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2 May 27, 2009
1:26 pm

matchatofriends
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Hi my son blake has prs and possible stickler syndrome and skelatyal dysplasia, he is almost a month old and we are still in nicu. My question is were any of...
1 May 9, 2009
9:11 pm

calientecrystal
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I want to meet you. Give me a chance! Click here to chat with me online: http://dewardyr.zoomshare.com/files/chat.htm...
3 May 9, 2009
3:23 am

girlaohblog
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Hi, You can see a list of my groups on Grouply at the link below. Maybe you'll find some you want to join. nicole Here's the link: ...
1 May 4, 2009
11:01 pm

nicole seaboy
newmom7_13_04
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hI MY NAME IS CRYSTAL AND MY SON IS 24 hOURS OLD AND HAS BEIN DIAGNOSED WITH STICKLERS, hE HAS A U SHAPED CLEFT PALLETE AND SMALL CHIN ETC. HE IS ON BREATHING...
15 Apr 19, 2009
11:58 pm

deb
caliroze2002
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Hi Sticklersyndrome@yahoogroups.com, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can...
1 Apr 16, 2009
3:37 pm

Lori Taylor
daveloritaylor
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I recommend you take a look at this... Check it here: http://vrginia.zoomshare.com/files/chicks.htm...
1 Mar 12, 2009
10:31 am

harleyefchick
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My name is Jennifer Oliver. My Son, Ian is 10 months old. We live in Huntsville, Alabama. Ian's biological father and most of his siblings has some variant of ...
3 Oct 4, 2008
8:26 pm

Becky
becmorhei
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The fast paced advancements in education and technology require us to keep up to date in the chosen field. We also need to improve our skill sets or study a...
1 Sep 22, 2008
12:23 pm

bernard_watt2001
bernard_watt...
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Hi.   I was born in 1961 with sticklers although we did not know that it was sticklers until two years ago.  I am the oldest of 2 and my youger brother is...
3 Sep 17, 2008
2:50 am

fire_n_ice_1970
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My child was born with a cleft palate due to Pierre Robin Syndrome. I am woundering if anyone knows of some test or something that can be done to determine...
3 Sep 16, 2008
6:55 pm

pr_lockridge
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Hello, I am new to this group and just have a few questions hopefully I can get some feed back on. My 3 and a half month old son has cleft palate with the...
2 Aug 25, 2008
2:04 pm

Marla Lemonik
raitzarose
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You're really cute. I wanna get to know you. Here's my profile with many photos Reach me here. http://mhgtyreg.topcities.com/photos.htm...
1 Aug 12, 2008
9:25 am

matchbijfriends
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My 22 month old son just diagnosed with Type 1 Sticklers.  He has heart problems that required open heart surgery.  Mild to Moderate Hearing Loss and Severe...
32 Aug 7, 2008
9:01 pm

Debby Collins
caliroze2002
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My daughter who is now 14 was born with a cleft palate. The doctors told me she had Pierre Robin Syndrome and said that syndrome caused her cleft palate and...
5 Jul 23, 2008
4:51 pm

Debby Collins
caliroze2002
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I came across an online community for individual seeking age gap relationships. Here all the people are seeking age gap relationships. Age is not important in...
1 Jul 23, 2008
4:00 pm

redpeared
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I did and it was wonderful --  I loved it..   Learned so many things and got to meet others.  I took lots of notes!     RAprilR Sittininthesummersunwith ...
1 Jul 19, 2008
3:03 pm

April Rondo
aprilflowers718
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Your profile has been added to my personal space! Check my space here: http://vbnsfsds.zoomshare.com/files/myspace.htm...
1 Jul 14, 2008
8:26 am

csgwqarwq
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Stickler Syndrome may be the most common tissue disorder in the United States, possibly affecting 1 in 10,000 persons, yet not many are aware of the condition,...
1 Jun 25, 2008
2:25 am

Mario Fedele
mario55o
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Here is a question for all of you.  I have been told my son has wide spaced and crooked teeth. This is apart of Sticklers. Does anyone else have any...
6 Jun 25, 2008
1:46 am

Mario Fedele
mario55o
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my son with sticklers is just an infant, but i was wondering if any children with sticklers that anybody knows of is playing any sports. -nate...
10 Jun 24, 2008
3:23 pm

Janine
mommajnine
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Opportunity To "LEARN" And "EARN" From Home Expand Your Knowledge Base With The Help Of Online Education <http://www.a1onlinecourses.com/> And Online Courses ...
1 Jun 6, 2008
1:49 pm

g_guide
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Hi, my name is Val, and I happen to be an RN. But.. my grandaughter was born sunday June 1 , with Pierre Robin sequence. she has a cleft palate and a...
5 Jun 5, 2008
5:48 pm

Lori Taylor
daveloritaylor
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You have 1 new message! Check the new message here: http://dessa.zoomshare.com/files/newmessage.htm...
2 Jun 5, 2008
3:42 am

girlaohblog
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Hi, HealthChapter.com ( http://healthchapter.com ) is a health based social network of people sharing their disease experiences, treatment options, knowledge...
1 May 27, 2008
6:25 pm

doctorbrayden
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As the business war on the air is hotting up with so many low-budget airlines dominating the sky, the passengers can now enjoy the best deals. The webguide -...
1 May 26, 2008
5:20 am

hasmig_gayane
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Hi Valerie- I am sorry I can't figure out the Yahoo messenger. My son is only 3 months old but has been diagnosed with Stickler's-I was wondering how...
5 May 25, 2008
1:48 am

peggreen13
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You have received a NEW friend request! Check this request here: http://matchaohfriends.googlepages.com/myfriend.htm...
3 May 13, 2008
11:43 am

matchcmlfriends
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As most of you know, we had to go to NYC this past Saturday, because a producer from "America's Got Talent' saw Brennon's videos on my Youtube account and...
4 May 10, 2008
3:13 pm

peggreen13
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I sent you a message but haven't heard back from you! Check out my page and send me a line: http://atigeress420.zoomshare.com/files/AboutMe.htm...
1 Apr 26, 2008
1:41 pm

newxtfriend
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