Hello. It is me again. I know you guys must think I am not here unless I have problems but really I do email some of you privately when I think I have...
quinternp@...
May 31, 2001 6:33 pm
917
Hi Pam, I can relate to several things you mentioned. First my daughter was born with NO ear canals at all. She had the first surgery to literally MAKE the ear...
John Dossey
jdossey@...
May 31, 2001 8:00 pm
918
Hello: Your e-mail was sent to me and I am not sure who sent it however I too was born with no inner ear fromationa dn had the type of surgery you soke of...
maryo55@...
Jun 2, 2001 3:27 am
919
Hello this e-mail was sent to me by whom I do not know but they must know me and my problems because I too was born without any inner ear formation. I had...
maryo55@...
Jun 2, 2001 3:37 am
920
Hello Everyone, I am writing to let you all know that I will be off the internet for awhile. Due to financial problems at home we had to start cutting back...
Theresa
classylady38@...
Jul 18, 2001 9:34 pm
921
Dear Theresa: Sorry to hear you're leaving... :'( Sure hope everything turns out fine for you and your family. I understand exactly what you're going...
Gisela Dossey
giseladossey@...
Jul 19, 2001 4:00 am
922
Hello Theresa, I know what you mean about the cutting back. I've thought about doing the same thing, except for the fact that there are three young people who...
TimeToRhyme@...
Jul 19, 2001 4:32 am
923
Glad to see you're still out there! Ken...
TimeToRhyme@...
Jul 19, 2001 8:06 pm
924
Hi Ken, It's great to hear from you. Yes, we're still out here in cyber land. We're the original "Cyber couple" who met on the internet way back when it wasn't...
John Dossey
jdossey@...
Jul 20, 2001 12:10 am
925
Hi John and Gisela, Wow! What a cool trip! It will be a nice time to go then. I am heading to colorful Colorado in two weeks for a week. :-) I can't wait....
Kristi
kristi@...
Jul 20, 2001 10:19 am
926
Hi. My name is Kari and I am mom to Amanda 17, Ashley 10 and Brandon 6 who has a unilateral cleft lip and palate. I am 31 and married to hubby Walt 42. We...
kazy z
kazyk@...
Jul 29, 2001 7:21 pm
927
Hi Kari: Welcome to Stitches! My name is Gisela Dossey, native of the tropical Island of Puerto Rico, Commonwealth of the USA. I was born with Crouzon's ...
Gisela Dossey
giseladossey@...
Jul 29, 2001 8:55 pm
928
Hi Kari, Welcome to STITCHES. This is a nice group of people. I am probably the "old timer" of the group. I am a 55 year old computer programmer in Cincinnati ...
John Dossey
jdossey@...
Jul 29, 2001 9:38 pm
929
Hi Kari: I think I have John beat by a few years! I am almost 58 yo and do not adnit that to too many! I was born with what was first diagnosised as ...
maryo55@...
Jul 30, 2001 1:32 am
930
Hi Mary, my name is April and my son 2nd son was born with craniosynostosis, he had his first surgery in July of 2000. My question to you is did you have more...
April Trahan
trahan.caps@...
Jul 30, 2001 2:12 am
931
Hi April: I was the first born and had a sister born two and half years later without any problems..... There was no history of any problems like this in...
maryo55@...
Jul 31, 2001 2:32 pm
932
Thank you Mary for answering my questions. I do have the fear that he will have to deal with headaches, some members of the support group are dealing with...
April Trahan
trahan.caps@...
Jul 31, 2001 7:36 pm
933
Hi April, I probably am a good example of an older adult who has lived through a lot of years with absolutely NO surgeries, and I am doing pretty good. I agree...
John Dossey
jdossey@...
Jul 31, 2001 7:51 pm
934
Hi April: Interesting to know about this because since I was a little girl (I can even remember in preschool) my mom giving me St. Joseph's children's aspirin...
Gisela Dossey
giseladossey@...
Jul 31, 2001 7:54 pm
935
In a message dated 7/31/2001 10:33:23 AM Eastern Daylight Time,...
maryo55@...
Aug 2, 2001 3:33 am
936
Am I in the right place? I am trying to research information about people who have had mastoid surgeries. My mother is 50 yrs. old and has had 17 mastoid...
cdyates@...
Aug 8, 2001 3:27 am
937
Danell: Hi I aam a few years older that your Mom and I to have had Mastoid surgery. When I was a young child the drs tried to creat in inner ear as I was...
maryo55@...
Aug 14, 2001 1:52 am
938
Hi! I joined this group yesterday, and I am going to introduce myself. I am a 18 years old girl from Norway, who is born with Goldenhar Syndrome. I am also a...
Hi Jorån: Welcome to Stitches!! It's good to have a new member.. We are a small but very close knit and caring group of people who share the common...
Gisela Dossey
giseladossey@...
Oct 24, 2001 2:39 pm
941
Hi Joran, Welcome to our little group. I am the old guy who is married to Gisela Dossey. We actually met on the Internet through a support group for people ...
John Dossey
jdossey@...
Oct 25, 2001 12:12 am
942
Welcome: this is a great place to get information and support. I am an oldie (57yo) but still somewhat active. I have never had an oppurnity to meet or even...
maryo55@...
Oct 25, 2001 5:37 pm
943
Hi! Thanks for the nice mails. I have some questions to you: Do you know about pages about your syndromes? I think it is interesting learning more about other...
There are no "stupid" questions. Ask anything you care to. This is kind of a quiet group but if you need something or have questions everyone speaks up ... ...
Hi there: There are no stupid questions only stupid answers..... In learning to handle the way other people look at me, it is an ongoing process. As I have...
