Dear Group,
I want to first let you all know how bad I feel about not keeping in contact with things that are going on in the group. I am trying to catch up so, if you get a message about something that was written eons ago please just know I am sorry and a little embarrassed for allowing such a wonderful group to get lost.
I have to say in my defense alot has been going on physically and mentally in the last 6 months.
We finally decided to buy a house in September only to have my husband get laid off a week after the signing. He is still out of work but after today it looks like he might have finally found a job. Keep your fingers crossed.
Needless to say it has been very tense and a anxious time. We have had to do things alot differently than we had planned on doing and watching money is really hard when everything seems to always be going up in price.
We had hoped to have the house re-sided but that is now on the back burner for a while. We may just have to patch and paint to try and fix it up the best we can with what we have to spend. I have been very lucky though the neighborhood that we moved into is all one big family and all have said that they wouldn't mind helping us paint the house and I also have people from church willing to help also so, it's not all bad. With my husband always by my side and my family not to far away and all the great people in my new community I am not alone and that is one good thing. It really does make a big difference knowing that you have people that are on your side.
I really love this neighborhood even though there are alot of us who are disabled in some way or another they are still there and willing to help to do what they can.
Anyway as far as my health goes it isn't been going to well. I just recently was taken to the hospital and on the way in I stopped breathing. They aren't really sure why but I am on oxygen 24/7 and I had been sick and wasn't able to take all my pills so that may have had something to do with it. I have so much going on at the same time that even I have a hard time trying to keep things straight.
I am waiting on a Call from the Chiari Institute on Long Island, NY to get in and see the Dr.s and see if they have any idea as to what is causing all of my problems.There are so many different things going on that I can't even begin to keep it all together. I am having double vision, balance problems, my tethered cord is causing my legs to get weaker, and hurt more and more every day which it seems is now leading me to fall alot.
I broke my ribs, wrist and had to have surgery on my wrist to have it plated and screwed and just as I got recovered from that I fell again and tore the tendons in the same wrist. It means surgery but it is a 6 month recovery period and I am waiting as long as I can to at least see if I can get a hold of the Chiari center first. Plus it is hard to us crutches either way I go. I won't be able to use it at all for 2 months and then very little for the next 2 months and then physically therapy for the next two months. That is if everything all goes as planned .Which with me is not usually the case. LOL
I have been in the hospital multiple times for Kidney( I only have one kidney left for those of you who aren't to familiar with me or know me at all). infections that for the life of me I can not figure out why they seem to come about every 3 months But, I have a port now that allows me to do some of the IV antibiotic therapy at home if I am not to sick.
There is so much going on I wouldn't want to bore you even more than I already have and just wanted to let the people who mean alot to me know that I am not dead or trying to ignore you I just have a lot on my plate right now and I wanted you to all know I think about you all the time even though I haven't been of much help to anyone and I haven't been on the computer much anymore that I truly care about what is going on in your lives and would love to hear from some of you and please use my phyl865@... address as I am having problems with the other address some of you might have.
Now that I have truly bored you to death I am going to try and get some sleep which is few and far between these days and I really would love to hear from you even if you don't know me. I would love to meet somebody new and hear from the ones that I use to talk to also.
Sorry for the length of this message. I just felt like it was time to let you in on a little of what has been going on in my life and as far as my ureterostomy and ilieostomy go that is a whole other message.
I hope that this message finds other people in good health and for those of you that aren't I will be praying for all of you that things get better for you and I will pray for the continued good health of all.
All my Love goes out to all of you and your families and hope that you all have a great Summer. If we truly ever get one here in Maine.LOL
Phyl  |
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