sticklersyndrome : Messages : 77-106 of 798

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77	Last wednesday, I took Little Dean to see the opthamologist, I was expecting a clean bill of eye health. Instead, the doctor told me that Little Dean is...	mandy_keeslar <mandy_... mandy_keeslar	Feb 1, 2003 8:52 pm
78	Awhile back I had posted that my 5 month old baby needed glasses...well, now he has them and I posted a picture of him and another picture of him and his...	mandy_keeslar <mandy_... mandy_keeslar	Feb 11, 2003 10:35 pm
79	Hi to all..my sorrow goes out to all of you who were cursed with this..my name is Meggan and i have stickler syndrome..i was diagnosed with it in 1994 when i...	poncesqueen	Mar 6, 2003 3:30 am
80	I have posted some brand new pics of Little Dean...thought I'd share. mandy...	mandy_keeslar	Mar 16, 2003 4:23 am
81	mandy, the pictures of little dean were soooo cute...he is a doll..meggan...	poncesqueen	Mar 16, 2003 2:58 pm
82	I just wanted to let all know I have built a Stickler's Outreach page, in the hopes of connecting with those affected with Stickler's on the West Coast,...	Shelly Moore teckiemom	Mar 17, 2003 7:03 pm
83	Well today my 7 year old son with Sticklers had reconstructive ear surgery at St. Louis Childrens Hospital. I was wondering if any of you have had any problems...	val575	Apr 3, 2003 2:29 am
84	Hi Val - hope that all has gone well with the surgery. What type of surgery was it? My son has severe hearing loss and there is a problem I guess with the...	sheapc	Apr 10, 2003 6:16 pm
85	My son had Otoplasy done because his ears had no cartilage in them and they were growing down and out and it would eventually cause him deafness but he has...	val575	Apr 14, 2003 2:33 am
86	Hi there, I have been a member of this group for a while now but haven't actually posted a message. Both myself and my son were born with Pierre Robin...	faybaby24202	Apr 24, 2003 9:18 am
87	Hello I was told by a doctor in St. Louis at Childrens that it is common because my son experiences it. He is on a antidepressent now and it is of course...	val575	Apr 26, 2003 10:21 pm
88	http://hometown.aol.com/coach001/page2.html...	val575	Apr 26, 2003 10:24 pm
89	Hi Fay, re the testing - it is very important to note that there is no test for Stickler syndrome. They can test to see if a couple of the known mutations...	sheapc	May 25, 2003 9:17 pm
90	Hi Val, as I just put in my post to Fay, Ty is going through this now too. We are going to homeschool him for awhile, he has just been through too much...	sheapc	May 25, 2003 9:21 pm
91	Hi I am Kay. I have been married to Stephen for almost 10 years. He was born with Marshall Syndrome which is very close to Sticklers. We have 3 beautiful...	Kay aka mom2three a_mom2three	May 30, 2003 2:31 am
92	Hello!! I am new to the board. I was diagnosed with Stickler-Marshall Syndrome a few years ago. A little about myself...I am 23 and from Minnesota. Look...	Melanie melaniejbodin	Jun 2, 2003 5:51 pm
93	Welcome! My husband is Stephen who has Marshall Syndrome. In turn 2 of my children do too. Ashlyn is 5 and Aaron 8 months. Kay aka mom2three Wife to Stephen...	Kay aka mom2three a_mom2three	Jun 2, 2003 6:07 pm
94	Hi, a big welcome to the new members, it is interesting to hear your stories. I know that depression isn't a symptom of sticklers, however as has been...	laeticia_demorte laeticia_dem...	Jun 2, 2003 9:37 pm
95	Hi Kay- Can you tell me more about how your family is affected by marshall syndrome? Are all the symptoms like stickler syndrome? Did you get tested for...	Melanie melaniejbodin	Jun 2, 2003 10:01 pm
96	There is no real "test" for Marshall. We saw Dr. Day ,genetics, who now works with Dr. Salyer here in Dallas. Dr. Salyer was my husbands surgeon but never...	Kay aka mom2three a_mom2three	Jun 2, 2003 11:00 pm
97	There is another group that has started. It is called SticklerSyndromeSupport. The link is http://groups.yahoo.com/group/SticklerSyndromeSupport/ We plan to...	Melanie melaniejbodin	Aug 4, 2003 7:16 pm
98	I have been having problems with my left eye off and on for quite some time. A few months ago I noticed a feeling of something in my eye, and when I looked at...	Shelly Moore teckiemom	Sep 13, 2003 9:31 pm
99	I have a son w/cleft lip & palate & am trying to find a live chat room to chat w/other parents. Can you do that on here? Every time I go into chat, no one...	japri79	Oct 1, 2003 2:45 am
100	Hiya I don't find that there is many messages on this group. Try this link http://groups.msn.com/CLAPParents where you will find a group for parents of kids...	Fay Mcleod faybaby24202	Oct 1, 2003 11:44 am
101	Hi, I have a son who was born on oct. 8th and has what they call a pierre robin syndrome. I was wondering if anyone can share any experiences/wisdom on whats...	mommies_joy21	Nov 10, 2003 11:51 pm
102	Hi Kristin i was born with prs and cleft palate in the 60's, my cleft was fixed when i was less than a year old. I was never given a trach either but was...	laeticia_demorte laeticia_dem...	Nov 15, 2003 11:41 pm
103	hi, Thanks for the information right now things are a little hetic with Andy b/c he suddenly they think developed an infection but all the tests came back neg....	kristin sunshine_gir...	Nov 16, 2003 11:13 pm
104	I thought this may be a good and safe place to vent. I'm 23 I was born with a cleft I had the surgery at age 3, my speech I'll be blunt less then par till...	loni2414	Dec 3, 2003 4:37 pm
105	hi, I have the same problem. I am 21yrs old and a stay at home mom of two. Well I was born with a cleft palate and I had surgery at the age of 1. And also my...	kristin sunshine_gir...	Dec 8, 2003 8:14 pm
106	Kristin, Thank you for your emai, I have a question for you I was recently advised agaisnt having kids because my current doctor feels that the cleft is 100%...	loni2414	Dec 9, 2003 2:47 pm

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