Hi there everyone,

Im back from one of my Greek trips, again....lol. I would like to

say I had a great time, but cant! I lost my passport whilst out

there and so had to spend the week litterally going from the British

Embassy to the police station and back 3 times to the station and 4

times to the embassy before I got a temporary emergency passport

within hours of me due to fly back home, and then when I get to the

aiport the early hours of Friday morning, my flight had been

cancelled and nobody decided to tell us. whaaaaaaaa!!!!

And I have this urgh cold..that I had prior to going to Greece which

Im really having to think about going to see my doc about now as its

lasted so long. Oh and did I say that my 25 year old niece who came

with me to Athens had dislocated her knee the first day we arrived?!



Needless to say the things I had to do out there which was to sort

out my property tax and some other things I had to sort out was all

pushed to the side meaning that eventually I have to go back out

there again.

All I can say is thank God I have my mothers family out there, cos I

would not have gotten it sorted out. Here's a tip for those of you

travelling. PHOTOCOPY YOUR PASSPORT. INSIDE AND OUT, TO INCLUDE YOUR

PASSPORT NUMBER AND DATE OF ISSUE. THOSE OF YOU WHO, LIKE ME HAVE

BORN IN A FOREIGN COUNTRY TO THE ONE YOU RESIDE IN AND OUR A CITIZAN

OF MAKE SURE YOU HAVE A COPY OF ALL THE DETAILS OF YOUR PARENTS OR

GRANDPARENTS. BASICALLY ANYTHING TO PROVE YOU ARE A CITIZAN OF THAT

COUNTRY. These were the reasons I spent the whole week in the

embassy because even though I was born in Greece, I didnt have any

details of my parents.

Anyways, Im back now, and although I have a cold Im fine just tired

of the whole thing. Gonna get me strength back up again and will

feel better soon.

Hope you are all feeling good.

love and hugs to you all

Sandara

Hi there everyone,
Im back from one of my Greek trips, again....lol. I would like to
say I had a great time, but cant! I lost my passport whilst out
there and so had to spend the week litterally going from the British
Embassy to the police station and back 3 times to the station and 4
times to the embassy before I got a temporary emergency passport
within hours of me due to fly back home, and then when I get to the
aiport the early hours of Friday morning, my flight had been
cancelled and nobody decided to tell us. whaaaaaaaa!!!!
And I have this urgh cold..that I had prior to going to Greece which
Im really having to think about going to see my doc about now as its
lasted so long. Oh and did I say that my 25 year old niece who came
with me to Athens had dislocated her knee the first day we arrived?!

Needless to say the things I had to do out there which was to sort
out my property tax and some other things I had to sort out was all
pushed to the side meaning that eventually I have to go back out
there again.
All I can say is thank God I have my mothers family out there, cos I
would not have gotten it sorted out. Here's a tip for those of you
travelling. PHOTOCOPY YOUR PASSPORT. INSIDE AND OUT, TO INCLUDE YOUR
PASSPORT NUMBER AND DATE OF ISSUE. THOSE OF YOU WHO, LIKE ME HAVE
BORN IN A FOREIGN COUNTRY TO THE ONE YOU RESIDE IN AND OUR A CITIZAN
OF MAKE SURE YOU HAVE A COPY OF ALL THE DETAILS OF YOUR PARENTS OR
GRANDPARENTS. BASICALLY ANYTHING TO PROVE YOU ARE A CITIZAN OF THAT
COUNTRY. These were the reasons I spent the whole week in the
embassy because even though I was born in Greece, I didnt have any
details of my parents.
Anyways, Im back now, and although I have a cold Im fine just tired
of the whole thing. Gonna get me strength back up again and will
feel better soon.
Hope you are all feeling good.
love and hugs to you all
Sandara

Hi there.. I am awake because I itch. this is maddening. Anyhow.. Sandy.. I was looking thru some supplies and found those disposable bags you wanted to know about.. they are made by Osmore and the insert says 1-800-686-1377. I know that company changed its name, but hopefully that number is the same or it will lead you to another number.

