Hi Jane, nice to "meet" you! I have a son, Ty, with Sticklers. Are you a member of SSSG? What kind of horse do you have? We have race horses and my daughter...
hi barb - yes i am a member of sssg.<br>i have a 23 year old welsh section c gelding - who is my baby.... he thinks he is 2 most of the time anyway.<br><br>how...
hi again - i had a look at your home page, it is really interesting and i loved the pic of tyler and lauren. <br>i have never actually met any one else with ...
I was happy to see someone else joined my club. When I started it I didn't think anyone would join or know what stickler's was..I so interested in knowing more...
I just joined and am glad to be able to share some info with people with the same "Curse" as I call it.LOL My name is Chris and I am a 30 yr old with stickler...
Hi Jane, we live in Canada, near Montreal. Welcome to Chris too! Tyler was born with a cleft palate, Pierre Robin sequence, he is hearing impaired, has severe...
I'll send out the link when I email others in Canada with it. There is also a list server and discussion forum available through the sticklers.org website....
U said Tyler was the only one in the family with it. U have other children unaffected by it? I was the first in my family to have it and was passed to everyone...
Hi, yes Tyler is the first in our family to have it - it is a spontaneous mutation. I have a daughter who is unaffected and no one in our families has ...
The 2002 conference is planned for Baltimore the weekend of June 14-16. I<br>signed a contract today with the AmeriSuites at the Baltimore Airport<br>location....
hi - i'm really glad that this club is growing slowly, it is really nice to meet you.<br><br>tyler sounds like a fab kid, he has a hell of a lot to go through...
You know I think it is so strange that Chris and I have got 2 boys together and only one really has the problems such as our oldest son Coty he has vision,...
Hi Val<br>i have worn glasses since i was 18months, then lenses from aged 11. The lenses mean i can go out with a chaperone as you get that little bit better...
just a quick one - i have never heard of anyone with a cleft lip and sticklers, i have always believed they were separate conditions. The sticklers being ...
Hi Val, does Jaycee actually have Sticklers? There are alot of families affected like that - many members have Sticklers, but there are many different symptoms...
Yes Jaycee actually has sticklers..He was diagnosed when he was born he had a cleft palate and had to have a g-tube for feeding. Jaycee spent about a week in...
Ty was the same - he was in hospital for 2 months with feeding and breathing difficulties. Luckily the drs. were able to manage his breathing without having to...
I have raised APBT since I was 14.I wouldn't call myself a breeder.I just love the dogs and what they stand for.They will do almost anything they can to please...
about pitbulls<br>yes i believe they are banned in uk but don't know the in's and out's of this law. my friend has a cross - gorgeous kind dog - he is crossed...
sorry chris - dimbo here - i just read about you having sticklers too - do you have any symptoms then, and what was your birth condition then - i had cp and...
hi val - i posted a pic of myself some time ago, i don't really mind where you post it - but i'm not sure how i'd feel about it on the home page.<br>take care...
Hey no problem......I too was born with a cleft palate and pierre robin.I have always had hyperextendable joints and worn glasses since I can remember.I was...
hi pitdog<br>i am not having hip replacements yet - they are going to do bone re-surfacing first, hopefully soon - i will be seeing my doctors in the next few...
