F.  I have also gone swimming and sun bathing and have had no problems.  I
don't spend hours and hours outside sweating tho.

   Where are you planning on going?  As long as the area is dry when you
place your barrier/wafer/flange on, you shouldn't have a problem with it
adhering to your skin.  I understand that quite a number of people will
frame the barrier with hy tape, a pink (supposedly) water proof tape.  I
choose not to as I don't care for the additional adhesive on my skin and I
don't care for how it looks. Just a personal preference.  I did so that in
the beginning, but would rather change more often.

   I'm not familiar with stoma caps as I have an ileostomy which runs 24/7
and thus I cannot use them.

   Travel is no problem.  I've flown 10-12 times in the last 3.5 years and
have never had a problem with inflation of my pouch.  I use a 2 piece
ConvaTec Natura system with a closed end pouch.

   Recommendation:  for travel - it is much more convenient to use a closed
end pouch if you have a 2 pc system. Just remove the pouch - empty into the
toilet - place the used pouch into a zip-lock baggie and dispose of - place
a new pouch on.  Makes changing in the TINY airplane bathroom so much
easier.  I just stand over the toilet, remove and... etc.

   I am leaving for Florida next week and will be gone for almost a week.  I
intend to swim, jacuzzi, and party hearty!  We are having a memorial service
for my Mom who passed on last November. 60 of us going via boat out into the
ocean and scattering her ashes and celebrating her life!

   Let us know about your trip!

   If you have any other questions, please feel free to ask away!

   Angel hugs

   Tina


   ----- Original Message -----
   From: "Andre" <andre_du_bois@...>
   To: <stomacentralint@yahoogroups.com>
   Sent: Friday, November 05, 2004 5:17 AM
   Subject: [stomacentralint] Tropical Climate


   >
   >
   > Hi all,
   >
   > Does anyone have any "top tips" for colostomies and tropical climates
   > or am I worrying myself unduely?
   >
   > Do they still stick as well in the humidity and with copious amounts
   > of sweat produced?
   >
   > Do they stay stuck on in the sea? How good are stoma caps?
   >
   > All basic questions but I have never done this before........
   >
   > If anyone can help or there are any other to tips, i'd really
   > appreciate knowing......
   >
   > How about plane travel at 33,000ft + ? Do they inflate?
   >
   > Thanks if you can help
   >
   > Andre
   >
   >
   >
   >
   >
   >
   >
   > Yahoo! Groups Links
   >
   >
   >
   >
   >
   >
   >


--------------------------------------------------------------------------------

8pm UK Time which is 3pm EST ish.

All ostomists welcome, whatever the condition, whatever the age.
Maybe you face a possible ostomy in the future? Or simply want more
information? All are welcome.

Go to http://www.autoimmunity.co.uk/chat/ostomyland.html (Kathy's
page) or http://www.ostomysupport.info/chat.html (Jason's page) and
join us in the ostomy chat room from there. A free-to-use Java Client
is embedded into the page that is dead easy to use. Nothing to
download.

Want to chat another time? The room is open 24/7 and is becoming
increasingly busy throughout the weekend. Drop by and see if anyone
is there.

=========

If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect:

Server: irc.zirc.org
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
Full details and the download link can be found at
http://www.ostomysupport.info/mirc.html
(This is my favourite - mIRC can do so much more!)

WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server
and port and channel
info when requested by your software to join

=========

We often have members who have never been in a chatroom before.
Please don't be nervous. These pages will show you exactly what to
expect and what to do. If you're still unsure after you've looked at
them, email me for help.

http://www.ostomysupport.info/cgi-bin/yabb/YaBB.pl?
board=techsupport;action=display;num=1098295095

=========

The channel is open 24/7 for general chit chat or ostomy talk during
the week, and is becoming increasingly busy. If you drop by and it's
quiet, stay a while - someone else may join the room soon.

=========

Autoimmunity - the Hidden Link now has its own chatroom.
It can be accessed via java or mIRC (Jason has kindly configured a
version).
Full details can be found here:
http://www.autoimmunity.co.uk/chat/rooms.html

=========

Look forward to seeing you in the meeting Saturday night, the weekend
or later on
in the week.

Kathy :)

IBD and Ostomy Support Boards
(websites, message boards, etc.)
http://www.autoimmunity.co.uk/supportboards.html

Hi all,

Does anyone have any "top tips" for colostomies and tropical climates
or am I worrying myself unduely?

Do they still stick as well in the humidity and with copious amounts
of sweat produced?

Do they stay stuck on in the sea? How good are stoma caps?

All basic questions but I have never done this before........

If anyone can help or there are any other to tips, i'd really
appreciate knowing......

How about plane travel at 33,000ft + ? Do they inflate?