 

There is a website I found and one posting has all these companies you can call for free samples. I don't know how to get that list and then put it on this site, so if anyone does know how to do that and wants to do that, let me know and I will attempt to tell you how to find it. ha ha

 

I have a thought on all those horrible cramps I was getting. Maybe it ws simply not enough water.ANd that when I drink a whole glass of water,  it is just too much for the system. I don't know. just a thought.

 

I must try and get back to sleep now. I have been working the afternoon - midnite shift and it messes me up the next day, because I can't come home and fall right asleep, so I stay up and get on the computer and then fall asleep around 2 or 2:30 Am and then if I don't get enough sleep, I have a hard time staying up past midnite to make it home/drive. The shift is not good for me I think. I like it because you avoid rush hour and hardly anyone stays that late, so you are kind of on your own at work and sometimes the work runs out, so you can just read a book or a newspaper quietly at your desk till it's time to punch out. But, I have NOT been walking at all, because I wake up just in time to make a few phone calls and then get to work. Maybe run one needed errand a day. I need to walk.

 

ANyone keep walking as a daily thing in their life and how?? It is too late and too dark and scary to walk at midnighe, although I did once at owrk with someone else who got off then. That was great. But she doesn't always work there at nite. I asked another woman who does to walk with me last nite and when I punched out, she was gone. GUess she didn't want to walk!1

 

Deb

 

Hi,

I have three sites on this page which have the bag liners:

 

http://www.autoimmunity.co.uk/supportboards/products.html

 

I hope this helps.

Kathy

 

Autoimmunity - the Hidden Link
http://www.autoimmunity.co.uk

 

IBD and Ostomy Support Boards
(web sites, message boards, etc.)
http://www.autoimmunity.co.uk/supportboards.html 

Debra Kirsch <debrakirsch@...> wrote:

Hi there.. I am awake because I itch. this is maddening. Anyhow.. Sandy.. I was looking thru some supplies and found those disposable bags you wanted to know about.. they are made by Osmore and the insert says 1-800-686-1377. I know that company changed its name, but hopefully that number is the same or it will lead you to another number.

 

There is a website I found and one posting has all these companies you can call for free samples. I don't know how to get that list and then put it on this site, so if anyone does know how to do that and wants to do that, let me know and I will attempt to tell you how to find it. ha ha

 

I have a thought on all those horrible cramps I was getting. Maybe it ws simply not enough water.ANd that when I drink a whole glass of water,  it is just too much for the system. I don't know. just a thought.

 

I must try and get back to sleep now. I have been working the afternoon - midnite shift and it messes me up the next day, because I can't come home and fall right asleep, so I stay up and get on the computer and then fall asleep around 2 or 2:30 Am and then if I don't get enough sleep, I have a hard time staying up past midnite to make it home/drive. The shift is not good for me I think. I like it because you avoid rush hour and hardly anyone stays that late, so you are kind of on your own at work and sometimes the work runs out, so you can just read a book or a newspaper quietly at your desk till it's time to punch out. But, I have NOT been walking at all, because I wake up just in time to make a few phone calls and then get to work. Maybe run one needed errand a day. I need to walk.

 

ANyone keep walking as a daily thing in their life and how?? It is too late and too dark and scary to walk at midnighe, although I did once at owrk with someone else who got off then. That was great. But she doesn't always work there at nite. I asked another woman who does to walk with me last nite and when I punched out, she was gone. GUess she didn't want to walk!1

 

Deb

 

---

ALL-NEW Yahoo! Messenger - all new features - even more fun!

Thanks Deb for the phone number....I know how that itching can be.....I hope you find some solution soon......Shift work.....wow....that can take a toll on your body....I am a day person but my sister was a night person and loved night work.....I am lucky if I can make it past 2:00 AM.  Do you work nights all the time?

About the water problem.....Michael Thurmond recommends 100 ounces of water a day.  My daughter and I buy bottled water and keep it by our side all day long.   That is 6 of these bottles a day.....Easy to do and easy to keep in the fridge.  Hydration is a problem for those of us that have an ileostomy.  And, it helps with weight control.
Walking.......I do my best to walk each day....Just a walk to the mail box is enough for me.

Thanks Kathy for the links to the liners and other interesting sites.  I spent a lot of time checking them out.....and wish there were more sites here in the U.S.

 

Have any of the ileostomy folks ever used any of the liners?  If so, how did they work for you?

