Just got my BS and i wasnt even required to turn up! Just called these people 801 697-0461, filled out a few forms and a bit of paperwork and was accredited ...
boni-greenslade728@...
Jul 30, 2006 7:22 am
1198
My daughter Kaitlyn was born with a BCLCP as well as an extra digit on her R hand and a gray "film" over her R eye, she also has a toe on her R foot that is...
Hello Erica, I cant explain a lot of Kaitlyns problems EXCEPT I am familiar with hydrocephalus. My oldest daughter was born with crouzons syndrome, and had...
John Dossey
jdossey@...
Sep 12, 2006 1:29 pm
1200
Hi Everyone, it's been awhile since I posted but I have great news. On Thursday this week the 28th we are adopting our little girl. FINALLY! We have had her...
Just got my masters in Science and didnt even have to turn up to class... how good is that? Just phoned these fellows 1-801-697-0461 and they got me...
junelle-coyne845@...
Feb 7, 2007 2:46 pm
1203
well ive been busy the last few weeks moving into my brand new house...i never thought i would get such a good deal until i found...
junelle-coyne845@...
Feb 7, 2007 6:07 pm
1204
hey these guys just fixed up my current house loan, consolidated all the old ones, and im saving 450 bucks a month...
junelle-coyne845@...
Feb 8, 2007 7:16 pm
1205
Hi everyone, i saw this group and thought ya'll might be able to understand what i'm going through. my son Hunter Gage was born november 26th 2006 and was...
Dear Becky, Our prayers are for your sweet Hunter, you and your family. My name is Gisela Dossey, I was born with Crouzon's Syndrome and even though I don't...
Gisela Dossey
giseladossey@...
Feb 11, 2007 6:19 am
1207
Hi gisela, thankyou for your kind welcome. isn't weird how genetics work? after we found out about his di george syndrome, they tested me for the Q-22...
hey! check this out.. http://nameusout.info/sldl ..basically it's saved me a ton of money, you're placed up for auction and financers outbid each...
junelle-coyne845@...
Feb 13, 2007 3:10 pm
1209
Hi Becky! My name is Theresa, and my daughter Bridget has Pfeiffer Syndrome. She has a trach, G-button and shunt. While she has a lot of "hardware", she is a...
hi everyone i posted some new pictures on here of my little miracle. just so you can see how cute he is after his cleft lip surgery. take care, becky...
well ive been busy the last few weeks moving into my brand new house...i never thought i would get such a good deal until i found http://myownwaynow.info/ipsg...
junelle-coyne845@...
Feb 14, 2007 6:14 am
1213
Hi Theresa, glad to hear bridget has adjusted well to everything. they're in the process now of trying to dis-continue the ventalator, they want to try it...
Hi Becky and Theresa, Welcome to our little group. I am John Dossey, husband of Gisela Dossey (also on this group). I was born with crouzons syndrome in 1945,...
hi john, thankyou for your kind welcome, sounds like you know what we are going through. it's a long road ahead but well worth it for my little miracle. take...
yo these guys just fixed up my current house loan, consolidated all the old ones, and im saving 300 bucks a month http://nipitout.info/qdfx...
junelle-coyne845@...
Feb 17, 2007 5:21 am
1217
hey guys, well day number 5 now Hunter has been completley off the ventalator!!! he only has 1 liter of oxygen with the oxyvent. i'm so happy. he is doing...
Becky, Our prayers are with you. I certainly understand your feeling about just wanting to be HOME. That would be great. My best wishes for Hunters continued...
John, thankyou agian, I truley believe everyone's prayers have been helping. ~Becky Visalia, CA ... just ... for your ... so ... be ... for ... then a ... ...
yo these guys just fixed up my current house loan, consolidated all the old ones, and im saving 300 bucks a month http://yauchtclub.info/xiwt...
junelle-coyne845@...
Feb 18, 2007 12:17 pm
1221
Hello, My name is Kelly and I'm 25 and have Apert Syndrome. I live in Northern California. I belong to another online support group and love it so much I...
Hello, My name is Kelly and I'm 25 and have Apert Syndrome. I live in Northern California. I belong to another online support group and love it so much I...
Hi everyone, my son is almost 3 months old and has crouzon's. My husband does as well. We could use information, support, and encouragement right now as we...
Welcome Jennifer, We all understand how difficult it is to make those decisions about major surgery for our children. We might not all agree on the timing of...
Hi everyone, I was downloading pictures from my camera onto the computer and I thought I'd put a couple in the photo album so you all could see what I look...
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