Hello Everyone.... I'm new to this group, and thought I would introduce myself! I already belong to another Crouzon Support Group, but thought it would be...
Dear John, I'm new to this group, and just read your letter about you being the oldest member without any surgery. Well, I'm only 32, but I haven't had any...
HI Judi, Wow, your "story" sounds exactly like mine, except I am older than you. I am 56, but have 'untreated' crouzons, but I guess it would be considered ...
John Dossey
jdossey@...
Nov 6, 2001 1:51 pm
952
Welcome to the group...I too am fairly new to this group but not the youngster any more....I will be turning 58 (ouch) this month and that in itself is a bit...
maryo55@...
Nov 6, 2001 8:17 pm
953
Hi Judi, I am from MO.. I live near KC. I had all my surgeries done here in KC. Some of it done by local surgeons and some done by Dr. Tessier. I declared ...
John, Thanks for your letter. It is so interesting to me to meet others who have shared some of the same experiences as I have. It does sound like we have a...
Hello, Welcome Judi.. First of all I am pretty queit on here. I came here because I have a child who was born with a bilateral cleft lip and palate. You can...
Chapman
elchap@...
Nov 7, 2001 3:54 am
956
Hi Judi, You ask so many of the same questions I have asked myself over the years. I can address them from my own personal feelings, but I think everyone is ...
John Dossey
jdossey@...
Nov 7, 2001 6:10 pm
957
Hi Judi!: Welcome to this small but great group of people. We are at times quiet but when someone needs us we are here. I'm Gisela Dossey, born and raised in...
Gisela Dossey
giseladossey@...
Nov 8, 2001 2:26 am
958
Gisela, Thanks for your letter... I was able to relate to it so well. I just got done writing John a very long letter... not much info, but long, none the...
Hi everyone, I am just joining this group, I'd like to introduce myself. My name is Yeti, 33 years, from Indonesia, I have 3 children that one of them has...
Yeti Widiati
vpme17@...
Nov 8, 2001 11:24 am
960
Hello Yeti, I live in the midwest in the USA. I have crouzons and I know how your daughter feels. I felt that way when I was very young. But I was very ...
John Dossey
jdossey@...
Nov 8, 2001 1:23 pm
961
Welcome Yeti!: First of all, your English is WONDERFUL!! I can relate to you because English is not my native language. I speak Spanish. My brain thinks, ...
Gisela Dossey
giseladossey@...
Nov 8, 2001 2:56 pm
962
Hi again Judi: No need to thanks for my letter. I remembered when I joined a previous Crouzon's support group I was so hungry for information, I wanted to...
Gisela Dossey
giseladossey@...
Nov 8, 2001 3:12 pm
963
Dear Yeti: Saw you letter to stitches and had to answer. First Welcome to this woderful supportive group. Second your English is understandable so no ...
maryo55@...
Nov 8, 2001 9:12 pm
964
Hi, I grew up in the suburbs and as you know still live there. Judi, I live in Raytown. I have always felt a part of the world. I am a family member ...
Hi Yeti, Welcome to the group! I am Kristi and I am 37 yrs. old and was born with a condition called arhinia, which is absence of the nose. To learn more...
Dear John, Gisela, Judi, Kristi, Mary. Thank you for your quick response to my email. Thanks also for your support to me, I think this group can fulfill my...
Yeti Widiati
vpme17@...
Nov 11, 2001 12:49 am
967
Hi Yeti, I am glad Ghina has had improvement. It sounds like the doctors did the operations to release the sutures of the skull to allow it to grow, and make ...
John Dossey
jdossey@...
Nov 11, 2001 6:17 am
968
Yeti: I'm going to try a little bit of Bahasa Indonesian. I wished I knew more. Terima kasih for joining our group. I sure hope we can help you in any way we...
Gisela Dossey
giseladossey@...
Nov 11, 2001 10:06 pm
969
Halo Gisela Senang sekali kamu mencoba berbahasa Indonesia.Dari mana kamu belajar Bahasa Indonesia? Apakah ada orang Indonesia di sana, ataukah kamu belajar...
Yeti Widiati
vpme17@...
Nov 12, 2001 12:10 am
970
Selamat sore Yeti!: Permisi, Tidak Saya tidak tahu Bahasa Indonesia. Saya bicara Bahasa Spanyol. Senang berkenalan dengan anda. Suami Saya tidak tahu Bahasa...
Gisela Dossey
giseladossey@...
Nov 12, 2001 5:11 am
971
Hi Kristi: Sorry to hear about your foot. I've had that happened to me but at least I know the cause. I've inherited my mother's side of the family in regards...
Gisela Dossey
giseladossey@...
Nov 12, 2001 5:24 am
972
Hi Yeti, It's Judi!! I wanted to try to put your mind at ease a bit, and let you know that I have never had any surgeries for my Crouzons, and I have led a ...
Hi All! Just wanted to introduce myself. I am new here! My name is Eve I am from Chicago, IL. I have a unilateral cleft lip and palate on the left side. Anyone...
Welcome Eve, All of us have either had reconstructive surgery or have children or family who have. We all have a pretty good idea what to expect. I am sure the...
John Dossey
jdossey@...
Nov 20, 2001 3:44 am
975
Hello Eve, Unfortunately, I can't help you with your question... my daughter and I both have Crouzons, and my daughter has only had one surgery (Mid-face...
Hello everybody!! Merry Christmas and a happy new year Many greetings from -Jorån- www.geocities.com/joranno/mypage.html MSN Photos is the easiest way to...