Hugs, Sandy

Kathy Smith <kathy_from_england@...> wrote:

Hi,

I have three sites on this page which have the bag liners:

 

http://www.autoimmunity.co.uk/supportboards/products.html

 

I hope this helps.

Kathy

 

Autoimmunity - the Hidden Link
http://www.autoimmunity.co.uk

 

IBD and Ostomy Support Boards
(web sites, message boards, etc.)
http://www.autoimmunity.co.uk/supportboards.html 

Debra Kirsch <debrakirsch@...> wrote:

Hi there.. I am awake because I itch. this is maddening. Anyhow.. Sandy.. I was looking thru some supplies and found those disposable bags you wanted to know about.. they are made by Osmore and the insert says 1-800-686-1377. I know that company changed its name, but hopefully that number is the same or it will lead you to another number.

 

There is a website I found and one posting has all these companies you can call for free samples. I don't know how to get that list and then put it on this site, so if anyone does know how to do that and wants to do that, let me know and I will attempt to tell you how to find it. ha ha

 

I have a thought on all those horrible cramps I was getting. Maybe it ws simply not enough water.ANd that when I drink a whole glass of water,  it is just too much for the system. I don't know. just a thought.

 

I must try and get back to sleep now. I have been working the afternoon - midnite shift and it messes me up the next day, because I can't come home and fall right asleep, so I stay up and get on the computer and then fall asleep around 2 or 2:30 Am and then if I don't get enough sleep, I have a hard time staying up past midnite to make it home/drive. The shift is not good for me I think. I like it because you avoid rush hour and hardly anyone stays that late, so you are kind of on your own at work and sometimes the work runs out, so you can just read a book or a newspaper quietly at your desk till it's time to punch out. But, I have NOT been walking at all, because I wake up just in time to make a few phone calls and then get to work. Maybe run one needed errand a day. I need to walk.

 

ANyone keep walking as a daily thing in their life and how?? It is too late and too dark and scary to walk at midnighe, although I did once at owrk with someone else who got off then. That was great. But she doesn't always work there at nite. I asked another woman who does to walk with me last nite and when I punched out, she was gone. GUess she didn't want to walk!1

 

Deb

 

---

ALL-NEW Yahoo! Messenger - all new features - even more fun!

---

Do you Yahoo!?
Yahoo! Mail Address AutoComplete - You start. We finish.

Hi there.. I am awake because I itch. this is maddening. Anyhow.. Sandy.. I was looking thru some supplies and found those disposable bags you wanted to know about.. they are made by Osmore and the insert says 1-800-686-1377. I know that company changed its name, but hopefully that number is the same or it will lead you to another number.

 

There is a website I found and one posting has all these companies you can call for free samples. I don't know how to get that list and then put it on this site, so if anyone does know how to do that and wants to do that, let me know and I will attempt to tell you how to find it. ha ha

 

I have a thought on all those horrible cramps I was getting. Maybe it ws simply not enough water.ANd that when I drink a whole glass of water,  it is just too much for the system. I don't know. just a thought.

 

I must try and get back to sleep now. I have been working the afternoon - midnite shift and it messes me up the next day, because I can't come home and fall right asleep, so I stay up and get on the computer and then fall asleep around 2 or 2:30 Am and then if I don't get enough sleep, I have a hard time staying up past midnite to make it home/drive. The shift is not good for me I think. I like it because you avoid rush hour and hardly anyone stays that late, so you are kind of on your own at work and sometimes the work runs out, so you can just read a book or a newspaper quietly at your desk till it's time to punch out. But, I have NOT been walking at all, because I wake up just in time to make a few phone calls and then get to work. Maybe run one needed errand a day. I need to walk.

 

ANyone keep walking as a daily thing in their life and how?? It is too late and too dark and scary to walk at midnighe, although I did once at owrk with someone else who got off then. That was great. But she doesn't always work there at nite. I asked another woman who does to walk with me last nite and when I punched out, she was gone. GUess she didn't want to walk!1

 

Deb

 

Here is a what I have found for suppliers: ( they are in the states only) I am sure there are other ones in other countries. I think I found some on the homepage under Sandara's links.

