Hi Sticklersyndrome@yahoogroups.com, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can...
hI MY NAME IS CRYSTAL AND MY SON IS 24 hOURS OLD AND HAS BEIN DIAGNOSED WITH STICKLERS, hE HAS A U SHAPED CLEFT PALLETE AND SMALL CHIN ETC. HE IS ON BREATHING...
Hi Crystal. My son is 17 months old and was diagnosed at 6 months. The only way they can diagnose a child is through DNA and that takes usually 2-3 weeks. They...
Hi Crystal, My son is 2 now and he was born with Sticklers syndrome. He had a cleft palate and Pierre Robin Syndrome (small jaw). I would be happy to talk to...
Hi, I'm Mandy and my son Dean is now 6. He has pierre-robin sequence and marshall's syndrome (which is very close to sticklers). I remember feeling just...
Hello crystal, Both of my girls have sticklers ages 2 and 7 and I know what a shock all this can be. As for diagnosis they haven't found the right mutation in...
It is quite a process. My son has had open heart surgery as well as hearing loss and vision impairments and now am working on physical strength in the lower...
my older daughter had open heart surgery to repair a ASD and my little one had A cath lab to repair a PDA I have told they both god blessed them because they...
My son will be 3 in july. He had a very complex heart condition. He was just showing a lot of joint weakness not so much complaining of pain! His hearing loss...
my older daughter has alot of renal problems do you know if that is common? My younger daughter will have to have more repairs for her cleft as she has alot...
My son had his first laser eye surgery (to tack the retinas in place since his gel in his eyes have already liquified) when he was just turned 1 year old, had...
What kind of eye surgery has your son had Laser surgery! They have repaired holes in both retinas and repaired a flap in one eye. They also check his...
We also learned sign language for my son and he did rather well with it. In fact he still does some to this day! I am a single mom and its extremely hard. My...
ok let's not start attacking each other you don't know my daughters medical history. Araya only wears her glasses for school and layni never shows signs of...
No, I in no way was attacking you. I am experiencing Ians audiologist NOT WANTING to give him hearing aids until "hes ready for school". And I am NOT accepting...
hi! i have 4 grown kids, and 3 of them have sticklers, like their dad. my youngest daughter katie had a cleft palate with pierre rabin and sticklers which was...
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