Thanks if you can help

Andre

Hi Sandara and everyone;

 

I am very busy training with Gibson but do check my email daily. I leave Sunday for daily training and will be back the following Monday. Then that Tuesday Gibson will come to my house for the day then Wednesday he will stay home with me!

 

I have been busy joining organizations that I use to belong to before I could not go out on my own. I am back active with both my local Ostomy association I am active in my church once again. Once Gibson gets home I will be able to attend all my meetings and have freedom.

 

I just bought Gibson a Christmas stocking.....it has paw prints on it hehe.

 

I did see my surgeon yesterday and he had to re-open where I had closed because I am once again infected. At least I do not need to take time away from training or need surgery yet.

 

I will try to be at the chat Sunday. I do not know what time I have to leave but if I can be here I will be.

 

Linda

sandy4stomacentral_int <Despoinaj@...> wrote:

Its really quiet here and Im worried about everyone. I want to send
my thoughts and prayers out to you all, and so hope that things are
okay.
hugs
Sandara

Please take time to visit my web site at:( I have a link to the fundraiser luncheon page full of pictures, click on fundraising luncheon, under links )

http://www.geocities.com/mljr_68/independence.html

---

Do you Yahoo!?
Check out the new Yahoo! Front Page. www.yahoo.com

----- Original Message -----

From: sandy4stomacentral_int

To: stomacentralint@yahoogroups.com

Sent: Wednesday, November 03, 2004 4:41 PM

Subject: [stomacentralint] Worried about everyone :-(

Its really quiet here and Im worried about everyone. I want to send
my thoughts and prayers out to you all, and so hope that things are
okay.
hugs
Sandara

Hey Linda.. I've been thinking of you and Gibson and I wanted to say "Mazel Tov" on getting Gibson. He (?) is beautiful and I am so very happy for you. That is amazing that you are now getting to go out more and do things. I am really pleased to hear that. Good luck with the upcoming training session. Later, when you catch up with that, I would interested to hear what Gibson does for you in the way of helping. I saw something on CNN where a man in a wheelchair was helped out by a little monkey... I forget what type. But this monkey did so much for him, as well as be a constant friend and companion.

 

Cheers,

Deb

 

and hey Sandara...

I have been going out a lot and having fun, in between many dr's appts. and tests and work. I actualy almost feel like the old me, before surgery, except without the nasty U.C.  Of course, I still need to lose so much weight.

 

I got my surgery date for Dec. 10th and will go in a day early so they can stabalize me on a liquid blood thinner.  I still want to know what BRG means.. the thing you wrote a lot of in parenthesis in your e-mails about rectum removal.

I better get going, I have a few appts. to get to this afternoon.

 

Oh... I will be very busy also, as I need to get many things done before surgery.. stuff I was procrastinating!!

 

Take care and be well...

Cheers,

Deb 

 

Please take time to visit my web site at:( I have a link to the fundraiser luncheon page full of pictures, click on fundraising luncheon, under links )

http://www.geocities.com/mljr_68/independence.html

---

Do you Yahoo!?
Check out the new Yahoo! Front Page. www.yahoo.com

Hello Guys i'm try gather as much info as i can on crohns suck as
blood test that can be done see if u have it along with other test
and info on diets , symptoms, and  the likey hood of need meds even
with ostomy as my mom and me thing i now have this going talk to my
docotr in decmber billie

Its really quiet here and Im worried about everyone. I want to send
my thoughts and prayers out to you all, and so hope that things are
okay.
hugs
Sandara

Hello Guys i'm try gather as much info as i can on crohns suck as
blood test that can be done see if u have it along with other test
and info on diets , symptoms, and  the likey hood of need meds even
with ostomy as my mom and me thing i now have this going talk to my
docotr in decmber billie

Thanks.  I needed that.

-----Original Message-----
From: sandy4stomacentral_int [mailto:Despoinaj@...]
Sent: Wednesday, November 03, 2004 11:41 AM
To: stomacentralint@yahoogroups.com
Subject: [stomacentralint] Worried about everyone :-(





Its really quiet here and Im worried about everyone. I want to send
my thoughts and prayers out to you all, and so hope that things are
okay.
hugs
Sandara










Yahoo! Groups Links

Thanks.  I needed that.

-----Original Message-----
From: sandy4stomacentral_int [mailto:Despoinaj@...]
Sent: Wednesday, November 03, 2004 11:41 AM
To: stomacentralint@yahoogroups.com
Subject: [stomacentralint] Worried about everyone :-(





Its really quiet here and Im worried about everyone. I want to send
my thoughts and prayers out to you all, and so hope that things are
okay.
hugs
Sandara










Yahoo! Groups Links

Its really quiet here and Im worried about everyone. I want to send
my thoughts and prayers out to you all, and so hope that things are
okay.
hugs
Sandara

Hi there everyone,
I am just posting up our site of the week. Where, if you are not
able to come to the group page, the site comes directly to your
email box, and you can just click on the link.