 

Blanchard Ostomy Products
1510 Raymond Ave.
Glendale, CA 91201
818-242-6789
Karaya wafers, pouches, etc. for ileostomy, urostomy
 

Coloplast, Inc.
1955 West Oak Circle
Marietta, GA 30062-2249
800-533-0464
Colostomy & ileostomy pouches, skin barriers, plugs.
 

ConvaTec, a Bristol-Myers Squibb Company
P.O. Box 5254
Princeton, NJ 08543-5254
800-422-8811 (ostomy nurse on staff!)
Full product line, Sur-Fit Natura, Active Life, Autolock.
 

Cymed Ostomy Co.
1440C Fourth Street
Berkeley, CA 94710
800-582-0707
Full product line includung the MicroSkin Ostomy Pouching System.
 

EHOB (Formerly Cook/VPI)
250 North Belmont Avenue
Indianapolis, IN 46222
800.899.5553
FAX 317.972.4601
Non-Adhesive Ostomy Systems (urostomy, colostomy, ileostomy)
 

Genairex, Inc.
15371 Roosevelt Blvd., Suite 106
Clearwater, FL 33760
727-539-1365
 

Hollister Inc.
2000 Hollister Drive
Libertyville, IL 60048-3746
800-323-4060 (ostomy nurse on staff!)
Full product line: Hollister Flextend, Premier.
 

Marlen Manufacturing & Development Co.
5150 Richmond Road
Bedford, OH 44146-1331
216-292-7060
Full product line: Ultra Duet, Ultra, Skin Shield.
 

Nu-Hope Laboratories, Inc.
P.O. Box 331150
Pacoima, CA 91333-1150
800-899-5017
Urinary, colostomy, ileostomy pouches, adhesives, etc.
 

The Perma-Type Company
83 Northwest Drive
Plainville, CT 06062 (RN on Staff!)
860-747-9999 in CT;  800-243-4234 in other states
Reusable appliances for ileostomy, colostomy, urostomy.
 

Torbot Group, Inc.
1367 Elmwood Ave.
Cranston RI 02910
800-545-4254 (ostomy nurse on staff!)
Full product line, including customized appliances.
 

Debra Kirsch <debrakirsch@...> wrote:

Hi there.. I am awake because I itch. this is maddening. Anyhow.. Sandy.. I was looking thru some supplies and found those disposable bags you wanted to know about.. they are made by Osmore and the insert says 1-800-686-1377. I know that company changed its name, but hopefully that number is the same or it will lead you to another number.

 

There is a website I found and one posting has all these companies you can call for free samples. I don't know how to get that list and then put it on this site, so if anyone does know how to do that and wants to do that, let me know and I will attempt to tell you how to find it. ha ha

 

I have a thought on all those horrible cramps I was getting. Maybe it ws simply not enough water.ANd that when I drink a whole glass of water,  it is just too much for the system. I don't know. just a thought.

 

I must try and get back to sleep now. I have been working the afternoon - midnite shift and it messes me up the next day, because I can't come home and fall right asleep, so I stay up and get on the computer and then fall asleep around 2 or 2:30 Am and then if I don't get enough sleep, I have a hard time staying up past midnite to make it home/drive. The shift is not good for me I think. I like it because you avoid rush hour and hardly anyone stays that late, so you are kind of on your own at work and sometimes the work runs out, so you can just read a book or a newspaper quietly at your desk till it's time to punch out. But, I have NOT been walking at all, because I wake up just in time to make a few phone calls and then get to work. Maybe run one needed errand a day. I need to walk.

 

ANyone keep walking as a daily thing in their life and how?? It is too late and too dark and scary to walk at midnighe, although I did once at owrk with someone else who got off then. That was great. But she doesn't always work there at nite. I asked another woman who does to walk with me last nite and when I punched out, she was gone. GUess she didn't want to walk!1

 

Deb

 

Please take time to visit my web site at: ~ Newly Updated 9/26/04
http://www.geocities.com/mljr_68/independence.html

---

Do you Yahoo!?
Yahoo! Mail - You care about security. So do we.

Hi there everyone,

just wanted to touch base with you all. Its been oh so quiet round

here this past week. I hope everyone is doing alright.



