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stitches · We are a support group for all persons with Craniofacial problems. These include Crouzon's Syndrome, Cleft-Lip, Aperts, Arhin
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Messages 1192 - 1221 of 1284   Oldest  |  < Older  |  Newer >  |  Newest
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1192
Looking for families in the Southern California area. My son has Crouzon-Pfeiffers. Hoping to find someone close to home. Thank You!...
mommysbudbud
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Feb 19, 2006
1:46 am
1193
... sometimes, but then there are those who will surprise ya. My oldest son wasn't happy we were going to adopt a child with Medical Needs or was "different",...
paula
paulasangelb...
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Feb 21, 2006
10:46 pm
1194
I know some buddys who have met a few nice honey's off of this kind of thing (here is the place they used: http://www.whatagreatspottobe.info/qbpw , but...
boni-greenslade728@...
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Mar 3, 2006
10:00 am
1195
who here spent last weekend alone? *raises hand*. pretty sad huh, anyway, who here has plans this weekend *raises hand* :) :). Who here, wants to know how...
boni-greenslade728@...
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Mar 13, 2006
3:22 pm
1196
Wow, what a blast, what a trip actually. was kind of getting bored with the net, was gonna get rid of my broadband and go back to 56k because i hardly...
boni-greenslade728@...
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Mar 26, 2006
4:57 pm
1197
Just got my BS and i wasnt even required to turn up! Just called these people 801 697-0461, filled out a few forms and a bit of paperwork and was accredited ...
boni-greenslade728@...
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Jul 30, 2006
7:22 am
1198
My daughter Kaitlyn was born with a BCLCP as well as an extra digit on her R hand and a gray "film" over her R eye, she also has a toe on her R foot that is...
tx24chik
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Sep 12, 2006
3:15 am
1199
Hello Erica, I cant explain a lot of Kaitlyns problems EXCEPT I am familiar with hydrocephalus. My oldest daughter was born with crouzons syndrome, and had...
John Dossey
jdossey@...
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Sep 12, 2006
1:29 pm
1200
Hi Everyone, it's been awhile since I posted but I have great news. On Thursday this week the 28th we are adopting our little girl. FINALLY! We have had her...
paula
paulasangelb...
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Sep 27, 2006
4:36 am
1201
Congratulations, Paula! Best wishes Jorån - 23 f, with Goldenhar syndrome ... Med helsing Jorån Østerholt Dalane www.joranjoran.blogspot.com ...
Jorån Østerholt...
joranno
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Sep 27, 2006
12:52 pm
1202
Just got my masters in Science and didnt even have to turn up to class... how good is that? Just phoned these fellows 1-801-697-0461 and they got me...
junelle-coyne845@...
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Feb 7, 2007
2:46 pm
1203
well ive been busy the last few weeks moving into my brand new house...i never thought i would get such a good deal until i found...
junelle-coyne845@...
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Feb 7, 2007
6:07 pm
1204
hey these guys just fixed up my current house loan, consolidated all the old ones, and im saving 450 bucks a month...
junelle-coyne845@...
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Feb 8, 2007
7:16 pm
1205
Hi everyone, i saw this group and thought ya'll might be able to understand what i'm going through. my son Hunter Gage was born november 26th 2006 and was...
becky
shycountrygrl4u
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Feb 11, 2007
5:44 am
1206
Dear Becky, Our prayers are for your sweet Hunter, you and your family. My name is Gisela Dossey, I was born with Crouzon's Syndrome and even though I don't...
Gisela Dossey
giseladossey@...
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Feb 11, 2007
6:19 am
1207
Hi gisela, thankyou for your kind welcome. isn't weird how genetics work? after we found out about his di george syndrome, they tested me for the Q-22...
becky
shycountrygrl4u
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Feb 12, 2007
7:14 am
1208
hey! check this out.. http://nameusout.info/sldl ..basically it's saved me a ton of money, you're placed up for auction and financers outbid each...
junelle-coyne845@...
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Feb 13, 2007
3:10 pm
1209
Hi Becky! My name is Theresa, and my daughter Bridget has Pfeiffer Syndrome. She has a trach, G-button and shunt. While she has a lot of "hardware", she is a...
Theresa Hospodka
thospodka
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Feb 14, 2007
4:23 am
1210
hi everyone i posted some new pictures on here of my little miracle. just so you can see how cute he is after his cleft lip surgery. take care, becky...
becky
shycountrygrl4u
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Feb 14, 2007
5:34 am
1211
hi we're kinda in southern cali, bout an hour south of fresno.....my son has di'george syndrome new pictures are posted...
becky
shycountrygrl4u
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Feb 14, 2007
5:35 am
1212
well ive been busy the last few weeks moving into my brand new house...i never thought i would get such a good deal until i found http://myownwaynow.info/ipsg...
junelle-coyne845@...
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Feb 14, 2007
6:14 am
1213
Hi Theresa, glad to hear bridget has adjusted well to everything. they're in the process now of trying to dis-continue the ventalator, they want to try it...
becky
shycountrygrl4u
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Feb 15, 2007
5:24 am
1214
Hi Becky and Theresa, Welcome to our little group. I am John Dossey, husband of Gisela Dossey (also on this group). I was born with crouzons syndrome in 1945,...
John Dossey
dossey_1945
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Feb 15, 2007
1:59 pm
1215
hi john, thankyou for your kind welcome, sounds like you know what we are going through. it's a long road ahead but well worth it for my little miracle. take...
becky
shycountrygrl4u
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Feb 15, 2007
11:23 pm
1216
yo these guys just fixed up my current house loan, consolidated all the old ones, and im saving 300 bucks a month http://nipitout.info/qdfx...
junelle-coyne845@...
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Feb 17, 2007
5:21 am
1217
hey guys, well day number 5 now Hunter has been completley off the ventalator!!! he only has 1 liter of oxygen with the oxyvent. i'm so happy. he is doing...
becky
shycountrygrl4u
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Feb 17, 2007
11:56 pm
1218
Becky, Our prayers are with you. I certainly understand your feeling about just wanting to be HOME. That would be great. My best wishes for Hunters continued...
John Dossey
dossey_1945
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Feb 18, 2007
12:04 am
1219
John, thankyou agian, I truley believe everyone's prayers have been helping. ~Becky Visalia, CA ... just ... for your ... so ... be ... for ... then a ... ...
becky
shycountrygrl4u
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Feb 18, 2007
7:06 am
1220
yo these guys just fixed up my current house loan, consolidated all the old ones, and im saving 300 bucks a month http://yauchtclub.info/xiwt...
junelle-coyne845@...
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Feb 18, 2007
12:17 pm
1221
Hello, My name is Kelly and I'm 25 and have Apert Syndrome. I live in Northern California. I belong to another online support group and love it so much I...
kspadini2004
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Feb 19, 2007
8:55 am
Messages 1192 - 1221 of 1284   Oldest  |  < Older  |  Newer >  |  Newest
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