I chose this weeks site, as it has a FAQ section, and is one of the
best sites for information that I have come across so far.
the site link:-


http://www.uoa.org/ostomy_faqs.htm

health, peace and happiness to you all for this week.
take care
Sandara

give our bag changing procedure. Could gleam a few tips from this. I
always did when I have suggested it in the past in other groups.
I shall start it.

I use Coloplast one piece bag with convexity (as my stoma is flush)
I use an adhesive remover while I am taking of my bag, I pull the
skin away from the bag, rather than the bag away from the skin.
Using the adhesive remover for the most stuck down bits. I then wipe
away all the stick using the adhesive remover.  I use kitchen roll,
not toilet roll to mop up any spills etc from stoma, as I find that
toilet roll sticks to the stoma and I forever had to pick bits of
loo roll off. so kitchen roll does a much better job, doesnt stick.
I wipe the skin around my stoma with wet kitchen roll, to clean off
the adhesive remover. I try not to rub too hard or play too much
with that area, as I find that it can start itching and then it
itches for England and I just get the deepest urge to scratch, which
in my experience has ended up with me scratching it till it bleeds.
so less rubbing. and more blotting is best. when its dry. I put a
bead of eakin seal around my stoma, over the sore bits. and then
orobase paste around it. then cavilon skin barrier over the skin
around the stoma, and also another skin barrier, as I find that
cavilon sometimes causes problems with my bag sticking down. Whereas
this other skin barrier I use on top of the cavilon, has a slight
stickiness to it, helping my bag to stick.

I put my bag on and press down to make sure the flange is stuck down
and then keep the palm of my hand pressed over the flange area for
at least 10 minutes. The warmth from my palm, heats up the flange
and sticks it down nicely. But I then picture frame my flange with
tape anyways after, just for that added security. voila! my bag
change procedure.

who's next?
take care
Sandara

I AM NOT SURE HOW TO JOIN THE CHAT ROOM I AM A MEMBER AND I AM
turtle83705@... if anyone can help please help I am a friendly
person and I would also like to post some photos but i just cann't
figure it out Thanks

Hi I am some what new to this board.I've read alot of other peoples
things but never posted any of my own.I was wondering if people ever
get nervous about posting their pictures on this site.I might just
be having an anxiety because I've never done it.Is it safe?Sorry if
you guys think I'm weird but htis is just me.Thanx Sarah

I really wanted to, but couldnt cos had people to dinner from
husbands side of family and I really thought they would be gone chat
time, but they wasnt and I didnt like to say..sorry I got to leave
go into the other room, as we was deep in conversation and so I hope
it was all okay.
Never mind, there is always next week.
take care everyone
health, peace and happiness for this week.
hugs
Sandara

Hi Sarah,
Im sorry I am usually at chat, but was not there myself last night otherwise
I would have replied to your message on the board and try to help you get
into the chat room.  Our messages are moderated and me and Debi was both not
there to moderate your post last night so that it only showed on the bb
today. Otherwise one of the lovely people of this group would have seen it
and told you how to get into chat. Hope this does not put you off to coming
to chat next week.

If you look at the bottom of this email it will give you the link to go to
the group page on the web. And then you sign in to our home page. If you
look to the left of your page, you will see a list of links.  And the chat
link is there, click on chat and you will go directlly into the stoma
Central chat room.

As for the photos, if you are having a problem posting, tell me and I shall
give you an email addy to post them too and I will post them upi in our
photo section.

Welcome to our Group Sarah, and hope to be able to speak to you next Sunday
in chat.

>From: "turtle83705" <turtle83705@...>
>Reply-To: stomacentralint@yahoogroups.com
>To: stomacentralint@yahoogroups.com
>Subject: [stomacentralint] HELP ME JOIN THE CHAT
>Date: Mon, 01 Nov 2004 06:46:47 -0000
>
>
>
>I AM NOT SURE HOW TO JOIN THE CHAT ROOM I AM A MEMBER AND I AM
>turtle83705@... if anyone can help please help I am a friendly
>person and I would also like to post some photos but i just cann't
>figure it out Thanks
>
>
>
>
>
>

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Hi Billie,
hoe your friend gets better soon.
hugs
Sandara

--- In stomacentralint@yahoogroups.com, "billie" <billie78@a...>
wrote:
>
>
> hello guys sorry miss the chat but going to hosptail vist a friend
> who lungs has colapse due to have blister in his lung that filled
> with infection ill try make it next week luv  billie and hugs

Hi I am some what new to this board.I've read alot of other peoples
things but never posted any of my own.I was wondering if people ever
get nervous about posting their pictures on this site.I might just
be having an anxiety because I've never done it.Is it safe?Sorry if
you guys think I'm weird but htis is just me.Thanx Sarah