I did go to chat last week, although it was late, I have to confess,

and I know there was some of you in there earlier than me because

Gerrard and Widget told me. Gerrard is a member of our group, and

Widget is a very nice person we met in the chat room. Im hoping to get

in there on time this week, if not on time, then at least not as late

as I was last week.



wishing you all health, peace and happiness, and wealth if your in

need, lord knows, I could do with some right now :-)  but like my mama

used to say, health is the most important thing. bless her.



take care

Sandara

Hi there everyone,
just wanted to touch base with you all. Its been oh so quiet round
here this past week. I hope everyone is doing alright.

I did go to chat last week, although it was late, I have to confess,
and I know there was some of you in there earlier than me because
Gerrard and Widget told me. Gerrard is a member of our group, and
Widget is a very nice person we met in the chat room. Im hoping to get
in there on time this week, if not on time, then at least not as late
as I was last week.

wishing you all health, peace and happiness, and wealth if your in
need, lord knows, I could do with some right now :-) but like my mama
used to say, health is the most important thing. bless her.

take care
Sandara

Hi there everyone,
just wanted to touch base with you all. Its been oh so quiet round
here this past week. I hope everyone is doing alright.

I did go to chat last week, although it was late, I have to confess,
and I know there was some of you in there earlier than me because
Gerrard and Widget told me. Gerrard is a member of our group, and
Widget is a very nice person we met in the chat room. Im hoping to get
in there on time this week, if not on time, then at least not as late
as I was last week.

wishing you all health, peace and happiness, and wealth if your in
need, lord knows, I could do with some right now :-) but like my mama
used to say, health is the most important thing. bless her.

take care
Sandara

Life's greatest treasures are life's simplest pleasures.

http://cprschickie1983.tripod.com/frames.html

                                                                  xoxo Minna xoxo

Hi there everyone,

I just wanted to touch base with you all again. I know know

know...that I have sooo neglected our lovely group, and once again I

do apologise for that.



Its some stuff that Im going through in my private life that is making

it very difficult for me to come online and do my duties here, but

Sandy is here, and Lin too and I am also albeit not altogether.



I will be better soon and back to my usual self, please God. Please

keep posting and keeping you all in my thoughts

take care

all the best

Sandara

Hi there everyone,
I just wanted to touch base with you all again. I know know
know...that I have sooo neglected our lovely group, and once again I
do apologise for that.

Its some stuff that Im going through in my private life that is making
it very difficult for me to come online and do my duties here, but
Sandy is here, and Lin too and I am also albeit not altogether.

I will be better soon and back to my usual self, please God. Please
keep posting and keeping you all in my thoughts
take care
all the best
Sandara

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Thank you so much Lin, I am going to try and make it to chat

tonight.

all the best to you

hugs

Sandara





--- In stomacentralint@yahoogroups.com, i_poof <i_poof@...> wrote:

>

> You take care of things in your personal life first. Sandy and I

will be here for everyone. It is very understandable that you need

to take care of personal issues before on line. Take your time and

we will be here when you get back.

>

>   Linda

>

> sandara4_sci <Despoinaj@...> wrote:

>           Hi there everyone,

> I just wanted to touch base with you all again. I know know

> know...that I have sooo neglected our lovely group, and once again

I

> do apologise for that.

>

> Its some stuff that Im going through in my private life that is

making

> it very difficult for me to come online and do my duties here, but

> Sandy is here, and Lin too and I am also albeit not altogether.

>

> I will be better soon and back to my usual self, please God.

Please

> keep posting and keeping you all in my thoughts

> take care

> all the best

> Sandara

>

>

>

>

>

>

>  __________________________________________________

> Do You Yahoo!?

> Tired of spam?  Yahoo! Mail has the best spam protection around

> http://mail.yahoo.com

>

How you all doing? its been a long time since I posted, and that is due to

complications with my knee. For me, my knee problems being a birth defect and

having a knee replacement has been a huge trial for me. I am struggling daily to

walk. I have good days and bad days, but mostly even on a good day I am having

to use pain killers too much I think. So its been a bit of a rough ride.

Anyways, enough about me.



How is everyone else doing? if you feel up to it, give me an update.



I wish you all well, take care

Sandara