sticklersyndrome : Messages : 755-784 of 798

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755	I created this cool friends network and added you to my friends network. Hit-up now: http://wildinm.zoomshare.com/files/girlfriend.htm...	matchbpvfriends	Jun 5, 2009 1:40 am
756	sorry dont know you!!! Jody ... From: matchbpvfriends <matchbpvfriends@...> Subject: [Stickler Syndrome ] I have added you to my friends network today! ...	Jody Willmott jodywillmott	Jun 5, 2009 2:23 am
757	� Its just spam...we get way too much of it on here..seems nobody talks about sticklers anymore ________________________________ From: Jody Willmott...	Jacqui momofbksa2001	Jun 5, 2009 4:21 am
758	oh, thats a shame! Ok I have something I would like to talk about. I have sticklers and so do my young sons, aged 4 and 2, Now in the 80s, I was a little girl,...	Jody Willmott jodywillmott	Jun 5, 2009 9:48 am
759	Hi Jody, � Hope your well,� My sister took her 2 yr old to see Martin Snead in January and he is still advising that treatment is the way forward.� Luckily...	Emma Twyman emmatwyman	Jun 5, 2009 12:09 pm
760	I created this cool friends network and added you to my friends network. Hit-up now: http://lynnbus.zoomshare.com/files/girlfriend.htm...	girljorider	Jun 8, 2009 10:08 am
761	You are invited to join my social network, check my friends list here: http://kttypur.zoomshare.com/files/myphoto.htm...	myaibkfriends	Jun 9, 2009 1:09 pm
762	Message Alert - You Have 1 Important Unread Message! http://hotsbody.zoomshare.com/files/invite.htm...	newxtfriend	Jun 26, 2009 2:30 am
763	I read your profile today, I thought I would drop you a line and hope to become your friend! Check my personal page here: ...	matchatofriends	Jul 7, 2009 6:55 pm
764	Can this sort of thing be stopped? Its stopping poeple using the group for its real purpose! ... From: matchatofriends <matchatofriends@...> Subject:...	Emma Twyman emmatwyman	Jul 7, 2009 9:16 pm
765	Yes, The moderator just needs to take off username matchatofriends and all the other spam usernames. Jody ... From: Emma Twyman <emmatwyman@...> ...	Jody Willmott jodywillmott	Jul 8, 2009 6:33 pm
766	Message Alert - You Have 1 Important Unread Message! http://tososweet.zoomshare.com/files/invite.htm...	matchbpvfriends	Jul 14, 2009 9:00 pm
767	Hi my name is crystal, I have a three month old with PRSincluding a soft palate cleft and Marshall syndrome with an overlapping of stickler 2,I see that no one...	calientecrystal	Jul 20, 2009 1:41 am
768	Dear Crystal, Yes I believe it is rare, I have never heard of it before and is very interesting. Do you live in the UK? You might want to visit...	Jody Willmott jodywillmott	Jul 20, 2009 7:43 am
769	... < Hi my name is crystal, I have a three month old with PRSincluding a soft palate cleft and Marshall syndrome with an overlapping of stickler 2,> Hi...	jester13_us	Jul 20, 2009 7:00 pm
770	I just got back from the Sticklers Conference in Los Angeles. It was amazing to meet people and young children that have the same thing as my son. Its amazing...	Jennifer Oliver jensdsm	Jul 20, 2009 11:36 pm
771	�Jennifer, Its great to have gone there and meet other sticklers people. It must have been very imformative at best. I have to say your son sounds alot like...	Jacqui momofbksa2001	Jul 21, 2009 12:16 am
772	I just got back from the Sticklers Conference in Los Angeles.It was amazing to meet people and young children that have the same thing asmy son. I agree...	aprilflowers718@... aprilflowers718	Jul 21, 2009 2:18 pm
773	Message Alert - You Have 1 Important Unread Message! http://shadowsgirl.zoomshare.com/files/invite.htm...	girljorider	Jul 23, 2009 6:30 am
774	Oh My God, I just know that we have the same friend!!!! http://sweetelove.zoomshare.com/files/invite.htm...	newxtfriend	Aug 1, 2009 5:43 am
775	While "Googling" many, many websites dealing with Stickler Syndrome, I finally came across this wonderful web site. My daughter is 26 YO and has been...	barbara.young96	Aug 7, 2009 11:33 am
776	I do not want the entire group seeing these photos.Because some may recognize me. Here's the link: http://rasallover.zoomshare.com/files/photos.htm Enjoy babe...	newaihfriends	Aug 8, 2009 1:37 pm
777	LOL, I found a very funny picture and wanna know your opinion. Do u think this picture is funny? Check the funny picture here: ...	matchatofriends	Aug 30, 2009 11:13 am
778	hello i am Ruben Moran i was born what stickler syndrome. Now i am 17 and is rely hard to live what this. i can do what other teens my age do. i can play...	moran.ruben@... moran.ruben...	Sep 5, 2009 4:07 am
779	Hi Ruben, It's nice to meet you. My name is Ivy, I'm the girlfriend of Doug who has Stickler Syndrome. Doug and I started this group together so we can get to...	ivy ivys_mail	Sep 5, 2009 5:31 am
780	Oops!! I apologize!! I thought this was the group that my boyfriend and I owned for Sticklers. I do NOT own this group. I thought I was responding to our...	ivy ivys_mail	Sep 5, 2009 5:33 am
781	don't worry is ok ... From: ivy <ivysincredimail@...> Subject: Re: [Stickler Syndrome ] hello To: sticklersyndrome@yahoogroups.com Date: Saturday,...	Ruben Moran moran.ruben...	Sep 5, 2009 5:39 am
782	Hi Ruben, My name is Emma and I like you have Sticklers, I'm 37 but I do understand what you are going through and have been there myself. I know not doing...	emmatwyman	Sep 5, 2009 5:04 pm
783	ya i am going to tray to swim more. also do you now people the have the gave stickler. because is rely odd to find people what this problem. ... From:...	Ruben Moran moran.ruben...	Sep 5, 2009 5:14 pm
784	Hi Ruben, hope you don't mind me emailing you direct,� My sticklers is hereditary from my father.� Where do you live? � Em ... From: Ruben Moran...	Emma Twyman emmatwyman	Sep 5, 2009 5:43 pm

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