Hi my son blake has prs and possible stickler syndrome and skelatyal dysplasia, he is almost a month old and we are still in nicu. My question is were any of...
hI MY NAME IS CRYSTAL AND MY SON IS 24 hOURS OLD AND HAS BEIN DIAGNOSED WITH STICKLERS, hE HAS A U SHAPED CLEFT PALLETE AND SMALL CHIN ETC. HE IS ON BREATHING...
Hi Sticklersyndrome@yahoogroups.com, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can...
My name is Jennifer Oliver. My Son, Ian is 10 months old. We live in Huntsville, Alabama. Ian's biological father and most of his siblings has some variant of ...
The fast paced advancements in education and technology require us to keep up to date in the chosen field. We also need to improve our skill sets or study a...
Hi. I was born in 1961 with sticklers although we did not know that it was sticklers until two years ago. I am the oldest of 2 and my youger brother is...
My child was born with a cleft palate due to Pierre Robin Syndrome. I am woundering if anyone knows of some test or something that can be done to determine...
Hello, I am new to this group and just have a few questions hopefully I can get some feed back on. My 3 and a half month old son has cleft palate with the...
My 22 month old son just diagnosed with Type 1 Sticklers. He has heart problems that required open heart surgery. Mild to Moderate Hearing Loss and Severe...
My daughter who is now 14 was born with a cleft palate. The doctors told me she had Pierre Robin Syndrome and said that syndrome caused her cleft palate and...
I came across an online community for individual seeking age gap relationships. Here all the people are seeking age gap relationships. Age is not important in...
Stickler Syndrome may be the most common tissue disorder in the United States, possibly affecting 1 in 10,000 persons, yet not many are aware of the condition,...
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Hi, my name is Val, and I happen to be an RN. But.. my grandaughter was born sunday June 1 , with Pierre Robin sequence. she has a cleft palate and a...
Hi, HealthChapter.com ( http://healthchapter.com ) is a health based social network of people sharing their disease experiences, treatment options, knowledge...
As the business war on the air is hotting up with so many low-budget airlines dominating the sky, the passengers can now enjoy the best deals. The webguide -...
Hi Valerie- I am sorry I can't figure out the Yahoo messenger. My son is only 3 months old but has been diagnosed with Stickler's-I was wondering how...
As most of you know, we had to go to NYC this past Saturday, because a producer from "America's Got Talent' saw Brennon's videos on my Youtube account and...